JayCS’s Fibro Blog

[JayCS]

2022-06-29, Wednesday - Energy 17% / Sleep 80%

Cold showering seems to work regularly now - tonight even as late as 6 worked, it’s just I need to keep it short. Which I seem to have done brilliantly at 6: Only 3’ to get back to bed! And that it doesn’t work that well before bed is I think due to having read not to go to bed immediately, which seems wrong for me.

Positive summary of symptom-%s:
Σ(+): energy 17%, slp 85%, Acheless 85%, painless 90%, alert 85%, GI 90%, feeling 80%, PT >1h

Symptom overview sorted by the ACR 2016 criteria

Widespread pain (WPI): 8 +3 = 11 of 15
Overall Ache Areas (mainly limbs): = 8. Severity: 15% Suppleness (vs. stiffness): 85%
Local Pain Areas (mainly spine, 3): = 3. 10%

(Non-pain) Symptom severity (SSS) 3+3+2+1+1+0 = 9+1=10 of 12:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 17%)
Waking unrefreshed 3 out of 3 (Sleep quality 85%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 85%)
Headaches 1! & Depression: “0”, Pain/cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 80%, sleep breaks 80%, day 80% (cos of headache)
MCAS / allergic 15% (except energy, subsumed under FM-fatigue above)

Treatments overview

Self-treatments (‘PT’) ?>1h/d
Chinese acupuncture 0 this week.

Triggers & resulting Symptoms

SLEEP (click for details): 9h08, up 5x 1h10, with bed directly after the two night cold showers causing 3h sleep stints! ✅, but ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅ ()

cold shower p0 Sleep 22:20- ear plugs
23:15 8’ 80%/2/15% p0 st1 sip fw3’ air A4
01:04 23’ 80%/2/15% p0 st1 sip fw19’ air sore throat B1
1:37 8’ 80%/2/15% p0 st1 sip fw3’ gel FCS#2
5:10 28’ 80%/2/15% p0 st1 sip fw20’
5:45 3’ FCS#3
-8:38

• stools, B2-4
  Sum: 1h40+8h38-(8+23+8+28+3=)1h10 = 10h18-1h10 = 9h08, up 5x 1h10, with bed directly after the two night cold showers causing 3h sleep stints!

ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2, then TT 2:1 (seems normal to lose the first game, then win everything after at the moment) ➔ 80%/3 , even had the feeling one more might be OK.
?? TT, cycle, mask, work, kids,
ACTIONS ➔ PAINS: except: neck GI , except a bit of a pear immediately caused pressure and regular wind, a few minutes after eating and for a few hours. jaw 0xp1-2 ? Tuesday before evening meal around 19:50 p1, so before a meal comes up. My
lie, sit, stand, arms up, cycle, ??
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. . Praps try avocado, olives, vinegar, mustard and soy/tofu again? Watching fatigue? Headache in the evening and morning: Cos of baked beans at midday yesterday? Today only a bit of soft goat cheese and green beans. Sinuses a lot of the time too, so maybe I should reduce the histamine load again after all. It only goes so far and I’m trying too much at the same time.
Fibro & Touch:
Covid-danger:

Treatments

Docs:
Chinese Acupuncturist - #22 on 21st (Sleep & +25% GABA helping.) Next session #23 on 30th. Slight improvements, see what tomorrow brings…

SELF-PHYSIO (click for details): 71'

airing 5x2’, cold shower 3x(10’), cream fc/ey/hd/ft 0x1’, teeth 1x2’, HWB 0x3’, breath exercises 2x1’, Timing, hunchback-pillow 10’, Y. Nidra 0’, massage gun 0x3’, neck 1+ 0x1’, neck 2 0x1’, plantar/calf stretch 0x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, aloe vera 1x1’, twist-stretch 1x1’, yoga/stretching 1x1’.
Combine: next?
workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 27th (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Stable now I've piled everything back on. Working thru June 27th, I've seen I can add a 3rd Ellagic acid, as I have tons cheap with short use by date. Trying theanine before first meal, hoping I won't wake up too much. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jun 27th (>30 supps): ALA .2g, B2 4x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 1P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon
Meal - Gum -
/21:40 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/23:15 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
/1:10 B1 “01:00” PF#5
/8:40 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/8:40 B3 “07:00” (-30’) Q10 Qc Rs#1 SAM-e
/8:40 B4 “07:00” EGCg + Fev/MSM + Sily +2The?
0 DAO
/12:00 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 2x50mgB2, gink#1, 0 Zn, gly#3+4, 1x pine bark#2 + vit.D3 2-3/wk.
/12:00 C3 “MEAL” .5gC#1 (0NAC)+PEA
Meal -12:10 Gum -
/14:10 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid#2
/14:30 0 DAO (D1) “12:30” 0psyllium
/18:15 D2/3 “13:00” .5gC#2 , Cr#3, .6GABA#5, gink#3 DRINK!
Meal -16:30 Gum 18:15-
/19:15 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jun 27th

Pf: 1A1+1A2+1A3+1A4+1B1, B2:2A1+2C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5:A2 A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

‘Research’ today: No.
Lessons in self-care #352 Thinking about doing worship on Sunday, since no-one else can this week, I decided I’ll keep all my effort minimal, easiest songs etc and just in case recordings of the songs in the backhand.
Reasons to be cheerful #354 Looking forward to Sunday, and no pressures anywhere at the moment, one work “pressure point” got solve pretty clearly.
Things I love about myself #48 Help where I can.

• My food
• 1st Jab-sfx-summary, last edit: Feb 7th.
• My blog references, e.g. abbreviations, supp chart/overview
• My “How to symptom track & trigger hunt”
• Next up…: Summaries & finishing off treatment list…

[JayCS]

2022-06-30, Thursday - Energy 15% / Sleep 85%

Main issues at the moment:

1) Seeing if 3 cold showers every night further stabilizes the better sleep to increase the cortisol that acupuncture is stimulating.

2) Research-searching and soon trialling if it’s true that copper with retinol (type of Vit. A) help iron transport oxygen to the mitochondria to increase ATP for energy. That’s supposedly certain (natural) types of bioavailable copper and of vitamin A.

3) Histaminey foods definitely sometimes seem to be causing histaminey problems, so gotta keep up those trials.
4) Keeping the esophagus blocks in check more: bad one to day, with a really big bolus.
5) Hope my new tooth problem, a thorn between two teeth, has “dissolved”.

