JayCS’s Fibro Blog

Symptoms & Treatments
825

2022-05-26, Thursday - Energy 15(-20?)% / Sleep 70% - “hangover” I spose I could call ‘overdoing’ it yesterday evening… but also cos ribose like alcohol is bad for the triglycerides… My ribose hangover :roll_eyes:

Re-considering ribose comes out negative: it does boost, but that causes a backlash, aside from slight GI problems, and IT IS A SIMPLE SUGAR - looking up ribose and lipids in pubmed I get D-ribose increases triglyceride via upregulation of DGAT in the liver - PubMed, full article here)
Alcohol may only be a problem for lipids with high consumption, but OK/better with low to moderate, but it’s still recommended preferably not to use it.
Not sure about my energy, maybe tiredness and fog prevented me from being able to use it properly…

Symptom overview sorted by the ACR 2016 criteria

Widespread pain (WPI): 8 + 3 + 1! = 12
Overall Ache Areas (mainly limbs): = 8. Severity: 30% Suppleness (vs. stiffness) 80%
Local Pain Areas (mainly spine): = 3 + 1 (left shoulder). 20%

(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 15-?20%)
Waking unrefreshed 3 out of 3 (Sleep quality 70%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 75%)
Headaches & Depression: “0”, Pain or cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 80%, sleep breaks 80%, day 70%
MCAS / allergic 5% (except energy, subsumed under FM-fatigue above)

Treatments overview

Self-treatments >1h/d (Yoga Nidra)
Chinese acupuncture 1h15h/wk

Triggers & resulting Symptoms

SLEEP (click for details): 9h15, up 6x (1h05), dozing 1.5h "✅", ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 70%/3 ❌

cold shower p0 Sleep 00:00- sinuses ear plugs
1:35 5’ 80%/2 p0 st1 sip fw1’ air (ear plugs)
2:40 5’ 80%/2 p0 st1 sip fw1’ air (ear plugs) clavicle → massage gun, gel
4.40 5’ 80%/2 p0 st1 sip fw1’ (stomach nauseous, sore throat & shoulder: HWB#2) gel (ear plugs)
6:30 15’ 80%/2 p0 st1 sip fw11’ air gel nostrils (ear plugs)
7:00 25’ 80%/2 p0 st1 sip fw22’ (ear plugs) Yo.Ni.
/8:50 10’ 80%/?2 p0 st1 sip fw1’ air cream gel nostrils sinuses stomach nauseous (ear plugs) dozing, wife too, making pains and body hurt.
-10.20
Sum: 10h20-(5+5+5+15+25+10=)1h05 = 9h15, up 6x (1h05), dozing 1.5h

ACTIVITIES (aim: 40% energy) ➔ ACHE: 60%/3
wasn’t able to meet the kids even for a short while :x:
ACTIONS ➔ PAINS: :white_check_mark: neck: :x: (stretching, massage gun) GI :white_check_mark: jaw :white_check_mark:
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Except lack of real energy as ever. :x:. Sinuses yesterday evening :face_with_monocle:, nostrils at night.
Fibro & Touch: :x: Wife tried dozing next to me in the morning, making pains come up (esp. neck) and body hurt.
Covid-danger: :x: Scary yesterday in a restaurant with 15 friends (I kept my mask on and didn’t eat there and drank aside). Also annoying hearing people say how bad their one day of CoV infection was and glad that they got it and are thru with it.

Treatments

Docs:
Chinese Acupuncturist - #18 on 17th :face_with_monocle:. (Sleep & +25% GABA helping.) #19 on 27th.

SELF-PHYSIO (click for details): Y. Nidra 20’, massage gun 5' 1h32

:white_check_mark: airing 4x2’, cold shower (10’), cream fc/ey/hd/ft 1x1’, teeth 2x2’, HWB 3’, Timing, hunchback-pillow 15’, palpate 1’, belly 3’, back 12’, massage gun 10’, twist-stretch 1’, Y. Nidra 20’, neck 1+ 2’, plantar/calf stretch 2’,
Combine: next? RR!!
:x: facetime 2x1’, breath exercises 4’, horse stance 1’, aloe vera 1’, balance roll standing 5’, yoga/stretching 5’, “cross”-legged 20’, breath-hold 12’, hair/nails 3’, neck 2 4’, loins 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, bent leg fall 1’ (calendula/tea tree x1’).

Supps May 11th (~27): Supp costs:~289€/m (May 16th) CHANGED: Still 4 passiflora, 5x0.6g GABA, most stuff back on. DAO seldom. 5g Ribose helped cope with the 2.5h meeting 6:30-9. So why not do a proper trial of it, weaning it in? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/21:40 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 1P5P (0Se) PQQ 3mlxΩ3 & Qc. Meal: DAO.
/23:00 A3 “21:00” PF#2 .6 GABA&.4glu#1 & 1Lut (slp!) & Qc +0NAC
/00:00 Chamomile tea.
/00:00 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/01:35 B1 “01:00” .6g GABA PF#4
/08:50 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/08:50 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:50 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/10:45 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO +1gly
/10:45 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/12:45 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/14:45 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:05 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today:
So alcohol and ribose are both bad for triglycerides…
Re-considering ribose comes out negative: it does boost, but that causes a backlash, aside from slight GI problems, and IT IS A SIMPLE SUGAR - looking up ribose and lipids in pubmed I get D-ribose increases triglyceride via upregulation of DGAT in the liver - PubMed, full article here)
Alcohol may only be a problem for lipids with high consumption, but OK/better with low to moderate, but it’s still recommended preferably not to use it with hyperlipidemia.

Lessons in self-care #316 Careful does it. Overdoing / sugar = ribose hangover.
Reasons to be cheerful #320 Wow, a “hangover” ;-D.
Things I love about myself #15 I do like my style, altho it’s unusual and weird for some.