JayCS’s Fibro Blog

Symptoms & Treatments
861

2022-06-28, Tuesday - Energy 15% / Sleep 80%(?)

Positive summary of symptom-%s:
Σ(+): energy 15%, slp 80%(?), Acheless 80%, painless 85%, alert 85-80%, GI 95%, feeling 80%, PT >1h

Symptom overview sorted by the ACR 2016 criteria

Widespread pain (WPI): 8 +3 = 11 of 15
Overall Ache Areas (mainly limbs): = 8. Severity: 20% Suppleness (vs. stiffness): 85%
Local Pain Areas (mainly spine, 3): = 3. 15%

(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9 of 12:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 15%)
Waking unrefreshed 3 out of 3 (Sleep quality 80%?)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 85-80%)
Headaches & Depression: “0”, Pain/cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 80%, sleep breaks 80%, day 80%
MCAS / allergic 5% (except energy, subsumed under FM-fatigue above)

Treatments overview

Self-treatments (‘PT’) >1h/d
Chinese acupuncture 0 this week.

Triggers & resulting Symptoms

SLEEP (click for details): 6h55 or 7h55(?), up 5x (65') ✅?, ➔ Feeling 80(-75)% well, Ache 2 of 7 🧐/✅, getting up: 80%/2 ✅. I can't imagine having gone to bed at 23:50 at all, and don't feel like it either. I can remember doing some quick back exercises upon getting into bed.

cold shower p0 Sleep 23:50-?? A4
1:04 18’ 80%/2/15% p0 st1 sip fw15’ air (shouted out in sleep! - “deliberately”) B1
3:05 5’ 75%/2/15% p0 st1 sip fw1’ air
4:40 15’ 80%/2/10% p0 st1 sip fw1’ air ear plugs. Drowsy, but body protesting: doesn’t like my back cushion, very slight pain & quite some discomfort everywhere, esp. back, so FCS#2
6:50 10’ 80%/2/15% p0 st1 sip fw4’ air (ear plugs)
7:15 17’ itchy scalp despite washing hair yesterday (after 4 days, so early for me) calendula essence on it didn’t help much, p0… hmm…
-7:44 stools, B2-4
Sum: 10??+7h45-(18+5+15+10+17=)65’, 7h55-65 = 6h55, up 5x (65’)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2, TT/talking 30’ ➔ 80%/5 at 12:20… :white_check_mark:, resting, then another TT 2:1 ➔ 80%/4-3, resting OK, slightly feverish & knackered praps, bit hard to think & see ➔ 80%/2.
ACTIONS ➔ PAINS: :white_check_mark: except: neck :white_check_mark: GI :white_check_mark: jaw :white_check_mark: 1xp1-2 (13:20) :white_check_mark:
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Except lack of real energy as ever. :x:. Praps try avocado, olives, vinegar, mustard and soy/tofu again? Watching fatigue? I’ve now been regularly drinking a lot of soy milk without problems, a bit of hard cheese once in the evenings, a few olives, now tried some vinegar once in the evenings too. Baked beans, more than half a can, at 14:00 - burning sinuses and slight tongue burning before eating in the evening, I’m pretty sure that’s now the 2nd time, but apparently only if it’s more than half a can, not if less. Wasn’t any other reason, didn’t forget GABA, no other histaminey food.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:

Treatments

Docs:
Chinese Acupuncturist - #22 on 21st :face_with_monocle: (Sleep & +25% GABA helping.) Next session #23 on 30th. Praps slight progression or energy at least staying at 15% at the moment.

SELF-PHYSIO (click for details): 65'

:white_check_mark: airing 4x2’, cold shower 2x(10’), cream fc/ey/hd/ft 1x1’, teeth 2x2’, HWB 0x3’, breath exercises 0x1’, Timing, hunchback-pillow 10’, Y. Nidra 0’, massage gun 0x3’, neck 1+ x1’, neck 2 x1’, plantar/calf stretch x1’, acupressure x1’, palpate 1’, belly 3’, back 10’, aloe vera 1x1’, twist-stretch 2x1’, yoga/stretching 5x1’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 27th (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Stable now I've piled everything back on. Working thru June 27th, I've seen I can add a 3rd Ellagic acid, as I have tons cheap with short use by date. Trying theanine before first meal, hoping I won't wake up too much. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jun 12th (28 supps): ALA .2g, B2 4x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/20:00 A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 1P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon
Meal - Gum -
/22:15 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/23:40 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
/1:10 B1 “01:00” PF#5
/9:45 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/9:45 B3 “07:00” (-30’) Q10 Qc Rs#1 SAM-e
/9:45 B4 “07:00” EGCg + Fev/MSM + Sily +2The?
0 DAO
/10:25 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 2x50mgB2, gink#1, 0 Zn, gly#3+4, 1x pine bark#2 + vit.D3 2-3/wk.
/10:25 C3 “MEAL” .5gC#1 (0NAC)+PEA
Meal -10:40 Gum -
/12:55x C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/14:25 D2/3 “13:00” .5gC#2 , Cr#3, .6GABA#5, gink#3 DRINK!
Meal 14:00-14:25 Gum 14:25-15:25
/17:30 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jun 27th

Pf: 1A1+1A2+1A3+1A4+1B1, B2:2A1+2C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5:A2 A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

‘Research’ today: No. Continuing thru some pretty religious stuff from Melissa Schworer, but now she’s grabbed my attention again, referencing Morley Robbins, the magnesium man, because she’s showing me how copper facilitates iron being used to attach oxygen to iron and thus transport it to the mitochondria. If this doesn’t happen enough we get iron toxicity. This would be an explanation for my orange iron-spots on my legs getting reduced since adding copper!! Chronic (Adrenal) Fatigue, Stress & Mineral Imbalances | Hormones & Nutrition Series - YouTube After that she says the iron is taken to the bone marrow to develop new red blood cells - recycling it.
Next: Thyroid (pituitary gland) is an oxygen sensor, which tells the body to go faster or slower if there isn’t enough oxygen. Retinol and copper is essential, plus vitamin C and E together (and magnesium, see 3rd video). Smog factory, oxidative stress, inflammation, PCOS, hydrogen peroxide is building up, not getting broken down enough to water, resulting in cell death, calcium deposits, nodules, sealed off.
Better food source, natural, not artificial. Beef liver would be the #1… Ohh… but look for other foods on lists…So back to

Lessons in self-care #351 Keep hurting myself today, cutting something, eating… Ouch!
Reasons to be cheerful #353 Table tennis 2x30’ (bit much, so nothing else) and really good feedback for my big project at work. :smiley:
Things I love about myself #47 The way I can get strongly motivated to do things, especially with good feedback.