Positive summary of symptom-%s:
Σ(+): energy 15%, slp 85%, Acheless 80%, painless 90%, alert 80 → 70%, GI 90 → 70%, feeling 80 → 70%, PT >1h

Symptom overview sorted by the ACR 2016 criteria

Widespread pain (WPI): 8 +3 = 11 of 15
Overall Ache Areas (mainly limbs): = 8. Severity: 20% Suppleness (vs. stiffness): 85%
Local Pain Areas (mainly spine, 3): = 3. 10%

(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9 of 12:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 15%)
Waking unrefreshed 3 out of 3 (Sleep quality 85%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 80 → 70%)
Headaches & Depression: “0”, Pain/cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 80%, sleep breaks 80%, day 80 → 70%
MCAS / allergic 15% (except energy, subsumed under FM-fatigue above)

Treatments overview

Self-treatments (‘PT’) >1h/d
Chinese acupuncture 1h15 this week.

Triggers & resulting Symptoms

SLEEP (click for details): 8h59, up 6x (1h14) ✅, but ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 80%/2 ❌. The 2nd and 3rd cold show worked fairly well again, 2h stints each at least, whilst the first before bedtime only lasted for an hour, then even less, only another half hour - whilst 6 lasted 2h, perfectly timed.

cold shower p0 Sleep 22:30- ear plugs
23:25 5’ 80%/2/15% p0 st1 sip fw1’ air gel (ear plugs) A4
23:55 5’ 80%/2/15% p0 st1 sip fw1’ gel (ear plugs)
0:30 35’ 80%/2/15% p0 st1 sip fw1’ (ear plugs) 6 1:00 B1
2:54 10’ 80%/2/15% p0 st1 sip fw1’ (ear plugs) FCS#2
5:16 7’ 80%/2/15% p0 st1 sip fw1’ (ear plugs) FCS#3 cream
-7:29 12’ 80%/2/15% p0 st1 sip fw1’ (ear plugs) B2-4 Dream of “us” being attacked war, but more like kids stuff for starters.
-8:45
Sum: 1h30+8h45-(5+5+35+10+7+12=)1h14 = 10h15-1h14 = 8h59, up 6x (1h14)
stools,

ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2, TT 0:2, except I shot my wad at the beginning, leading 15:4, and then crumbled down completely, exactly the other way round to recently losing the first game and winning the 2nd 2. ➔ 80%/3 , acupuncture ➔ 60%/4 . Resting a lot, but feeling an urge to do something towards the evening, and managed 30’ of intense but task-switching housework, and still might do my grocery shopping. Don’t feel like doing any work at the moment, and not too much forum work, just specific questions, seems an overload. A bit of The Big Bang Theory was OK, but made me laugh and then cry again, then the esophagus block came and I start thinking this bloody ain’t fair.
ACTIONS ➔ PAINS: except: neck GI , except severe esophagus block at 15:00, decided to get it out quickly, which was right, cos the bolus was enormous. Jaw slight 1xp1-2 (some atypical time). When I don’t specifically make remarks about lying, sitting, standing etc. that will still mean that it is all a bit of problem, sometimes more sometimes less. Compared with normal people maybe a severity of 80%, whilst I keep under the limits of 10-40’ without realizing that any more, which shows how my percentages above may not comparable to others.
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. . Praps try avocado, olives, vinegar, mustard and soy/tofu again? Watching fatigue? Reduced histaminey stuff and sinus pain also reduced, so seems to prove the connection once again. Post-nasal drip most of the morning, till about 16:00. No sinuses after green beans and bits of soft goat cheese, a fig or two. I’m still blaming the baked beans, altho they have been OK in the past too. Maybe the total load, or too much of them.
Fibro & Touch:
Covid-danger:

Treatments

Docs:
Chinese Acupuncturist - #23 on 30th (Sleep & +25% GABA helping.) Next session #24 on 12th. Interesting how clear my vision is at 13:15. Still at 16:00. But also knackered from it. Energy seemed to increase at 18:00, so I could follow my desire to do some housework.

SELF-PHYSIO (click for details): 92' (back exercises bit late, but did 'em)

airing 4x2’, cold shower 3x(10’), cream fc/ey/hd/ft 1x1’, teeth 2x2’, HWB 0x3’, breath exercises 4x1’, Timing, hunchback-pillow 20’, Y. Nidra 0’, massage gun 0x3’, neck 1+ 2x1’, neck 2 x1’, plantar/calf stretch 3x1’, acupressure x1’, palpate 1’, belly 3’, back 10’, aloe vera x1’, twist-stretch 1x1’, yoga/stretching 5x1’.
Combine: next?
workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 27th (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Stable now I've piled everything back on. Working thru June 27th, I've seen I can add a 3rd Ellagic acid, as I have tons cheap with short use by date. Trying theanine before first meal, hoping I won't wake up too much. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jun 27th (>30 supps): ALA .2g, B2 4x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/20:20 A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 1P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon
Meal - Gum 21:30-
/21:30 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/23:30 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
/01:00 B1 “01:00” PF#5
/07:30 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/07:30 B3 “07:00” (-30’) Q10 Qc Rs#1 SAM-e
/07:30 B4 “07:00” EGCg + Fev/MSM + Sily +2The?
0 DAO
/9:30 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 2x50mgB2, gink#1, 0 Zn, gly#3+4, 1x pine bark#2 + vit.D3 2-3/wk.
/9:30 C3 “MEAL” .5gC#1 (0NAC)+PEA
Meal -10:00 Gum -
/13:00 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/15:00 D2/3 “13:00” .5gC#2 , Cr#3, .6GABA#5, gink#3 DRINK!
Meal -15:30 Gum -16:00
/18:00 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jun 27th

Pf: 1A1+1A2+1A3+1A4+1B1, B2:2A1+2C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5:A2 A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

‘Research’ today:

Copper and retinol for more energy?!

If it’s retinol and copper that I’m deficient in, and iron too high, what can I eat, esp. as a pretty-vegan 9 Foods Rich In Retinol (Preformed Vitamin A) To Meet Your Vitamin A Needs

• Baked sweet potato, 1 whole: 1,403 mcg RAE
• Carrots, raw, 1 cup: 918 mcg RAE
• Kale, boiled, 1 cup: 886 mcg RAE
  1 mcg of physiologically available retinol comes from just 12 mcg of beta-carotene but needs 24 mcg of alpha-carotene and beta-cryptoxanthin.
  This compares to vegetarian:
• Goat’s cheese (hard), 1 oz: 136 mcg
• Cheddar cheese, 1 oz: 94 mcg
• Ricotta cheese, ½ cup: 145 mcg
  A 3 oz serving of bluefin tuna has 643 mcg of retinol iteself, Beef liver, braised, 3 oz: 8014 mcg of retinol.

