JayCS’s Fibro Blog

2022-06-08, Wednesday - Energy 15% / Sleep 90%

Positive summary of symptom-%s:
Σ(+): energy 15%, slp 90%, Acheless 50-70%, painless 90%, alert 75%, GI 95%, feeling 60%, PT >1h

Symptom overview sorted by the ACR 2016 criteria

Widespread pain (WPI): 8 +3 = 11 of 15
Overall Ache Areas (mainly limbs): = 8. Severity: 30-50% Suppleness (vs. stiffness): 80%
Local Pain Areas (mainly spine, 3): = 3. 10%

(Non-pain) Symptom severity (SSS) 3+3+2+1+1+0 = 9+1=10 of 12:
Fatigue vs. Energy (FM + MCAS) 3 out of 3
(Energy 15%)
Waking unrefreshed 3 out of 3 (Sleep quality 90%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 75%)
Headaches 1 & Depression: “0”, Pain/cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 80%, sleep breaks 80-70%?, day 75%
MCAS / allergic 5%?
(except energy, subsumed under FM-fatigue above)

Treatments overview

Self-treatments (‘PT’) >1h/d
Chinese acupuncture 1h15h/wk

Triggers & resulting Symptoms

SLEEP (click for details): 8h05, up 5x (25') ✅, but ➔ Feeling 80-70% well, Ache 2 of 7 🧐, getting up: 80%/2 ✅

cold shower p0 Sleep 22:10- (bit worked up, but self-Yo.Ni did the trick.) ear plugs
23:30 5’ 80%/2/10% p0 st1 sip fw1’ (ear plugs) A4
0:30 5’ 80%/2/10% p0 st1 sip fw1’ (ear plugs) B1
1:55 5’ 70%/2/15% p0 st1 sip fw1’ air, right nostril, stomach nauseous (ear plugs)
3:45 5’ 70%/2/10% p0 st2 sip fw1’ air gel (stomach nauseous) (ear plugs)
6:10 5’ 80%/2/15% p0 st1 sip fw1’ air (ear plugs) B2-4
-6:40, 6:50 C1-3
Sum: 1h50+6h40-(5+5+5+5+5=)25’ = 8h30-25’ = 8h05, up 5x (25’)

ACTIVITIES (aim: 40% energy)ACHE: 50-70%/3 all day, despite rest, on the other hand lots of stressful work, incl. phoning :x:
ACTIONSPAINS: :white_check_mark: neck :white_check_mark: GI :white_check_mark: jaw :white_check_mark: (or no time to think about it? :face_with_monocle:, but headache most of the day. :x: plus
sit :face_with_monocle: & arms up :face_with_monocle: & walk :face_with_monocle: talk :face_with_monocle:, if not partly :x:.
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Except lack of real energy as ever. :x:
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:

Treatments

Docs:
Chinese Acupuncturist - #20 on 2nd. :white_check_mark: (Sleep & +25% GABA helping.) Still seems good. Next appointment #21 on 9th, then #22 on 21st. Wary of tomorrow, not feeling well at all today…

SELF-PHYSIO (click for details): 80'

:white_check_mark: airing 5x2’, cold shower 1x(10’), cream fc/ey/hd/ft 0x1’, teeth 3x2’, HWB 3’, breath exercises 5’, Timing, hunchback-pillow 25’, Y. Nidra 20’, aloe vera 1’,
Combine: next?
:x: massage gun 5’, neck 1+ 2’, neck 2 1’, plantar/calf stretch 5’, acupressure 2’, palpate 1’, belly 3’, back 12’, workout 7’, horse stance 1’, twist-stretch 5’, yoga/stretching 5’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps May 11th (~27): Supp costs:~289€/m (May 16th) CHANGED: 5 passiflora & 5 GABA. DAO seldom. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, EGCg, Mum, Mg Mal 45mg, Nc 1*.5g, (Nd), (extra) Ω3, Pe, Ps, (Rib), Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/19:40 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 1P5P (0Se) PQQ 3mlxΩ3 & Qc. Meal: DAO.
/21:40 A3 “21:00” PF#2 .6 GABA&.4glu#1 & 1Lut (slp!) & Qc +0NAC
Chamomile tea, no, it’s been fennel tea the last few days.
/23:30 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/0:30 B1 “01:00” .6g GABA PF#4
Heating on! Warm shower?
/6:10 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/6:10 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/6:10 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/6:50 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO +1gly
/6:50 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/11:00 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/16:30 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:30 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules)

Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)

Development

’Research’ today: No.
Lessons in self-care #330 Wasn’t self-caring today, except when curbing someone who used a bit uptight words.
Reasons to be cheerful #333 Managed one heck of a lot. But backlash will come…
Things I love about myself #28 If I need to, I can power like mad.