JayCS’s Fibro Blog

Symptoms & Treatments
860

2022-06-27, Monday - Energy 15% / Sleep 80%

What a chaotic day :bangbang:: First I got an esophagus block after my morning meal supps. Regurgitating after 15’ didn’t bring out any meal, apparently hadn’t eaten anything yet, but some of the supps, so I was “undernourished” there. Also chaos-brain from then on from the undernourishment as well as having had to regurgitate. Soon after table tennis, which I couldn’t concentrate on much at all, can’t even remember exactly, but I think it was 1:1.
Then I started doing smaller and bigger edits on previous posts without closing today’s entry. That lead to the it being deleted while saving and I’d forgot to copy it before, so I had to start tomorrow’s template and the whole entry from scratch from yesterday’s entry.
Doing that I realized that quite a bit of it, esp. the supps, could do with some updating. Getting carried away with that instead of quickly getting the basic entry back to “paper” and getting lost in lots of other research ideas, I still hadn’t finished by Monday evening.
Also I realized updating the supps that I’d obviously prepared most for the day, but not my most important one, the GABA. Which meant I was deficient and explains why I wasn’t doing well.
Then taking just the afternoon GABA, not last evening’s 3 doses, I suddenly got histaminey symptoms, burning skin, but not before, I didn’t have burning sinuses at night, nostrils, burning skin, nothing before. So that’s confused me…
Also stupid night, cos I chose to write something important to me for a longer time, instead of proper sleep-discipline. Lucky that it didn’t go completely wonky, praps due to the 2nd cold shower after that.

Positive summary of symptom-%s:
Σ(+): energy 15%, slp 80%, Acheless 80%, painless 90%, alert 80%, GI 95%, feeling 80%, PT >1h

Symptom overview sorted by the ACR 2016 criteria

Widespread pain (WPI): 8 +3 = 11 of 15
Overall Ache Areas (mainly limbs): = 8. Severity: ?20% Suppleness (vs. stiffness): ?85%
Local Pain Areas (mainly spine, 3): = 3. ?20%

(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9 of 12:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 15%)
Waking unrefreshed 3 out of 3 (Sleep quality 80%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 80%)
Headaches & Depression: “0”, Pain/cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 80%, sleep breaks 80%, day 80%
MCAS / allergic 15% (except energy, subsumed under FM-fatigue above)

Treatments overview

Self-treatments (‘PT’) >1h/d
Chinese acupuncture 0 this week.

Triggers & resulting Symptoms

SLEEP (click for details): 7h50 + doze? ✅, ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 80%/2 🧐

cold shower p0 Sleep ?23:35- no ear plugs most of the night.
2nd cold shower at about 2 or 3 was good. Apart from 1 1h30 sleep break for some forum work I felt like doing. I usually had about 5’-8’ breaks, with 80%/2/15% p0 st1 sip fw1’-5’ airing usually, not creaming, gel 1x, almost no (nostrils) (sinuses) (stomach nauseous) (ear plugs) 2nd FCS, A4 at about 1 and B1 at about 2am.
-9:13 stools, B2-4
Sum:

ACTIVITIES (aim: 40% energy) ➔ ACHE: Starting at 80%/2 I was OK, but due to all the chaos it was a totally wonky day. Bit of TT, apart from that resting, doing forum work, and a bit of writing mails ➔ 80%/2 :white_check_mark:
ACTIONS ➔ PAINS: :white_check_mark: except: neck :white_check_mark: GI :white_check_mark:, except esophagus block at 9.45, regurgitating at 10:00, then waiting a bit to eat. jaw :white_check_mark: 0xp1-2 :white_check_mark:. Can’t remember anything else. And just realizing my list of things to watch for is missing, I’ll try to reconstruct if from memory for the template below…
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Except lack of real energy as ever. :x:. Praps try avocado, olives, vinegar, mustard and soy/tofu again? Watching fatigue? Burning skin (torso, then arms, then face) at about 15:00, after seeing I’d forgotten GABA. (Don’t think the skin was from the 2nd fast cold shower at 2)
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:

Treatments

Docs:
Chinese Acupuncturist - #22 on 21st :face_with_monocle: (Sleep & +25% GABA helping.) Next session #23 on 30th. Energy seems there, esp. cos of lots of rest, which is sensible after yesterday cajon-playing.