10 Best Foods High in Vitamin A (Retinol)

“On the one hand, the conversion often functions only to a limited extent in people with digestive problems, hormone disorders, or diabetes.
On the other hand, according to studies, women can absorb only about 3.3% and men about 2.25% of beta-carotene” (Lin et al. 20002; Hickenbottom et al. 20023).
“For this reason, you should better be ready to eat several kilograms of sweet potatoes to meet the equivalent daily requirement of retinol.”
Iron Overload: Cause of Histamine Intolerance? | The Root Cause w/ Morley Robbins Pt. 2 - YouTube “We’ve been mislead to think we need more iron” - it just needs to be balanced and used by copper and retinol.
A lot of this sounds very oversimplified, just the name “root cause protocol” or arguments people you used to be healthy 100 or 1000 years ago, which is silly. And it sounds like Kuklinski, talking about NO, whose protocol I already tried 3x in my first fibro year. But it’s different, and seems to fit, what with copper changing something and iron deposits.
Few copper supplements that really become bioavailable Iron Overload: Cause of Histamine Intolerance? | The Root Cause w/ Morley Robbins Pt. 2 - YouTube, better in food. Bee pollen, real vitamin C and grass fed beef liver. Best supps - not easy to work with - from “Reverse Skin Aging”-author Loren Pickart. He’s developed GHK-Cu Peptide, which has a lot of studies on pubmed, I’ll see if they show it seems to work? He doesn’t recommend any others, just says there are many which don’t.
I’m wondering if I could try microalgae for retinol, but I only found this study which seems to show it’s only in preliminary stages The Extraction of β-Carotene from Microalgae for Testing Their Health Benefits - PubMed

r/Biohackers - Anyone tried The "Root cause protocol by Morley Robbins" ?

In the 5 phases named here, I’m doing 16 of 29 = 55% of what it says already and definitely don’t tolerate some of them, like taurine and normal vitamin C, not at all sure about the (ConcenTrace I guess) “mineral drops” (Mg Cl Na K SO3 Li Bo). The “adrenal cocktail” contains orange juice (which I don’t tolerate), a potassium source (which I have more than enough of), Himalayan salt (which I use every day on my raw veggies), some add coconut water, which I often have yogurts of. In my microalgae for Ω3 I also have 3mcg of D3 and 2mg of vit. E, naturally. Vitamin E complex reminds me of Kuklinski distinguishing 8 types of vit. E which I took for many months without helping.
ATP needs magnesium MAGNESIUM & why it's SO IMPORTANT to our health | The Root Cause w/ Morley Robbins Pt. 3 - YouTube
However here everything it says suggests I have tons of magnesium in my food (pumpkin seeds, quinoa, almonds, cashews, beans, dried figs, dark chocolate, sea salt). I take the supps they suggest too, but some of their recommendations don’t fit to what I’ve read elsewhere - it’s based on what Robbins says that magnesium citrate is synthetic and inhitibs ceruloplasmin, something very important to him.

Lessons in self-care #353 Toning what I’m doing down now to what I need, not letting myself be pressured to anything.
Reasons to be cheerful #355 A few new reasons for a tiny bit of hope.
Things I love about myself #49 Roly-poly toy / tumbler… whatever…

• My food
• 1st Jab-sfx-summary, last edit: Feb 7th.
• My blog references, e.g. abbreviations, supp chart/overview
• My “How to symptom track & trigger hunt”
• Next up…: Summaries & finishing off treatment list…

[JayCS]

2022-07-01, Friday - Energy 15-20% / Sleep 85%

Positive summary of symptom-%s:
Σ(+): energy 15-20%, slp 85%, Acheless 80%, painless 80%, alert 85%, GI 85%, feeling 80%, PT >1h

Symptom overview sorted by the ACR 2016 criteria

Widespread pain (WPI): 8 +3 = 11 of 15
Overall Ache Areas (mainly limbs): = 8. Severity: 20% Suppleness (vs. stiffness): 85%
Local Pain Areas (mainly spine, 3): = 3. 20%

(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9 of 12:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 15-20%)
Waking unrefreshed 3 out of 3 (Sleep quality 85%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 85%)
Headaches & Depression: “0”, Pain/cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 80%, sleep breaks 80%, day 80%
MCAS / allergic 5% (except energy, subsumed under FM-fatigue above)

Treatments overview

Self-treatments (‘PT’) >1h/d
Chinese acupuncture 1.5h this week.

Triggers & resulting Symptoms

SLEEP (click for details): 9h06, up 6x (45') ✅, ➔ Feeling 80(60)% well, Ache 2 of 7 🧐, getting up: 70%/3 ❌

cold shower (-> 40’) 22:20 p0 Sleep 22:30- ear plugs
23:10 10’ 80%/2/15% p0 st1 sip fw1’ air A4
1:40 4’ 80%/2/15% p0 st1 sip fw1’ air B1
1:50 6’ FCS#2: → 1h10+1h10 slp.
3:10 11’ 80%/2/15% p0 st1 sip fw8’ air gel
4:30 5’ 80%/2/15% p0 st1 sip fw1’ air
6:17 9’ 60%/5/15% p0 st1 sip fw1’ air FCS#3
-8:11 stools, B2-4
Sum: 1h40+8h11-(10+4+6+11+5+9=)45’ = 9h51-45 = 9h06, up 6x (45’)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2, TT 2:1 with long breaks ➔ 80%/3 , bit of housework, bathroom & cooking.
ACTIONS ➔ PAINS: except: neck GI , except a 3rd esophagus block in a row after morning supps and wanting to try to eat first meal, had to regurgitate a little and postpone that. jaw 0xp1-2 . Blow drying was tough on my arms.
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. . Praps try avocado, olives, vinegar, mustard and soy/tofu again? Watching fatigue? Nostrils, but only when getting up, after 2 olives, small bits of soft goat cheese & hard cheese with some mustard & a fig in the evening. So that’s tolerable. 2 olives again at midday. Could try increasing that alone again next. All doesn’t seem to increase or decrease fatigue, just the burning.
Fibro & Touch:
Covid-danger:

Treatments

Docs:
Chinese Acupuncturist - #23 on 30th (Sleep & +25% GABA helping.) Next session #24 on 12th. Managed housework & shop with quite some energy in the evening. Gotta remember to not overdo it tho! Energy seems to be increasing now I’m getting a handle on my sleep with the cold showering.

