2022-06-05, Sunday - Energy 20-25% / Sleep 75%, so Ache 30-20%
Very relaxed muscles, so could play 
long, effortlessly and precisely (6:0), with almost no Ache, and I tried to walk similarly in the evening, over an hour was just about OK.
Positive summary of symptom-%s:
Σ(+): energy 20-25%, slp 75%, Acheless 70-80%, painless 90%, alert 85%, GI 95%, feeling 80%, PT >1h
Symptom overview sorted by the ACR 2016 criteria
Widespread pain (WPI): 8 +3 = 11 of 15
Overall Ache Areas (mainly limbs): = 8. Severity: 30% Suppleness (vs. stiffness): 90%
Local Pain Areas (mainly spine, 3): = 3. 10%
(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9 of 12:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 20%?)
Waking unrefreshed 3 out of 3 (Sleep quality 75%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 85%)
Headaches & Depression: “0”, Pain/cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 80%, sleep breaks 80%, day 80%
MCAS / allergic 5% (except energy, subsumed under FM-fatigue above)
Treatments overview
Self-treatments =1h/d
Chinese acupuncture 1h15h/wk
Triggers & resulting Symptoms
SLEEP (click for details): 7h, up 3x (35') ✅/❌, but ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅
cold shower p0 Sleep 23:50- ear plugs
1:45 25’ 80%/2/5% p0 st1 sip fw20’ air (ear plugs) B1: only PF.
5:45 5’ 80%/2/10% p0! (-1 GABA?) st1 sip fw1’ air (ear plugs)
7:05 5’ 80%/2/10% (neck burn) p0 st1 sip fw1’ cream (ear plugs) B2-4
-7:25
Sum: 10+7h25-(25+5+5=)35’ = 7h35-35’ = 7h, up 3x (35’)
ACTIVITIES (aim: 40% energy) ➔ ACHE: 70-80%/3-2 TT 6:0! lots of laptop work all day, and a long 70’ walk in the summer rain in the evening ➔ 80%/2) 
.
ACTIONS ➔ PAINS: neck/clavicle: GI: jaw: 2x short, only 1xp1-2? (So reducing GABA has improved that and maybe everything!)
Sitting on chairs has been a big problem the last few days 
. Stiffness was so-so, walk was almost without pains - a bit right knee, then left knee, elbows, but relaxing legs more helped the knees and twist-stretching the arms a bit the elbows.
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. 
Hardly any sinus / nostril problems, so the GABA amount of 4 was still OK for that. DAO in the evening to eat a bit more cheese and some cow yogurt.
Fibro & Touch:
Covid-danger: They’ve stopped masking in our church 
- that makes me very nervous 
. My wife said we’ll continue to sit next to the open doors, come late and go early, and best explain to them.
Treatments
Docs:
Allergist on Tuesday - have to prepare all the papers I’ll need tomorrow.
Chinese Acupuncturist - #20 on 2nd. (Sleep & +25% GABA helping.) Still seems good. Next appointment #21 on 9th, then #22 on 21st.
SELF-PHYSIO (click for details): 61'
airing 3x2’, cold shower 1x(10’), cream fc/ey/hd/ft 1x1’, teeth 1x2’, (Timing,) hunchback-pillow 15’, = 34’ neck 1+ 2’, palpate 1’, belly 3’, back 12’, aloe vera 1’, twist-stretch 3’, yoga/stretching 5’,
Combine: next?
HWB 3’, breath exercises 1’, Y. Nidra 20’, massage gun 5’, neck 2 1’, plantar/calf stretch 5’, acupressure 2’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps May 11th (~27): Supp costs:~289€/m (May 16th) CHANGED: 5 passiflora & 4 GABA. But was wide awake at 7, meaning only 7 hours of sleep - which made me hurt first, so I thought I may need to continue the 5th GABA - but the pee pain was reduced, which was the aim of reducing the GABA, as that may have been a bit too much, and I didn't have another focal seizure (like yesterday). DAO in the evening so I could try more cheese. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 1P5P (0Se) PQQ 3mlxΩ3 & Qc. Meal: DAO.
/21:05 A3 “21:00” PF#2 .6 GABA&.4glu#1 & 1Lut (slp!) & Qc +0NAC
Chamomile tea.
/23:30 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/01:45 B1 “01:00” .6g GABA PF#4
Heating on! Warm shower?
/07:10 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/07:10 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:10 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/10:30 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO +1gly
/10:30 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
13:10 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/14:50 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:00 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules)
Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)
Development
Just wondering whether it’s fair to say that my cognitive symptoms are 2 of 3, altho I am 80-90% alert. The problem is that that’s only when I’m in peace at home, then I can do a lot. But actually I need quite a long time to write important things, and it’s not easy for me to write in a way that others understand.
’Research’ today: Relevance of all-cause mortality for statin assessment.
Lessons in self-care #328 Supp changes (+Mg & -GABA) successful!!
Reasons to be cheerful #330 Being relaxed & stressfree allowed energy!
Things I love about myself #25 Ardent.
- My food
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…