SELF-PHYSIO (click for details): 71' (probably a bit less, still to do the back exercises really)

:white_check_mark: airing 4x2’, cold shower 2x(10’), cream fc/ey/hd/ft 0x1’, teeth 2x2’, HWB 0x3’, breath exercises 1x1’, Timing, hunchback-pillow 10’, Y. Nidra 5’, massage gun 0x3’, neck 1+ 1x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 2x1’, palpate 1’, belly 3’, back 10’, aloe vera 0x1’, twist-stretch 3x1’, yoga/stretching 2x1’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 27th (28 supps): Supp costs:~325€/m (Jun 16th) CHANGED: Stable now I've piled everything back on. Working thru June 27th, I've seen I can add a 3rd Ellagic acid, as I have tons cheap with short use by date. Trying theanine before first meal, hoping I won't wake up too much. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jun 12th (28 supps): ALA .2g, B2 4x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
DID ALL SUPPS IN TIME TODAY, ALTHO THEY CAUSED THE BLOCK.
THEN UPDATED ALL BITS DUE TO THE BLOG-MIS-EDIT.
A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 1P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon
Meal - Gum -
A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
B1 “01:00” PF#5
B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
B3 “07:00” (-30’) Q10 Qc Rs#1 SAM-e
B4 “07:00” EGCg + Fev/MSM + Sily +2The?
0 DAO
C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 2x50mgB2, gink#1, 0 Zn, gly#3+4, 1x pine bark#2 + vit.D3 2-3/wk.
C3 “MEAL” .5gC#1 (0NAC)+PEA
Meal -10:30 Gum -
C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
D2/3 “13:00” .5gC#2 , Cr#3, .6GABA#5, gink#3 DRINK!
Meal 13:10-14:10 Gum 14:10-40
D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jun 12th

Pf: 1A1+1A2+1A3+1A4+1B1, B2:2A1+2C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5:A2 A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

Careful: These are by a conservative Christian - but still very good, some done overprofessional, but the best recent ones are done sitting on her bed! with kids shouting in the background, and still she’s cutting thru the trash and pointing me to exactly everything I’m looking for… Serotonin helps sleep & hibernate Serotonin, Dopamine, Norepinephrine & GABA Explained - YouTube At lowest point in the morning, made with sunshine, sunshine helps, light helps get it rising, so it’s up again when it’s dark, then they turn into melatonin. “GABA is the rest and recovery mode of glutamate”. Serotonin, Dopamine, Norepinephrine & GABA Explained - YouTube Burnout side of adrenal fatigue, continually pumping out, if it dries out, they sink low, creative burnout … chronic pain burnout…you’ve run your adrenals dry. See video #1 of hormones etc. series. Serotonin, Dopamine, Norepinephrine & GABA Explained - YouTube serotonin comes from tyrosine - no, sorry: tryptophan, derivative of vitamin C, wholefood vitamin C. Struggles of serotonin: cf. NAD. kyuronine-pathway tryptophan - if low meat struggle with serotonin. NAD helps with stress… Serotonin, Dopamine, Norepinephrine & GABA Explained - YouTube Serotonin during day: gut function, smooth muscle functions, influences diarrhea / constipation.

‘Research’ today: A few things, praps, but what I can remember best is looking up a vague magnesium product and finding solutions to the question of what may sometimes be meant by “chelate” and a newer supposedly better form of magnesium oxide Medications - Other Options (incl. Magnesium types - detailed) - #12 by JayCS
Lessons in self-care #350 Doesn’t matter everything went wrong, it happens.
Reasons to be cheerful #352 Just went for a quick short walk with my wife and got wet in the summer rain, but no problem.
Things I love about myself #46 Chaotically focused…