SELF-PHYSIO (click for details): 85'

airing 5x2’, cold shower 3x(10’), cream fc/ey/hd/ft 1x1’, teeth 3x2’, HWB 0x3’, breath exercises 0x1’, Timing, hunchback-pillow 20’, Y. Nidra 0’, massage gun 0x3’, neck 1+ 0x1’, neck 2 0x1’, plantar/calf stretch 0x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, aloe vera 2x1’, twist-stretch 0x1’, yoga/stretching 2x1’. 85’
Combine: next?
workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 27th (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Stable now I've piled everything back on. Working thru June 27th, I've seen I can add a 3rd Ellagic acid, as I have tons cheap with short use by date. Trying theanine before first meal, hoping I won't wake up too much. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jun 27th (>30 supps): ALA .2g, B2 4x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/19:50 A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 1P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon
Meal - Gum -
/21:30 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/23:15 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
/1:40 B1 “01:00” PF#5
/09:30 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/09:30 B3 “07:00” (-30’) Q10 Qc Rs#1 SAM-e
/09:30 B4 “07:00” EGCg + Fev/MSM + Sily +2The?
0 DAO
/11:30 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 2x50mgB2, gink#1, 0 Zn, gly#3+4, 1x pine bark#2 + vit.D3 2-3/wk.
/11:30 C3 “MEAL” .5gC#1 (0NAC)+PEA
Meal -/11:30 Gum 11:30¢-
/13:40 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/15:00 D2/3 “13:00” .5gC#2 , Cr#3, .6GABA#5, gink#3 DRINK!
Meal -15:30? Gum 15:50-
/17:40 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jun 27th

Pf: 1A1+1A2+1A3+1A4+1B1, B2:2A1+2C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5:A2 A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

‘Research’ today: No.
Lessons in self-care #354 Getting a handle on things again more, slowly.
Reasons to be cheerful #356 Cycle-walk to one of our beauty spots a big duck pond, with 5 families in different stages, incl. 2 an older and a younger yellow duckling, also a thrush for the first time in many years, don’t get them around here any more.
Things I love about myself #50 Unafraid.

• My food
• 1st Jab-sfx-summary, last edit: Feb 7th.
• My blog references, e.g. abbreviations, supp chart/overview
• My “How to symptom track & trigger hunt”
• Next up…: Summaries & finishing off treatment list…

[JayCS]

2022-07-02, Saturday - Energy 15% / Sleep 90% / Feeling 70%-ish

Focus on

• 3 cold showers per night to keep my sleep good to praps increase energy.
• drinking much more with each single capsule to stop them blocking, but needing to get my bladder under control again.
• how much of my fatigue is actually stiffness, so I’m adjusting my stiffness-assessment,
  …but at the moment best NOT much on
• broadening my food variety.

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain (WPI) = 11 of 15 areas: limb-Ache 8 (20%, stiffness 60%) + spine-pain 3 (20%).
Symptom severity (SSS) = severity 9 of 12: Fatigue 3 (85%), insomnia 3 (10%), fog 2 (20%), headache 0, GI 1 (20%), depression 0.)

Triggers & resulting Symptoms

SLEEP (click for details): 8h38, up 5x (38') ✅, but ➔ Feeling 80-70% well, Ache 2-3 of 7 ❌, getting up: 70%/3 ❌

cold shower p0 Sleep 23:07- ear plugs A4
1:00 10’ 80%/2/15% p0 st1 sip fw2’ air (sore throat) (ear plugs) B1
2:09 10’ 70%/3/20% p0 st1 sip fw2’ air (ear plugs) FCS#2
4:04 9’ 70%/3/15% p1! st1 sip fw2’ air (ear plugs) FCS#3
5:33 5’ 80%/2/15% p0 st1 sip fw21 (frontal sinuses) (ear plugs)
6:50 4’ 70%/3/15% p0 st1 sip fw21 ((nostrils)) (ear plugs) eye mask
-8:23 stools, B2-4
Sum: 53+8h23-(10+10+9+5+4=)38 = 9h16-38’ = 8h38, up 5x (38’)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 70%/2 TT 1:2 (close though) ➔ 60%/3 , rest ➔ 80%/3 , kids 2h outside in a park in the shade, of which 1.5h lying with eyes shut and listening and cuddling ➔ 70%/3 , quick practice for tomorrow 15’, making sure it’s safe ➔ 60%/4
?? TT, cycle, mask, work, kids,
ACTIONS ➔ PAINS: except: neck GI , esophagus . jaw 1xp1-2 (harder now drinking more)
(lie, sit, stand, arms up, cycle, walk, mask??)
MCAS/HIT-Symptoms/Triggers/Treatments: Except no energy . Try avocado , olives 3-4 , vinegar: speck , mustard , soy/tofu ?, hard cheese: slivers . Burning sinuses at 14:40 - no food triggers, but very annoyed & indignant because someone had slitted a letter I got today and taken something helpful out.
Fibro & Touch:
Covid-danger: - meeting with the kids…

Treatments

Docs:
Chinese Acupuncturist - #23 on 30th (Sleep & +25% GABA helping.) Next session #24 on 12th.

SELF-PHYSIO (click for details): 88'

airing 5x2’, cold shower 3x(10’), cream fc/ey/hd/ft 2x1’, teeth 3x2’, HWB 0x3’, breath exercises 0x1’, Timing, hunchback-pillow 20’, Y. Nidra 0’, massage gun 0x3’, neck 1+ 1x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, aloe vera 1x1’, twist-stretch 2x1’, yoga/stretching 1x1’.
Combine: next?
workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 27th (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Stable now I've piled everything back on. Working thru June 27th, I've seen I can add a 3rd Ellagic acid, as I have tons cheap with short use by date. Trying theanine before first meal, hoping I won't wake up too much. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jun 27th (>30 supps): ALA .2g, B2 4x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/19:50 A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 1P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon
Meal 19:50 - Gum -
/22:00 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/23:05 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
/01:00 B1 “01:00” PF#5
/8:30 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/8:30 B3 “07:00” (-30’) Q10 Qc Rs#1 SAM-e
/8:30 B4 “07:00” EGCg + Fev/MSM + Sily +2The?
0 DAO
/10:15 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 2x50mgB2, gink#1, 0 Zn, gly#3+4, 1x pine bark#2 + vit.D3 2-3/wk.
/10:15 C3 “MEAL” .5gC#1 (0NAC)+PEA
Meal 10:35-11:00 Gum 11:45-
/13:10 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/14:40 D2/3 “13:00” .5gC#2 , Cr#3, .6GABA#5, gink#3 DRINK!
Meal -14:30 Gum 14:45-
/17:55 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jun 27th

Pf: 1A1+1A2+1A3+1A4+1B1, B2:2A1+2C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5:A2 A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

The two esophagus blocks on Thursday were due to watching The Big Bang Theory instead of focusing on slow eating. The one Friday more was due to not drinking enough and not stopping a while before eating. This morning taking the B2-4 supps with a lot of almond milk was still not enough, so I need to be even more careful with C1-3: one capsule big sip. Problems then are more bladder frequency, urge & pain.

