2022-06-04, Saturday - Energy 20% & Ache 25% despite Sleep 90%
Σ(+): energy 20%, slp 90%, Acheless 75%, painless 90%, alert 85%, GI 95%, feeling 80%, PT >1h
Symptom overview sorted by the ACR 2016 criteria
Widespread pain (WPI): 8 +3 +2 = 13 of 15
Overall Ache Areas (mainly limbs): = 8. Severity: 25%? Suppleness (vs. stiffness): 80%?
Local Pain Areas (mainly spine, 3): = 3 +2 (clavicles). 10%
(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9 of 12:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 20%)
Waking unrefreshed 3 out of 3 (Sleep quality 90%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 85%)
Headaches & Depression: “0”, Pain/cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 80%, sleep breaks 75%, day 80%
MCAS / allergic 10% (except energy, subsumed under FM-fatigue above) Nostrils/sinuses only slight and one-sided at night.
Treatments overview
Self-treatments >1h/d
Chinese acupuncture 1h15h/wk
Triggers & resulting Symptoms
Got a focal seizure at our friends at around 15:00 while eating, after 45’ car trip and resting, I think it was still a lot, but also the 5x0.6 GABA could be increasing serotonin too much.
SLEEP (click for details): 8h57, up 4x (23') ✅, but ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 70%/2 ❌
cold shower p0 Sleep 23:30-
01:00 5’ 80%/2/10% p0 st1 sip fw1’ air nostrils B1
02:55 5’ 80%/2/10% p0 st1 sip fw1’ (nostrils) sore throat.
04:45 8’ 80%/2/10% p0 st1 sip fw5’ cream (left nostril & sinus) (stomach nauseous)
6:50 5’ 80%/2/15% p0 st1 sip fw1’ right nostril & sinus, stomach nauseous B2-4
-8:50
Sum: 30+8h50-(5+5+8+5=)23’ = 9h20-23’ = 8h57, up 4x (23’)
ACTIVITIES (aim: 40% energy) ➔ ACHE: 70%/2, work ➔ 80%/2 
TT 
2:1 - points easy, but pain, fatigue, panting ➔ 70%/4, had to keep it short due to car trip & meeting today. 
meetings/social 
3h - of that 1h30 breaks, esp. due to car trip 45’ there and 45’ back, most of that time with mask 
➔ 70-80%/4 , work in between ➔ 80%/2 .
ACTIONS ➔ PAINS: neck/clavicles → working on them 
GI jaw . Sitting several times (even back home) not watching for how: . 2x45’ car trip: The way there was worse, I think probably due to my wife being fraughter (as usual when driving): expensive petrol, a bit later than intended, she drives fast and abrupt, incl. around bends, closes up, diversion looming up stresses, that also tenses me up, and I don’t ask for additional consideration, esp. when I know she’s doing 5 things anyway (windows open less, trying to keep calm, etc.). In both directions the radio news, the tone of the speaker and the volume stressed me, I got a bit of nausea in between, some bumps hurt me and my thighs hurt quite a bit, as I have to fairly lie rather than sit, twist-stretched out a bit, trying to keep my tailbone away from the seat, hard not being able to cock one leg like I can at home sitting on the floor.
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. Should’ve taken a DAO in the evening, as I put 3 fairly small bits of a really tasty hard herb cheese on my gluten-free wholemeal bread slices… hmmmm… nice… but let’s see what my sinuses say tonight… Ah: not too bad.
Fibro & Touch:
Covid-danger: - well I spose I surprised my wife that I kept my mask on when indoors with our friends, but I asked why I should make an exception here with people we hardly ever see whilst I wear my mask one-way (= the others don’t) even with people who I see often. A recent study confirmed that this is effective if it is real FFP2, whilst (K)N95 in the US are very likely bad quality or sham.
Treatments
Docs:
Chinese Acupuncturist - #20 on 2nd. (Sleep & +25% GABA helping.) Still seems good. Next appointment #21 on 9th, then #22 on 21st. Pity energy went down today, maybe it was just a short-term push by the acupuncture and curbed by doing a bit more.
SELF-PHYSIO (click for details): 80'...
aloe vera 1’, airing 1x2’, cold shower 1x(10’), cream fc/ey/hd/ft 1x1’, teeth 2x2’, breath exercises 1’, Timing, hunchback-pillow 15’, massage gun 5’, neck 1+ 7’, yoga/stretching 5’, palpate 1’, belly 3’, back 3+12’, twist-stretch 10’,
Combine: next?
HWB 3’, Y. Nidra 20’, neck 2 1’, plantar/calf stretch 5’, acupressure 2’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps May 11th (~27): Supp costs:~289€/m (May 16th) CHANGED: 5 passiflora & 5 GABA. +1 magnesium malate in the evenings recently ✅ (praps the reason for improved sleep?), +1 magnesium glycinate in the mornings ✅. DAO seldom. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
!/21:20 A1/2 “19:00” 2xPF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ 3mlxΩ3 & Qc. Meal: DAO.
/22:40 A3 “21:00” PF#2 .6 GABA&.4glu#1 & 1Lut (slp!) & Qc +0NAC
/23:30 Chamomile tea.
/23:30 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/01:00 B1 “01:00” .6g GABA PF#4
/06:55 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/06:55 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/06:55 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/09:40 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO +1gly
/09:40 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/11:55 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/16:30 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:30 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules)
Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)
Development
’Research’ today: Measles vaccinations are very important, I read in a study and a BBC article as measles cause(s?) immune amnesia, which deactivates a lot of the antibodies, which then have to be developed again. The measles paradox is that you are only immune to measles after it, not much else, incl. CoV, and that can kill.
Lessons in self-care #327 I made sure I kept resting & mask on.
Reasons to be cheerful #329 Good feedback to a bit of work is enticing.
Things I love about myself #24 There’s quite a lot things I love doing, get into a flow from.
- My food
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…