JayCS’s Fibro Blog

Symptoms & Treatments
834

2022-06-01, Wednesday - Energy 25% / Sleep 85% / Ache 20% (45%)

In hindsight, Wednesday 22:00, I’ve increased the energy-% to 25%, as I’ve done 5-6x40’ stints with breaks: They hurt, but I wasn’t completely drained.
Positive summary:
Σ(+): NRG 25%, slp 80%, 0-Ache 80%(55%), 0-pain 80-90%, alert 85%, GI 95%, feeling 80%, PT >1h

Symptom overview sorted by the ACR 2016 criteria

Widespread pain (WPI): 8 +3 +1 = 12 of 15
Overall Ache Areas (mainly limbs): = 8. Severity: 20% (45%) Suppleness (vs. stiffness) 90%
Local Pain Areas (mainly spine, 3): = 3 + 1. 20% → 10%

(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9 of 12:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 20%)
Waking unrefreshed 3 out of 3 (Sleep quality 85%, but unrefreshed)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 85%)
Headaches & Depression: “0”, Pain or cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 80%, sleep breaks 70% → 60%, day 80%
MCAS / allergic 5% (except energy, subsumed under FM-fatigue above)

Treatments overview

Self-treatments >1h/d (stretches)
Chinese acupuncture 1h15h/wk

Triggers & resulting Symptoms

SLEEP (click for details): 10h09, up 4x (51') ✅, but ➔ Feeling 80-60% well, Ache 2 of 7 🧐, getting up: 70%/2 🧐. Yup, strange: sleeping deeply (first stint at least) and long stints as well as long altogether: Still not restorative, still feel sweaty tired...

cold shower p0 Sleep 22:00-
23:05 8’ 80%/2 p0 st1 sip fw2’ (ear plugs)
00:25’ 5’ 80%/2 p0 st1 sip fw1’ air (ear plugs)
2:10 8’ 70%/2 2xp0 st1 sip fw1’ air slightly sweaty (sore throat) (ear plugs)
4:45 30’ 60%/2 p0 st1 sip fw1’ air and cooling down, cream sweaty stomach nauseous sore throat (ear plugs)
After that “short” break it felt like dozing most of the time
-9:00
Sum: 2+9-(8+5+8+30=)51’ = 11h-51’ = 10h09, up 4x (51’)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2 TT :ping_pong: 2:2 → 80%/4-5 3x40’ meetings/social :speaking_head:, work ➔ 80%/2-3 :face_with_monocle:
ACTIONS ➔ PAINS: :white_check_mark: neck :face_with_monocle: GI: still :white_check_mark:, altho I thought there might be linseed in my gluten-free wholemeal “oat power” bread. Jaw :white_check_mark:, right clavicle :x:: better from (twist-)stretching a lot :white_check_mark:, 1xp1-2 :white_check_mark:.
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Except lack of real energy as ever. :x:. 20:40 itchy face, or is that “sleep lice / fleas” as we call it: What do you call an itchy face when you’re tired, esp. kids :interrobang: I can’t find an English expression anywhere?
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:

Treatments

Docs:
Chinese Acupuncturist - #19 on 27th :face_with_monocle:. (Sleep & +25% GABA helping.) #20 on 2nd.

SELF-PHYSIO (click for details): 92'

:white_check_mark: airing 4x2’, cold shower 1x(10’), cream fc/ey/hd/ft 0x1’, teeth 2x2’, HWB 0x3’, breath exercises 3’, Timing, hunchback-pillow 25’, Y. Nidra 0’, massage gun 5’, neck 1+ 3’, neck 2 0’, plantar/calf stretch 4’, acupressure 5’, palpate 1’, belly 3’, back 12’, aloe vera 1’, twist-stretch 5’, yoga/stretching 13’,
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps May 11th (~27): Supp costs:~289€/m (May 16th) CHANGED: Still 4 passiflora, 5x0.6g GABA, most stuff back on. DAO seldom. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/19:20 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 1P5P (0Se) PQQ 3mlxΩ3 & Qc. Meal: DAO.
/21:30 A3 “21:00” PF#2 .6 GABA&.4glu#1 & 1Lut (slp!) & Qc +0NAC
21:30 Chamomile tea.
/23:05 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/02:10 B1 “01:00” .6g GABA PF#4
/10:20 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/10:20 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/10:20 B4 “07:00” 0xEGCg + Fev/MSM + Sily
09:35- C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO +1gly
-10:50? C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/12:55 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/15:30 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/17:45 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

Something I often don’t realize is that my body is crying a lot of the time. Even tho I’m not doing much at a piece, a lot is overdoing it.
Remembered that 10% energy means that I can’t be “bothered” to get up off the floor, but often prefer crawling thru the flat, easier than sitting, standing & walking, altho also very strenuous.

’Research’ today: No.
Lessons in self-care #323 No writing down supp times before I take them any more… :grimacing: (Keep forgetting them or confusing before and during meal supps)
Lessons in self-care #324 My body comes first, not the web :spider_web: (which seems to entangle me :fly: sometimes :spider:).
Reasons to be cheerful #326 Nice spontaneous meeting with an old friend.
Things I love about myself #21 Caring.