Tried to explain to my grandchild that I’m not old at all, so am still strong, just “ill”. When I demonstrated that (caught, carried and cuddled), reacted “I believe you’ll get well again”, I reacted “I do hope so”. And that I can bite and chew all food, but my body gets ill from it. Also said “I have some hurt too, granddad.” - Yeah, I thought: people mean well, when they say that, it’s not meant to belittle anything.

‘Research’ today: Now due to Morley Robbins as spin-off from Rodger Murphree I’m re-researching best forms of vitamin A, copper and vitamin C, using my favourite German supp blogger hcfricke. On vitamin C he convinces me that sodium ascorbate is the best form for me, as opposed to Robbins saying it has to be natural. I do eat the best (vegetarian/vegan) sources of vitamin A, C and copper. But I want to continue trying more copper, and seeing if it has actually helped my fatigue whilst my fatigue is now more since stopping it.
Copper: Oats, cashews, almonds, broccoli, raisins, green tea (cf. my EGCg and ellagic acid). Beans in (organic) baked beans, if I manage to tolerate them.
Ellagic acid: This site says that it’s wrong to read a % of ellagic acid, since it can’t contain any, only ellagitannin. The page gives a bad impression as it is badly written & formatted. Look up ellagitannin, it is a group name = class of tannins. They say that a Dr John Barron that all are different, and those tested most aren’t pomegranate like I’m using, but red raspberries.
Lessons in self-care #354 Managed to stay with kids a long time, not speaking etc., only possible and a great help when my wife takes over all patter.
Reasons to be cheerful #356 Seem to have lost the small “thorn” that got tightly wedged in the gums between 2 teeth, which I thought I’d have to visit the dentist’s for.
Things I love about myself #50 Love all my “kids”, and cuddling.

• My food
• 1st Jab-sfx-summary, last edit: Feb 7th.
• My blog references, e.g. abbreviations, supp chart/overview
• My “How to symptom track & trigger hunt”
• Next up…: Summaries & finishing off treatment list…

[JayCS]

2022-07-03, Sunday - Energy 15% / Sleep 85% (too long) / Feeling (70-)80%-ish

Focus on:

• 2-3 cold showers at night
• Cu and retinol?
• slower eating
• drinking more with capsules, but in compromise with keeping bladder pain down,
• praps reducing sweet potatoes, quinoa, chocolate, olives, cashews, almonds, figs, broccoli, cucumber, herbs and apples, then stopping for 2-3 weeks, then re-introducing.
• praps stopping quercetin, resveratrol, PEA (all this for oxalates and salicylates).

Saturday evening 21:00: hot flash, with a feverish-feeling, slightly burning skin and “feeling poisoned” - see MCAS/allergic.

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain (WPI) = 11 of 15 areas: limb-Ache 8 (20%, stiff 30%) + spine-pain 3 (20%).
Symptom severity (SSS) = severity 9 of 12: Fatigue 3 (80%), insomnia 3 (10%), fog 2 (20%), headache 0, GI 1 (10%), depression 0.

Triggers & resulting Symptoms

SLEEP (click for details): 10h30, up 6x (58'), only 2 cold showers ✅, but ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. Sleepy enough without a 3rd cold shower. Decided on the 2nd after a 30' stint, after which I had 2x 2h stints, a 1h and a 1.5h stint.

cold shower p0 Sleep 21:40- ear plugs after above “poisoning” myself. p2-3
22:40 20’ 80%/2/15% p3 st2 sip fw15’ air (ear plugs) A3
00:20 20’ 80%/2/15% p2 st2 sip fw1’ air (ear plugs) A4
2:17 5’ 80%/2/15% p2 st1 sip fw1’ air (ear plugs) B1
2:43 7’ 80%/2/15% p1 st1 sip fw1’ air (ear plugs) FC#2 calendula
4:25 4’ 80%/2/15% p1 st1 sip fw1’ air (ear plugs)
6:14 6’ 80%/2/15% p1 st1 sip fw1’ air (ear plugs)
7:38 17’ 80%/2/15% p1 st1 sip fw1’ air (ear plugs) (right nostril), eyemask: right eyebrow hurts a little under it. B2-4 with a lot of almond milk / water and a break before B4.
-9:08 stools, C1-3
Sum: 2h20+9h08-(20+5+7+4+6+17=)58’ = 11h28-58’ = 10h30, up 6x (58’)

ACTIVITIES (aim: 40% energy) ➔ ACHE: Quick grocery shopping at 19:20 ➔ 80%/2, TT 2:0 ➔ 80%/3 , cycle, mask, work, kids,*
ACTIONS ➔ PAINS: except: neck GI , esophagus /, jaw , 4xp1-2 , 18:00 Nauseous for a few hours, after lying in the shade / heat. .
(lie, sit, stand, arms up, cycle, walk, mask??)
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. . Praps try avocado, olives, vinegar, mustard and soy/tofu again? Watching fatigue? Saturday evening 21:00: Wow, while ending a pretty copious meal but without more histamine triggers, I suddenly got a hot flash, with a feverish-feeling, slightly burning skin and “feeling poisoned”. So if it was something I ate, I need to be looking at something or a combination I thought was safe, like salicylates, which fits to the research-search I’d just come across anyway. 13:25 again a little bit. A bit worse - hot flush, skin pricks & burning here and there, after eating the left-overs of the left-overs, so that means it was the food, and as the reaction was worse yesterday, I’m thinking it wasn’t the increased histamine from eating left-overs (now 2 days old I think), but the foods. These were: quite some broccoli, half-cooked; white cabbage (but that’s not what’s meant by kale is it?), bits of sweet potatoes, quite some quinoa, a bit of chocolate, olives, cashews, almonds, figs, cucumber, herbs and apples, so a bit of everything on the oxalates/salicylates lists…

Fibro & Touch: . Probably wouldn’t be good at the moment, but more from MCAS. Showering is OK tho.
Covid-danger: We were outside in open space all the time yesterday, I hope that the family conctact was safe enough.

Treatments

Docs:
Chinese Acupuncturist - #23 on 30th (Sleep & +25% GABA helping.) Session #24 on 12th.

