JayCS’s Fibro Blog

Symptoms & Treatments
848

2022-06-15, Wednesday - Energy 10%! / Sleep 70%

**Bit “ill” with cold, burning skin & “flu”…
Don’t know what’s gone wrong yet. Yesterday I thought I was improving a bit. Suddenly at 4-5am it felt so much like a cold/flu coming up that I did a CoV-test, negative, but I’ll continue testing. Or was it food? A little more baked beans, 150g, than last time? **

Positive summary of symptom-%s:
Σ(+): energy 10%, slp 70%, Acheless 60%, painless 90%, alert 75%, GI 95%, feeling 60%, PT >1h

Symptom overview sorted by the ACR 2016 criteria

Widespread pain (WPI): 8 +3 = 11 of 15
Overall Ache Areas (mainly limbs): = 8. Severity: 40%. Suppleness (vs. stiffness): 80%
Local Pain Areas (mainly spine, 3): = 3. 10%

(Non-pain) Symptom severity (SSS) 3+3+2+1+1+0 = 10 of 12:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 10%)
Waking unrefreshed 3 out of 3 (Sleep quality 70%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 75%)
Headaches & Depression: “1+0”, Pain/cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 80-70%, sleep breaks 75-40%, day 70-60%
MCAS / allergic 40%(?) (except energy, subsumed under FM-fatigue above)
"Feverish": 36,6°C (usually I have 1° less!)

Treatments overview

Self-treatments (‘PT’) >1h/d
Chinese acupuncture 0h this week, see how that goes

Triggers & resulting Symptoms

SLEEP (click for details): 8h08, up 6x (2h) ✅/🧐/❌, but ➔ Feeling 75-40% well, Ache 2-5 of 7 ❌, getting up: 70%/3 ❌. Ive been making the mistake of writing st1 in every sleep break to denote stiffness of 10%, which is silly, actually the stiffness is fairly high. Not as high however as after sitting in a certain posture in the daytime. So perhaps 50%, 5. What I was meaning was that it usually goes away fairly quickly, inside of a minute, which is also quicker than in the daytime. Dearie me, not easy.

cold shower p0 Sleep 23:10- no ear plugs till 4
0:38 6’ 75%/2/10% p2-3! st5 sip fw2’ cream sore throat A4
2:17 6’ 75%/2/10% p0! st5 sip fw2’ air (sore throat) B1
4:13 11’ 40%/5/20% p0 st5 sip fw1’ slightly, but enough to feel unwell: stomach nauseous, frontal sinus & sore throat, now ear plugs. 4:40 Trying Yo.Ni otherwise a shower.
5:02 18’ 40%/4/20% p0 st5->3 sip fw2’ Yo.Ni not helping, feeling pretty unwell, miserable, as if a cold is coming up on top of everything, trying a warm shower now. And HWB and 5:20 CoV-test: negative. (Can’t have got it from anyone except my wife, but she has quite a few contacts.) 5:29 headache developing. Ate bit of muesli to alleviate my nauseous stomach.
5:47 1h13 40%-50%/4->3/20->30% p0 st5 sip fw1h air cream gel nostrils sinuses stomach nauseous headache ear plugs. Feeling better at the end, but bigger headache.
8:50 7’ 60%/2/15% p0 st2 sip fw2’ stomach nauseous → almond milk with pills B2-4 (ear plugs), headache better now, but nostrils. Headache upon getting up.
-9:18
Sum: 50+9h18-(6+5+11+18+73+7=)2h = 10h08-2h = 8h08, up 6x (2h)

ACTIVITIES (aim: 40% energy) ➔ ACHE: ?70%/3
Did almost nothing except fibro-work and some work, incl. 2-3 short phone calls ➔ 60-70%/3-2 :x:
ACTIONS ➔ PAINS: :white_check_mark: except: neck :face_with_monocle: GI :white_check_mark: jaw :white_check_mark:, 1xp1-2 at 14:00, 3 hours after the last dose… hm… 0p at 17:00. Lying on my side in the grass hurt my thigh, so either it’s now worse at the moment or I’ve just adapted my bed with my lambskin, so I don’t feel it :face_with_monocle:. Didn’t do much to see what other pains I might’ve had… :face_with_monocle:.
My wife was planning me to go dog-sitting for two days at a friend’s house, but she’ll have to go alone, pity, especially for her. :frowning_face:

MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Except lack of real energy as ever. :x:. Praps try avocado, olives, vinegar, mustard and soy/tofu again? But what about fatigue? Drat, symptoms, and they’re not just cold, my skin’s burning too, so it’s MCAS and I’m guessing food triggered, there wasn’t anything else, which means baked beans 150mg without DAO before was overdoing it.
Fibro & Touch: :white_check_mark: Soft touch very pleasant
Covid-danger: :white_check_mark:

Treatments

Docs:
Chinese Acupuncturist - Next: #22 on 21st. (Sleep & +25% GABA helping.) Still seems OK. Well, today I’m fearing I may have to postpone next week.

SELF-PHYSIO (click for details): 99'

:white_check_mark: airing 7x2’, cold shower at 22:00 1x(10’), plus a warm one at 5:00 10’, cream fc/ey/hd/ft 0x1’, teeth 3x2’, HWB 3’, breath exercises 5’, Timing, hunchback-pillow 15’, Y. Nidra 20’, palpate 1’, belly 3’, back 12’,
Combine: next?
:x:massage gun 5’, neck 1+ 2’, neck 2 1’, plantar/calf stretch 5’, acupressure 2’, workout 7’, horse stance 1’, aloe vera 1’, twist-stretch 5’, yoga/stretching 5’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 12th (28 supps): Supp costs:~289€/m (May 16th) CHANGED: 5 passiflora & back to 5 GABA, changing the time of the 5th from 1:00 to 19:00 on June 14th may have helped so much that I could leave out the 5th passiflora.... 3x2x0.6 Carnitin is back as of 7th June, P5P & Fev as of 11th, Rhodiola & EGCg still aren't, magnesium malate in the early evening and glycinate in the morning still in, try doubling that as of June 15th, adding a second pine bark for energy June 11th and magnolia/honokiol increased to 2 in the evenings for sleep as of June 12th. DAO seldom. Copper out as of June 10th. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Cu, EGCg, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jun 12th (28 supps): ALA .2g, B2 2x.1g, B12 5mg/3m, C 2x.5g, Cr 3x1g, usually 0 DAO before meals, D3 up to 2-3/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4-5x.6g=~2.8g, Gi 3x?, Glu:~0.8g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, Mg Mal 1x45mg, P5 27mg, Pf 5x.35g, pine bark 2x.5g, Pq 1, Q10 (ubn) !1x.1g/d, Qc 4x.5g/d, Rs (50%) 2x.4g, Ro 0x.3g(+9mgC), Sa .1g, Sily (80%)x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/19:40 A1/2 “19:00” PF#1+2 GABA#1 Cr#1 1mal#1, 1P5P (0Se) 1PQQ 3mlxΩ3 & Qc. Meal: 0 DAO
/21:30 A3 “21:00” PF#3 .6 GABA#2&.4glu#1 & 1Lut (slp!) & Qc +0NAC
Chamomile tea.
/0:40 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid + 0 Rupafin
/2:20 B1 “01:00” PF#5
/8:55 B2 “07:00” +ALA+1x pine bark, (teeth) +0 !Ro
/8:55 B3 “07:00” (-30’) Q10#1 Qc Rs SAM-e
/8:55 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/10:50 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) .1gB2, gink#1, 0 Cu (or Zn) 1xHon, 0 DAO +1gly + 1x pine bark#2
/10:50 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/?13:00 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/?15:40 D2/3 “15:00” .5gC#2,Cr#3,!.6GABA#5,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:00 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jun 12th

Pf: 1A1+1A2+1A3+1A4+1B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. 4-5xGa: A3,A4,B1?,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 1Gly:C2 2Hon:A2 1Mal:A2 Qc: A2.A3.B3.D4 (0)Ro:B2,D4 Rs:B3,D4 SINGLE: P5:A2 A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

’Research’ today: No, just editing yesterday’s med-post.
Lessons in self-care #337 Trying not to move even slower & less today, but stretches where possible.
Reasons to be cheerful #340 I felt so rotten, but suddenly saw the splendour and majesty of the tree close to me in our garden! Need to go out there more often.
Things I love about myself #35 Don’t need many belongings, just a few musical instruments.