2022-06-11, Saturday - Energy 15% / Sleep 70%
Positive summary of symptom-%s:
Σ(+): energy 15%, slp 75%, Acheless 70-80%, painless 90%, alert 85%, GI 95%, feeling 80%, PT >1h
Symptom overview sorted by the ACR 2016 criteria
Widespread pain (WPI): 8 +3 = 11 of 15
Overall Ache Areas (mainly limbs): = 8. Severity: 30%-20% Suppleness (vs. stiffness): 85%
Local Pain Areas (mainly spine, 3): = 3. 10%
(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9 of 12:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 15)
Waking unrefreshed 3 out of 3 (Sleep quality 70%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 85%)
Headaches & Depression: “0”, Pain/cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 80%, sleep breaks 70%, day 80%
MCAS / allergic 10% (except energy, subsumed under FM-fatigue above) very slight nostril/sinus at night and in between, not really to talk of, considering I’m increasing food experiments.
Treatments overview
Self-treatments (‘PT’) >1h/d
Chinese acupuncture 1h15h/wk
Triggers & resulting Symptoms
SLEEP (click for details): 8h09, up 6x (2h33) ✅/❌, ➔ Feeling 70-80% well, Ache 2 of 7 🧐, getting up: 80%/2 ✅. Lacking self-discipline, the 2h33 weren't necessary I don't think. Due to wanting to "get some life" and get on top of the forum-work
cold shower, ah at last! p0 Sleep 22:55-
0:10 10’ 70%/2/15% p1 st1 sip fw1’ air, slightly: nostrils & stomach nauseous ear plugs A4
1:45 48’ 70%/2/15% p1 st1 sip fw43’ air slight nostrils & sore throat (even may be slightly tonsils) (ear plugs) Hmm, not really a good reason for fw, why did I do so, bad habit continuing from yesterday’s good decision??
2:48 30’ 70%/2/15% 2xp0 st1 sip fw1’ air (nostrils) (stomach nauseous) (ear plugs)
5:00 25’ 70%/2/15% p0 st1 sip fw20’ air (nostrils) (stomach nauseous) (ear plugs)
7:15 35’ 80%/2/15% p st1 sip fw30’ air, slightly: nostrils & stomach nauseous ear plugs B2-4
9:08 5’ nostrils
9:37
Sum: 1h05+9h37-(10+48+30+25+35+5=)2h33 = 10h42-2h33 = 8h09, up 6x (2h33)
ACTIVITIES (aim: 40% energy) ➔ ACHE: 70%/3, incl. some work without stress. After shop for 15’, cycling 2x8’ ➔ 80%/2, but feverishly & slightly tired, maybe a bit cortisol-ey, later a 2nd shop 20’, cycling 2x15’ again, veeery slowly :biking_man, but stayed low with every movement ➔ 80%/2 ? 
+:x:
ACTIONS ➔ PAINS: neck: still keeping in check , GI: wind from potatoes again, as well as the typical “sweaty cheeks” or “cheek glow” 
. Found this from someone after eating cheese here, and there relevant ideas are tryptophan and tyramine. However cheese is high in tyramine, and I don’t get it from cheese. And I found a site saying potatoes don’t have much tyramine, but salycic acid / salicylates under the skin (so peel them…). However lots of foods have more salicylates in them than potatoes, why don’t I react to all those in the same way? No, on this list it confirms they may have some, but are low, compared to most other veggies. Jaw: - yesterday evening after my wife stressed me by not understanding that I was having brain fog difficulties and to please talk less. 3xp1-2. Headaches a bit. Difficulty holding arms up , standing , sitting .
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. 
Skin burning a bit after my night cold shower, also frontal sinus. After eating stuff like quite a bit of hard cheese, cow bilberry yogurt… and taking my evening GABA an hour too late as well, tss-tss. Burning skin on my right foot after the evening fast cold shower, not sure if that was anything else than MCAS, but there wasn’t anything visible. Some slightly burning torso skin in the morning too for a shorter time.
Fibro & Touch:
Covid-danger:
Treatments
Docs:
Cardio phoned me Saturday evening at 20:30! cos she hadn’t had time before… 
Bloods: no problems with inflammation, clotting or thyroid, lipids she says is a bit better: trig. 191 & chol 200, lip (a) isn’t there yet. My CoV antibody titre is 1849, not high, good would be 2500, but better vaccinations will be coming out in autumn, so she’d prefer to wait till then…
Chinese Acupuncturist - #21 on 9th (Sleep & +25% GABA helping.) Still seems good. Next appointment #22 on 21st.
SELF-PHYSIO (click for details): 1h20
airing 4x2’, cold shower 1x(10’), cream fc/ey/hd/ft 2x1’, teeth 2x2’, HWB 0?x3’, breath exercises 3’, Timing, hunchback-pillow 25’, Y. Nidra 20’, massage gun 3’, neck 1+ 3’, palpate 1’, belly 3’, back 10’, aloe vera 1’, twist-stretch 4’, yoga/stretching 3’, = 100’
Combine: next?
neck 2 1’, plantar/calf stretch 5’, acupressure 2’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps May 11th (~27): Supp costs:~289€/m (May 16th) CHANGED: 5 passiflora & 4 GABA (taken it out of the the details now). 3x0.6 Carnitin is back as of 7th June, P5P & Fev have come again. My favourite pure organic Rhodiola product isn't being produced, EGCg I've seemed to have forgotten to order, magnesium malate in the early evening and glycinate in the morning still in. Also increasing pine bark/pycnogenol up to 2 in the mornings. Praps time for selenium again, after a few months break? DAO seldom. Copper out as of June 10th. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, B3/Nia, EGCg, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of May 5th (25): ALA .2g, B2 2*.1g, B12 5mg/3m, C 2*.5g, Cr 31g, Cu 1x, usually 0 DAO before meals, D3 1/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, P5 27mg, Pf 1-3.35g, pine bark 1*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/19:25 A1/2 “19:00” PF#1+2 Cr#1 0mal#1+2 1P5P (0Se) PQQ 3mlxΩ3 & Qc. Meal: DAO.
/22:20 A3 “21:00” PF#3 .6 GABA&.4glu#1 & 1Lut (slp!) & Qc +0NAC
/ Fennel tea.
/0:10 A4 “23:00” PF#4 .6 GABA&.3glu#2 & Ellagic acid + 0 Rupafin
/1:45 B1 “01:00” PF#5
/7:20 B2 “07:00” +ALA+1x pine bark, (teeth) +!Ro
/7:20 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/7:20 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/10:45 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu (or Zn) 1xHon, 0 DAO +1gly
/10:45 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/?13:35 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/14:40 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/17:10 vit.D3 + D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +0!Ro
eve:
/20:10
/21:20
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules)
Pf: 0A1+1A3+0A4+0B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0P5:A2) (0Sr: B1,C4,D4)
Development
Waxing a little ponderous today… by listening to … seeing clouds from Both Sides Now… in all the various versions - her as a 24 year old, as a 57 year old, and Judy Collins’ version, Emilia can’t touch any of these, but wouldn’t blame anyone for trying… (OK let’s go on to Windmills of Your Mind… and Francoise Hardy, my insider tip…)
‘Research’ today: No.
Lessons in self-care #333 Kept every movement down to stop feverishness etc.
Reasons to be cheerful #336 Bought some good & nice new thick socks, the assistant asked what my illness is called, I said “like the car”…
Things I love about myself #31 (Gentle) Warrior
- My food
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…?