SELF-PHYSIO (click for details): 78'

airing 5x2’, cold shower 3x(10’), cream fc/ey/hd/ft 0x1’, teeth 2x2’, HWB 0x3’, breath exercises 1x1’, Timing, hunchback-pillow 10’, Y. Nidra 0’, massage gun 0x3’, neck 1+ 0x1’, neck 2 0x1’, plantar/calf stretch 0x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, aloe vera 0x1’, twist-stretch 1x1’, yoga/stretching 8’.
Combine: next?
workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 27th (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Stable now I've piled everything back on. Working thru June 27th, I've seen I can add a 3rd Ellagic acid, as I have tons cheap with short use by date. Trying theanine before first meal, hoping I won't wake up too much. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jun 27th (>30 supps): ALA .2g, B2 4x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/20:00 A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 1P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon
Meal - Gum -
/22:50 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/0:20 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
/2:20 B1 “01:00” PF#5
/7:45 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/7:45 B3 “07:00” (-30’) Q10 Qc Rs#1 SAM-e
/7:45 B4 “07:00” EGCg + Fev/MSM + Sily +2The?
0 DAO
/10:30 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 2x50mgB2, gink#1, 0 Zn, gly#3+4, 1x pine bark#2 + vit.D3 2-3/wk.
/10:30 C3 “MEAL” .5gC#1 (0NAC)+PEA
Meal -11:00 Gum 11:30-11:55
/13:30 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/14:20 D2/3 “13:00” .5gC#2 , Cr#3, .6GABA#5, gink#3 DRINK!
Meal 14:20-35 Gum - Hmm, 15:30, still hungry…-16:00
19:20 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jun 27th

Pf: 1A1+1A2+1A3+1A4+1B1, B2:2A1+2C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5:A2 A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

‘Research’ today:

Quercetin and salicylate sensitivity?

I haven’t found much yet, - people saying they are sensitivity to salicylates, yet tolerating quercetin, a comment on mastcell360 saying it had been helping her but stopped confused cos of high levels of salicylates in an Organic Acid Test (I guess the Great Plains one).
This is a short UK page by a Margaret Moss with many details - but not a single source - recommending “if you have a problem with histamine or salicylate… [y]ou need to minimise your intake of amines and phenols in general”. And she recommends against many supps, not just quercetin: “This includes resveratrol in red wine, tyramine in mature cheese, and phenylethylamine in chocolate. Green tea should be avoided because of the quercetin in it. Avoid tablets of quercetin and take vitamin C without bioflavonoids, which are phenols.” - also boron, which reduces vit. B2, thus sulphate & glutathione. On the other hand recommending DAO, with copper, as well as Mg, Zn, vit. B1, B2, B6, B12, folate, DMG / TMG / choline. Interesting the idea to take Epsom salt baths not because of the magnesium, but because of the sulphate - never read it put that way. https://www.nutritionist-resource.org.uk/memberarticles/why-do-i-react-to-histamine-sulphites-and-salicylate
I find extend recommendations like these which contradict the many people recommending quercetin and resveratrol for MCAS exasperating. And what do I now do with the PEA I’m taking, and is the EGCg from green tea, and theanine OK? And do I now have to stop eating my broccoli, sweet potatoes, cucumber, herbs (my few?), apples cos of salicylates and sweet potatoes, quinoa and chocolate (my dark sorts?) cos of oxalates like Dr. Becky Campbell lists, as opposed to the SIGHI list? And stop my trials with olives, cashews, almonds, and a fig a day, which seemed to have been OK in small amounts? And what about the high amount of bioflavonoids, being phenols, in broccoli and kale, I thought they were good, now they may be bad?
Makes me want to ignore them all and go back to my very own guinea pig lab drawing board. But without outside suggestions that couldn’t exist. sigh. I do need to get my energy up considerably, stuck at 15%. But by reducing all the above, meaning a reduction of food types from 50+ to 40? evenbiggersigh Oh well, here I go again… Becky Campbell says we can stop salicylates immediately. And oxalates slowly - separately if it’s only them or together if we are reducing salicylates: slowly to prevent their dumping, then re-introducing after 2-3 weeks.
Trudy Scott (amino acids) is someone whose judgement I trust and she has an uncommented page sharing the Great Plains Organic Acid Test; but that’s not enough for me yet.

The page I’d found yesterday giving companies advertising ellagic acid content some stick cited a “Dr. John Barron”. I’ve found him, as his site wasn’t linked. He’s called Jon tho, but is not a Dr. in any form at all, has a very professional site, which shows he uses the pomegranate form of ellagitannins and markets specific formula in a pseudo-understating spectacularly unspectacular way. https://www.jonbarron.org/diet-and-nutrition/designing-super-food-formula. I’m slightly impressed by the website, but not by his recommendations, nor his videos, and the only review of his book on amazon that I can follow is the worst one, with telling quotations.
BTW That lead me on to have a look see that DC and DO doctors (often “functional doctors”) are actually “doctors”, with almost as long training as an MD, I didn’t realize that, we don’t have that here at all.

Lessons in self-care #355 Watching out for my energy went well.
Reasons to be cheerful #357 Gig today went OK, lying down in between.
Things I love about myself #51 Quick to pluck up courage again.

• My food
• 1st Jab-sfx-summary, last edit: Feb 7th.
• My blog references, e.g. abbreviations, supp chart/overview
• My “How to symptom track & trigger hunt”
• Next up…: Summaries & finishing off treatment list…

[JayCS]

2022-07-04, Monday - Energy 15% / Sleep 70% / Feeling 70%-ish

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain (WPI) = 11 of 15 areas: limb-Ache 8 (30%, stiff 60%) + spine-pain 3 (20%) .
Symptom severity (SSS) = severity 9 of 12: Fatigue 3 (85%), insomnia 3 (30%), fog 2 (20%), headache 0, GI 1 (20%), depression 0.

Triggers & resulting Symptoms

SLEEP (click for details): 7h27, up 7x (3h48) ✅, ➔ Feeling 80-70% well, Ache 2-3 of 7 ❌, getting up: 80%/2 🧐

cold shower p0! Sleep 22:55- ear plugs. Short interruption from neighbour unpacking things.
0:05 6’ 80%/2/15% p2 st1 sip fw1’ air (nostrils, cos overheated) (ear plugs) A4
1:25 13’ 70%/2/15% p3 st1 sip fw1’ air (nostrils) (ear plugs) FCS B1 overheated.
3:20 5’ 80%/2/15% p2 st1 sip fw1’ air (ear plugs) re-arranged bedclothes.
4:38 9’ 70%/3/15% p1 st2-1 sip fw1’ air (ear plugs)
5:20-45 Yo.Ni 25’ Chatterbrain, despite tiredness, apparently need to distract.
-5:45
8:05-
-8:35 B2-4. 6. 9:10 C1-3. Eat -9:25 slp -5’-10:10

Sum: 1h05+10h10-(6+13+5+9+140+50+5=)3h48 = 11h15-3h48 = 7h27, up 7x (3h48)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 70%/3 , kids ➔ 70%/3-4
ACTIONS ➔ PAINS: except: neck GI , esophagus () jaw 10xp1-2 First time I’ve knowingly only had p0 again at 22:30!! So praps my bladder has got used to the higher amount of drink again, hope so! May have forgotten to note about 10xp1-3 per day the last few days…
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. . Praps try avocado, olives, vinegar, mustard and soy/tofu again? Watching fatigue? 14:50 Drat, I’m getting an immediate reaction again from just a few raw fresh organic foods, so that’ll narrow it down. Great… Apples, sweet potatoes, carrots, fennel, Himalayan salt, zucchini, pumpkin seeds. And again: burning skin, nothing to be seen, hot flush, feverish, dizzy, breathing problems, numb hands and arms. It took almost an hour, till 15:40.
Fibro & Touch: ?
Covid-danger: - couldn’t cuddle as closely with my grandchild as I would have.
Focal seizures: 4th, 19:05.

