JayCS’s Fibro Blog

Hi Merl - grateful for giving me your 10$ worth :wink:

Fully agreed that we generally everywhere seem to have the choice between a Rock and a Hard Place with many of our docs: As regards further testing, those who do a lot of it of their own accord usually don’t seem to believe in fibro or believe their testing will find something to dispel it. Those who don’t, usually blame everything on the fibro, off-handedly.

In this case though what I mean is that the 2022 UK guidelines have distorted the “American” ACR 2016 to read: “Check off quickly that it is fibro and then leave it at that.” This will IMO make UK docs even more likely to do so than before.

As you suggest it does seem even worse in Australia: I’m not sure what your docs are urged to use as diagnostic criteria, or which advisory board is responsible. Looking at what the “Australian Prescriber” / NPS says on that, it’s similar to the 2022 UK guidelines - diagnose quick, test less, using the ACR 2010/2011 criteria. Their Fibromyalgia survey questionnaire in Box 1 again blatantly omits the bits about further testing, which is confirmed by the only very casual mention of that possibility “Investigations are only needed to exclude treatable comorbidities and potential differential diagnoses, such as thyroid dysfunction.” This phrasing makes a reference to a Mayo article from 2011, implying they haven’t taken the 2016 modifications into consideration.

The above is also the case in Germany, as I said: Docs here are “allowed” to decide themselves even to still use the 1990 criteria with the tender points, or whatever criteria they want. So I’m definitely not saying this is new or only in the UK!

It just seems with this speedier fibro diagnosis they to find the baby (= fibro) in the bathwater = difficult diagnosis, so once they have quickly identified one baby, they are throwing away the bathwater, altho there may be several more in there.

By the way, regarding Australian experts: did you see me list Emma Guymer videos from Musculoskeletal Australia on my list of good talks? What do you think of her and the Fibromyalgia Clinic in Melbourne?

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