2022-05-27, Friday - Sleep 60%, Energy 20% and rising to 25% from acupuncture! Used it (no TT partner) to overdo it by pretty much clearing out my workplace… And still energy afterwards, despite knowing it’s been too much.
…at 17:00 in 90’, which is liberating, but tidying up always churns up too, and it was way too long, plus commuting, partly used .
6:55 Just - couldn’t - sleep! OK, 2.5h(?!) break, should be able to now (with Yoga Nidra)
Symptom overview sorted by the ACR 2016 criteria
Widespread pain (WPI): 8 +3 = 11 (of 15)
Overall Ache Areas (mainly limbs): = 8. Severity: 20% Suppleness (vs. stiffness) 80%
Local Pain Areas (mainly spine): = 3. 10%
(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9 (of 12):
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 20%)
Waking unrefreshed 3 out of 3 (Sleep quality 80%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 80 → 90%)
Headaches & Depression: “0”, Pain or cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 80%, sleep breaks 70%, day 80 → 90%
MCAS / allergic 5% (except energy, subsumed under FM-fatigue above)
Treatments overview
Self-treatments >2h/d (Yoga Nidra)
Chinese acupuncture 1h15h/wk
Triggers & resulting Symptoms
SLEEP (click for details): 10h45-3h45 = 7h?, up 7x (3h45) ❌, but ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 70%/3 ❌. Get into bed early tonight!!
cold shower p0 Sleep 23:35-
0:50 5’ 80%/2 p0 st1 sip fw1’
1:20 25’+5’ 80%/2 p0 st1 sip fw1’ air cream gel nostrils sinuses stomach nauseous sore throat ear plugs B1. YoNi
2:30 5’ 80%/2 p0 st1 sip fw1’ air toenails stingy-itchy: inconspicuous white stuff → tea tree oil. (itching slightly all over could be CNS oversensitivity CSS, for a change) Yo Ni ended 3:10
3:10 15’ 80%/2 p0 st1 sip fw1’ air (stomach nauseous) FCS YN
4:20 2h45 break?? -7:05 Yo.Ni with ear plugs
9:00 5’ 80%/2 p0 st1 sip fw1’ air stools OK, nostrils (ear plugs)
-10:20
Sum: 25+10h20-(5+25+5+5+15+2h45+5=)3h45 = 10h45-3h45 = 7h?
ACTIVITIES (aim: 40% energy) ➔ ACHE: ?70%/3
(e.g. cycle 
, TT 
, meetings/social 
, mask 
, kids 
, work ➔ ?80%/2) ?
ACTIONS ➔ PAINS: neck? GI? jaw?
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever.
Fibro & Touch:
Covid-danger:
Treatments
Docs:
Chinese Acupuncturist - #19 on 27th . (Sleep & +25% GABA helping.) It’s been stable at around 20% all this time and today was a considerable booster, which was perhaps right to use, altho it’s gonna be tricky not being able to cold shower tonight!!
SELF-PHYSIO (click for details): Actually checked bp / RR for POTs and it decreased considerably from 135/85 to 122 then 93 then 117 upon standing up, and my pulse went up from 63 to 67 bpm instead of increasing 30-40 which it would with POTs, so no danger at all, and I'm not doing RR tests any more. The biggest problem is probably smashed up nights. I'm also taking out some things that weren't necessary recently: loins, "cross"-legged, hand-exerciser & hair/nails, and re-ordering the rest.
The normal stuff plus lots of Yoga Nidra, together lets say >2h.
Combine: next?
airing x2’, cold shower x(10’), cream fc/ey/hd/ft x1’, teeth 2x2’, HWB 3’, breath exercises 1’, Timing, hunchback-pillow 15’, Y. Nidra 20’, massage gun 5’, neck 1+ 2’, neck 2 1’, plantar/calf stretch 5’, acupressure 2’, palpate 1’, belly 3’, back 12’, workout 7’, horse stance 1’, aloe vera 1’, twist-stretch 5’, yoga/stretching 5’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps May 11th (~27): Supp costs:~289€/m (May 16th) CHANGED: Still 4 passiflora, 5x0.6g GABA, most stuff back on. DAO seldom. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 1P5P (0Se) PQQ 3mlxΩ3 & Qc. Meal: DAO.
/22:30 A3 “21:00” PF#2 .6 GABA&.4glu#1 & 1Lut (slp!) & Qc +0NAC
Chamomile tea.
/23:30 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/01:30 B1 “01:00” .6g GABA PF#4
/09:00 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/09:00 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/09:00 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/10:50 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO +1gly
/10:50 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/14:30 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules)
Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)
Development
’Research’ today:
A small 2019 qualitative study showing that it annoys people how vague the diagnosis is… Nothing and Everything: Fibromyalgia as a Diagnosis of Exclusion and Inclusion - PubMed However this may be caused by lack of clarity of communication, not just by the fact of the diagnosis. Of course it is vague and of course it is annoying.
This small Italian review by Maffei clarifies " is a disorder that rather than diagnosis of exclusion requires positive diagnosis" Fibromyalgia: Recent Advances in Diagnosis, Classification, Pharmacotherapy and Alternative Remedies - PubMed.
BTW This observational study from 2021 states “exceptional overlap” between ME/CFS and fibro: Beyond bones: The relevance of variants of connective tissue (hypermobility) to fibromyalgia, ME/CFS and controversies surrounding diagnostic classification: an observational study - PubMed
Primary or secondary fibromyalgia? Is Your Fibromyalgia Primary or Secondary? points to Secondary Fibromyalgia which ends with “Because of the increasing realization that FM has associations with many other disorders, the question of the equivalency of primary and secondary FM is no longer germane, as most patients with “primary” FM will be found to have comorbidities.”
Just as reference as I just checked I no way have POTs:
Continuing trying to put my fibomyalgianess in a diagramm: This is
a) my WPI+SSS score (black) vs.
b) full points (black border) vs.
c) cutoff for dx (yellow lines).
I spose I could colour the boxes to the left of the yellow lines in a different not quite so dark colour? Like this?
Lessons in self-care #317 Well I spose 90’ could have been worse. And I commend myself for taking a taxi and not walking with all the bags, after I couldn’t get at my bike cos the key locks to get my bike out had been changed without me being told 
.
Reasons to be cheerful #321 Finished! Much more than I “expected”…
Things I love about myself #16 Motivated. Get things done.
- My food
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…