Treatments

Docs:
Chinese Acupuncturist - #23 on 30th (Sleep & +25% GABA helping.) Session #24 on 12th.

SELF-PHYSIO (click for details): 2h10 (once I do my back exercises...

airing 5x2’, cold shower 3x(10’), cream fc/ey/hd/ft 0x1’, teeth 3x2’, HWB 0x3’, breath exercises 0x1’, Timing, hunchback-pillow 20’, Y. Nidra 50’, massage gun 0x3’, neck 1+ 0x1’, neck 2 0x1’, plantar/calf stretch 0x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, aloe vera 0x1’, twist-stretch 0x1’, yoga/stretching 0x1’.
Combine: next?
workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 27th (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Stable now I've piled everything back on. Working thru June 27th, I've seen I can add a 3rd Ellagic acid, as I have tons cheap with short use by date. Trying theanine before first meal, hoping I won't wake up too much. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jun 27th (>30 supps): ALA .2g, B2 4x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/20:25 A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 1P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon
Meal - Gum -
/22:20 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/0:10 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
/1:30 B1 “01:00” PF#5
/8:35 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/8:35 B3 “07:00” (-30’) Q10 Qc Rs#1 SAM-e
/8:35 B4 “07:00” EGCg + Fev/MSM + Sily +2The?
0 DAO
/9:10 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 2x50mgB2, gink#1, 0 Zn, gly#3+4, 1x pine bark#2 + vit.D3 2-3/wk.
/9:10 C3 “MEAL” .5gC#1 (0NAC)+PEA
Meal - Gum -
/12:00 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/14:15 D2/3 “13:00” .5gC#2 , Cr#3, .6GABA#5, gink#3 DRINK!
Meal -15:00 Gum -
/18:00 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jun 27th

Pf: 1A1+1A2+1A3+1A4+1B1, B2:2A1+2C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5:A2 A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

‘Research’ today: No.
Lessons in self-care #356 Thought I was being lazy in the morning, but seems it was appropriate, seeing as an allergic attack and kids was coming up.
Reasons to be cheerful #358 Found a beautiful allegorical poem today. And kids was fun, tho I had to lie a lot.
Things I love about myself #52 Love good poetry.

• My food
• 1st Jab-sfx-summary, last edit: Feb 7th.
• My blog references, e.g. abbreviations, supp chart/overview
• My “How to symptom track & trigger hunt”
• Next up…: Summaries & finishing off treatment list…

[JayCS]

2022-07-05, Tuesday - Energy 15% / Sleep 80% / Feeling 75%-ish

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain (WPI) = 11 of 15 areas: limb-Ache 8 (20%, stiff 40%) + spine-pain 3 (20%) .
Symptom severity (SSS) = severity 9 of 12: Fatigue 3 (85%), insomnia 3 (20%), fog 2 (20%), headache 0, GI 1 (20%), depression 0.

Triggers & resulting Symptoms

SLEEP (click for details): 8h48, up 9x (1h35), (dozing 20+40, + Yo Ni. 10+20) ✅, but ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅

cold shower p2 Sleep 22:45- ear plugs
23.20 8’ 80%/2/?5% p2 st1 sip fw1’ air (ear plugs) FCS A4
0:19 5’ 80%/2/15% p2 st1 sip fw1’ air (ear plugs)
1:24 5’ 80%/2/15% p2 st1 sip fw1’ air (ear plugs) B1
1:41 6’ 80%/2/15% p0 st1 sip fw2’ gel (ear plugs)
2:03 8’ 80%/2/15% p0 st1 sip fw1’ (ear plugs) FCS#2
3:18 19’ 80%/3/20% p2 st1 sip fw15’ (ear plugs) doze… YoNi 10’
4:11 5’ 80%/2/15% p0 st1 sip fw1’ air (ear plugs) risky: FCS#3…
5:14 34’ 80%/2/15% p0 st1 sip fw1’ air (ear plugs) 6 … doze. YoNi… 20’
7:11 5’ 80%/2/15% p1 st1 sip fw1’ air (ear plugs) eye mask
-9:08, B2-4, stools…
Sum: 1h15+9h08-(8+5+5+6+8+19+5+34+5=)1h35 = 10h23-1h35 = 8h48, up 9x (1h35), (dozing 20+40, + Yo Ni. 10+20)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2. Work & rest most of the day , but a slow cycle-ride to get the guinea pigs some lush grass 40’ , then after a longer break 10’+20’ shop ➔ 80%/3
ACTIONS ➔ PAINS: except: neck GI /, bit loose. esophagus , jaw , 6xp1-2 - getting less, it seems? Cycling (slowly on my own) went quite well.
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. . Praps try avocado, olives, vinegar, mustard and soy/tofu again? Watching fatigue? Monday evening, less reaction (40%) after: No Qc, no broccoli, no sweet potatoes, white cabbage, but apples and chocolate - cucumbers??
Slight skin burning at 11:10 after ALA, pine bark, Rhodiola, Q10, SAM-e, EGCg, Fev/MSM, Sily + 2 The - is there a problem there? I doubt it, cos this isn’t repeated anywhere else except rhodiola in D4.
15:10 Apple, fennel, bok choy, carrots, zucchini, salt… Still hoping it’s not the apples… No problems, 20:00 similar, plus pumpkin seeds, quite a lot of green beans, no problems, incl. quite a bit of apples, plus quite a bit of bread and goat cheese. Thankfully!
Fibro & Touch:
Covid-danger:

Treatments

Docs:
Phoned dentist, appointment to get this strange thorn thingy out from between my teeth on Friday - if it’s still in there then.
Chinese Acupuncturist - #23 on 30th (Sleep & +25% GABA helping.) Session #24 on 12th. Stable, but unchanged.

