JayCS’s Fibro Blog

Symptoms & Treatments
862

2022-06-29, Wednesday - Energy 17% / Sleep 80%

Cold showering seems to work regularly now - tonight even as late as 6 worked, it’s just I need to keep it short. Which I seem to have done brilliantly at 6: Only 3’ to get back to bed! And that it doesn’t work that well before bed is I think due to having read not to go to bed immediately, which seems wrong for me.

Positive summary of symptom-%s:
Σ(+): energy 17%, slp 85%, Acheless 85%, painless 90%, alert 85%, GI 90%, feeling 80%, PT >1h

Symptom overview sorted by the ACR 2016 criteria

Widespread pain (WPI): 8 +3 = 11 of 15
Overall Ache Areas (mainly limbs): = 8. Severity: 15% Suppleness (vs. stiffness): 85%
Local Pain Areas (mainly spine, 3): = 3. 10%

(Non-pain) Symptom severity (SSS) 3+3+2+1+1+0 = 9+1=10 of 12:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 17%)
Waking unrefreshed 3 out of 3 (Sleep quality 85%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 85%)
Headaches 1! & Depression: “0”, Pain/cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 80%, sleep breaks 80%, day 80% (cos of headache)
MCAS / allergic 15% (except energy, subsumed under FM-fatigue above)

Treatments overview

Self-treatments (‘PT’) ?>1h/d
Chinese acupuncture 0 this week.

Triggers & resulting Symptoms

SLEEP (click for details): 9h08, up 5x 1h10, with bed directly after the two night cold showers causing 3h sleep stints! ✅, but ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅ ()

cold shower p0 Sleep 22:20- ear plugs
23:15 8’ 80%/2/15% p0 st1 sip fw3’ air A4
01:04 23’ 80%/2/15% p0 st1 sip fw19’ air sore throat B1
1:37 8’ 80%/2/15% p0 st1 sip fw3’ gel FCS#2
5:10 28’ 80%/2/15% p0 st1 sip fw20’
5:45 3’ FCS#3
-8:38

  • stools, B2-4
    Sum: 1h40+8h38-(8+23+8+28+3=)1h10 = 10h18-1h10 = 9h08, up 5x 1h10, with bed directly after the two night cold showers causing 3h sleep stints!

ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2, then TT 2:1 (seems normal to lose the first game, then win everything after at the moment) ➔ 80%/3 :white_check_mark:, even had the feeling one more might be OK.
?? TT, cycle, mask, work, kids,
ACTIONS ➔ PAINS: :white_check_mark: except: neck :white_check_mark: GI :white_check_mark:, except a bit of a pear immediately caused pressure and regular wind, a few minutes after eating and for a few hours. jaw :white_check_mark: 0xp1-2 :white_check_mark:? Tuesday before evening meal around 19:50 p1, so before a meal comes up. My
lie, sit, stand, arms up, cycle, ??
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Except lack of real energy as ever. :x:. Praps try avocado, olives, vinegar, mustard and soy/tofu again? Watching fatigue? Headache in the evening and morning: Cos of baked beans at midday yesterday? Today only a bit of soft goat cheese and green beans. Sinuses a lot of the time too, so maybe I should reduce the histamine load again after all. It only goes so far and I’m trying too much at the same time.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:

Treatments

Docs:
Chinese Acupuncturist - #22 on 21st :face_with_monocle: (Sleep & +25% GABA helping.) Next session #23 on 30th. Slight improvements, see what tomorrow brings…

SELF-PHYSIO (click for details): 71'

:white_check_mark: airing 5x2’, cold shower 3x(10’), cream fc/ey/hd/ft 0x1’, teeth 1x2’, HWB 0x3’, breath exercises 2x1’, Timing, hunchback-pillow 10’, Y. Nidra 0’, massage gun 0x3’, neck 1+ 0x1’, neck 2 0x1’, plantar/calf stretch 0x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, aloe vera 1x1’, twist-stretch 1x1’, yoga/stretching 1x1’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 27th (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Stable now I've piled everything back on. Working thru June 27th, I've seen I can add a 3rd Ellagic acid, as I have tons cheap with short use by date. Trying theanine before first meal, hoping I won't wake up too much. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jun 27th (>30 supps): ALA .2g, B2 4x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 1P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon
Meal - Gum -
/21:40 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/23:15 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
/1:10 B1 “01:00” PF#5
/8:40 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/8:40 B3 “07:00” (-30’) Q10 Qc Rs#1 SAM-e
/8:40 B4 “07:00” EGCg + Fev/MSM + Sily +2The?
0 DAO
/12:00 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 2x50mgB2, gink#1, 0 Zn, gly#3+4, 1x pine bark#2 + vit.D3 2-3/wk.
/12:00 C3 “MEAL” .5gC#1 (0NAC)+PEA
Meal -12:10 Gum -
/14:10 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid#2
/14:30 0 DAO (D1) “12:30” 0psyllium
/18:15 D2/3 “13:00” .5gC#2 , Cr#3, .6GABA#5, gink#3 DRINK!
Meal -16:30 Gum 18:15-
/19:15 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jun 27th

Pf: 1A1+1A2+1A3+1A4+1B1, B2:2A1+2C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5:A2 A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

‘Research’ today: No.
Lessons in self-care #352 Thinking about doing worship on Sunday, since no-one else can this week, I decided I’ll keep all my effort minimal, easiest songs etc and just in case recordings of the songs in the backhand.
Reasons to be cheerful #354 Looking forward to Sunday, and no pressures anywhere at the moment, one work “pressure point” got solve pretty clearly.
Things I love about myself #48 Help where I can.