2022-06-07, Tuesday - Energy 20-25-10% / Sleep 80% - Uni Clinic… 
strain 
Positive summary of symptom-%s:
Σ(+): energy 20-25-10%, slp 85%, Acheless 85-50%, painless 90%, alert 80%, GI 90%, feeling 80-50%, PT >1h
Symptom overview sorted by the ACR 2016 criteria
Widespread pain (WPI): 8 +3 = 11 of 15
Overall Ache Areas (mainly limbs): = 8. Severity: 15% Suppleness (vs. stiffness): 80%
Local Pain Areas (mainly spine, 3): = 3. 10%
(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9 of 12:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 20-25-10%)
Waking unrefreshed 3 out of 3 (Sleep quality 80%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 80%)
Headaches & Depression: “0”, Pain/cramps in lower abdomen: “1” out of 1 Quite often slight headache from sinuses recently btw.
Feeling Well: sleep 80%, sleep breaks 80%, day 80%
MCAS / allergic 20% (except energy, subsumed under FM-fatigue above) Sinuses with slight nausea & headache night and till late morning.
Treatments overview
Self-treatments (‘PT’) >1h/d
Chinese acupuncture 1h15h/wk
Triggers & resulting Symptoms
SLEEP (click for details): 8h07, up 5x (43'), last 20' Yoga Nidra. ✅, but ➔ Feeling ?90% well, Ache ?2 of 7 🧐, getting up: ?70%/3 ❌
cold shower p0 Sleep 23:30-
0:55 8’ 80%/2/15% p1 st1 sip fw5’ air (nostrils sinuses) (ear plugs) B1
2:20 5’ 80%/2/10% p0 st1 sip fw1’ (ear plugs)
4:20 10’ 80%/2/10% p0 st1 sip fw7’ sore throat: +1 socks (ear plugs)
6:45 15’ 80%/2/15% p0 st1 sip fw10’ air sinuses (slight headache & nausea), slight sore throat (ear plugs)
7:42 5’ 80%/2/15% p0 st1 sip fw1’ sinuses (slight headache & nausea), nauseous stomach pain, so eat. (ear plugs) B2-4 eye mask, 8:00 Yo.Ni.
-8:20
Sum: 30+8h20-(8+5+10+15+5=)43’ = 8h50-43’ = 8h07, up 5x (43’), last 20’ Yoga Nidra.
ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2, train & bus to uni clinic strenuous, mask 
, shaking so I couldn’t fill in the questionnaire well at all, had to write big. Doc 
➔ 70-60-50%/3-4-5) 
ACTIONS ➔ PAINS: 
neck: still needs stretching GI: slightly looser . jaw: (only) seconds of stress . sitting .
Neck “interesting”: It was OK all day. I’d been doing a bit of stretching in between. But resting lying at home it hurt considerably every time I’d found a comfy position for 1 or 4 minutes…
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. Sinuses with slight nausea & headache part of the night. Burning in the evening after the uni clinic appointment.
After stressing my fatigue and listing my 25 MCAS-symptoms and how many of them are still there, I realized in the evening I’ve been missing something: The Ache is also increased. I used to have fibro-baseline 90%/1 before the jabs, now baseline is 80%/2, and increasing by the same amounts, e.g. before from 1 to 4 is now from 2 to 5.
Fibro & Touch: Yesterday evening my wife had stroked my back during the service and that was very soothing.
Covid-danger: Train & bus was by far not as dangerous as it seemed. In a smaller station many didn’t mask, but on the way and in the bigger station/city rules were strict, enforced and complied by even where not enforced (station and bus).
Treatments
Docs:
Uni clinic allergist today:
What happened: Not exciting. First it was, cos there was a long questionnaire which actually mentioned MCAS, for which I needed 1h to fill in. My waiting time was even slightly longer. But he didn’t look at it, asked me the same questions. He didn’t seem too familiar with either FM or MCAS. But he listened all the time. I could leave the questionnaire there tho, so I hope he’ll refer to it if I forgot something. What I told him was the important stuff anyway.
What I expect: They’ll be checking and not finding anything. The Prick-tests didn’t show anything abnormal to the most relevant substances in the Pfizer-jabs. And I bet the bloods won’t either. Some will take a few days, some up to 3 weeks. I’ll get a report then. I hope he’ll take my expectancy seriously to recommend going to an immunologist in the report. He didn’t know of one who knows about jab side effects though. But the immunologists will be unburdened by everything important allergical having been checked.
Chinese Acupuncturist - #20 on 2nd. (Sleep & +25% GABA helping.) Still seems good. Next appointment #21 on 9th, then #22 on 21st. My wife believes the energy levels down after Easter was mainly due to the pastor dissing me and not so much the 3 gigs plus rehearsals.
SELF-PHYSIO (click for details): 87'
airing 4x2’, cold shower 1x(10’), cream fc/ey/hd/ft 0x1’, teeth 2x2’, breath exercises 3’, Timing, hunchback-pillow 15’, Y. Nidra 20’, belly 2’, back 8’, aloe vera 1’, twist-stretch 6’, yoga/stretching 3’, neck 1+ 2’, plantar/calf stretch 5’,
Combine: next?
HWB 3’, massage gun 5’, neck 2 1’, acupressure 2’, palpate 1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps May 11th (~27): Supp costs:~289€/m (May 16th) CHANGED: 5 passiflora & 4 GABA. DAO seldom. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/19:30 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 1P5P (0Se) PQQ 3mlxΩ3 & Qc. Meal: DAO.
/21:00 A3 “21:00” PF#2 .6 GABA&.4glu#1 & 1Lut (slp!) & Qc +0NAC
/23:20 Chamomile tea.
/23:20 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/01:00 B1 “01:00” .6g GABA PF#4
/07:45 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/07:45 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:45 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/09:40 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO +1gly
/09:40 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/12:40 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/16:45 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:50 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules)
Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)
Development
‘Research’ today: No.
Lessons in self-care #330 Spose the allergist’s gonna be worth it…?
Reasons to be cheerful #332 Maybe new ideas, probably not - at least checking.
Things I love about myself #27 I test the limits.
- My food
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…