SELF-PHYSIO (click for details): 100'

airing 6x2’, cold shower 3x(10’), cream fc/ey/hd/ft 0x1’, teeth 2x2’, HWB 0x3’, breath exercises 0x1’, Timing, hunchback-pillow 10’, Y. Nidra 30’, massage gun 0x3’, neck 1+ 0x1’, neck 2 0x1’, plantar/calf stretch 0x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, aloe vera 0x1’, twist-stretch 0x1’, yoga/stretching 0x1’.
Combine: next?
workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 27th (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Stable now I've piled everything back on. Working thru June 27th, I've seen I can add a 3rd Ellagic acid, as I have tons cheap with short use by date. Trying theanine before first meal, hoping I won't wake up too much. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jun 27th (>30 supps): ALA .2g, B2 4x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/19:45 no Qc/PQQ/Ω3. A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 1P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon
Meal - Gum -
/22:00 no Qc, A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/23:20 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
/1:25 B1 “01:00” PF#5
/10:35 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/10:35 B3 no Qc/Rs “07:00” (-30’) Q10 Qc Rs#1 SAM-e
/10:35 B4 “07:00” EGCg + Fev/MSM + Sily +2The
0 DAO
/15:05 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 2x50mgB2, gink#1, 0 Zn, gly#3+4, 1x pine bark#2 + vit.D3 2-3/wk.
/15:05 C3 no PEA “MEAL” .5gC#1 (0NAC)+PEA
Meal -15:30? Gum 16:45-
/13:40 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/11:20 D2/3 “13:00” .5gC#2 , Cr#3, .6GABA#5, gink#3 DRINK!
Meal - Gum -
/20:30 D4 no Qc/Rs “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jun 27th

Pf: 1A1+1A2+1A3+1A4+1B1, B2:2A1+2C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5:A2 A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

‘Research’ today: Yesterday: Doctors’ Diagnostic Errors Are Often Not Mentioned But Can Take A Serious Toll | Kaiser Health News - couldn’t find the (JAMA?-)study where researchers were recommending doctors to listen to patients and let them participate more in decision making, praps now behind a paywall.

Did I write the (stomach) side effects of olive leaf extract down here?: Olive Leaf Extract Benefits, Uses, Dosage and Side Effects - Dr. Axe

Looking if I can get a better vit. A form from microalgae I only found this study The Extraction of β-Carotene from Microalgae for Testing Their Health Benefits - PubMed β-carotene, but on my microalgae it only says D and E.

The copper product Robbins named was GHK-copper peptide, propagated by Loren Pickart, of whom this seems to be a/the website: http://reverseagingwithghk.com. Doesn’t recommend any products. This is only site I can find offering the product, but how the heck do I know if they are reliable? Buy GHK-CU (Copper) (50mg) - Biotech Peptides
Here a German site says it’s usually injected s.c. 200mcg/d for 6 weeks?! PEPTIDKUNDE 30 – GHK (GHK-Cu) - SuppDoc Praps I should ask a compounding pharmacy?
A study from 2018 Regenerative and Protective Actions of the GHK-Cu Peptide in the Light of the New Gene Data - PMC
But here Mitolife Radio: Is Supplementing Copper Safe with Morley Robbins it says that you can order Morley Robbins’ product here: Recuperate IQ - FIQ which is copper bisglycinate and beef liver powder for 35$, but not the GHK-Cu I expected, seeing as he’s such a fan of Pickart… Maybe I’ll just the same copper gluconate as before, seeing as I saw it worked on my iron deposits and may have improved my energy, have to analyze by looking when exactly I took the copper.

Vitamin A: eggs or dairy much better than sweet potatoes, carrots, or broccoli 10 Best Foods High in Vitamin A (Retinol) - Mental Food Chain

Lessons in self-care #357 I needed to get out on my own and LIVE and SAVOUR my NEW SLOW LIFE properly, not just at home. Wonderful.
Reasons to be cheerful #359 Nice slow cycle to get grass for the piglets was lovely, found a big goat family, with 5 kids, baby moorhens, the piglets were happy, my wife happy that I’d done something nice alone.
Reasons to be cheerful #360 Apples are OK, green beans are OK!!! And I can now add foods again and then find out what it was (or if it’s now gone again…)
Things I love about myself #53 Learning to love life once again.

• My food
• 1st Jab-sfx-summary, last edit: Feb 7th.
• My blog references, e.g. abbreviations, supp chart/overview
• My “How to symptom track & trigger hunt”
• Next up…: Summaries & finishing off treatment list…

[JayCS]

2022-07-06, Wednesday - Energy 15% / Sleep 85% / Feeling 75%-ish

This was gonna be an interesting Tuesday night seeing as I forgot my 19:00 and then 21:00 pills till 22:00… – went OK tho…

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain (WPI) = 11 of 15 areas: limb-Ache 8 (20%, stiff 20%) + spine-pain 3 (20%), shoulders & hips 0.
Symptom severity (SSS) = severity 9+1=10 of 12: Fatigue 3 (85%), insomnia 3 (15%), fog 2 (20%), headache 1, GI 1 (10%), depression 0.

Triggers & resulting Symptoms

SLEEP (click for details): 8h57, up 5x (1h31) ✅, but ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅

cold shower p0! Sleep 23:45- ear plugs A3
1:57 21’ 80%/2/15% p1 st1 sip fw15’ air FCS A4 → headache after seeing stressful forum post.
3:15 7’ 80%/2/15% p1 st1 sip fw1’ air FCS#2 B1. headache better, but trying FCS.
4:50 5’ 70%/2/15% p0 st1 sip fw1’ air (ear plugs) 6 - ahh, far better than FCS.
7:25 13’ 80%/2/15% p0 st1 sip fw10’ air (ear plugs) (nostrils) → br. ex.
7:50 45’

• 10:13!, B2-4
  Sum: 15’+10h13-(21+7+5+13+45=)1h31 = 10h28-1h31 = 8h57, up 5x (1h31)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2 . 12:50-14:00 2x10’-15’ cycle to 2x10’ shops, all very slowly ➔ 60%/2 , ➔ ?80%/?3 TT later… winning most of the time, whilst not playing for points though, that might’ve been a notch higher. ➔ 80%/4➔3➔2
ACTIONS ➔ PAINS: except: neck in the early morning / GI , esophagus , jaw / (in between) 3xp1-2 /. Headache & sinuses at 22:30 due to having forgotten my evening supps (19:00) until 22:00 - which goes to show how good they are… This’ll probably have quite a few consequences for sleep, so needn’t expect too much… Supps late could mean sleep later, more pain, more peeing, so more sleep breaks and feeling worse. If I get thru with 70%/3 I’ll be lucky. However more than the 9 sleep breaks I had last night where everything was early won’t be possible, that’s the max. I’ve ever had, because from then on I start staying up, whether night breaks or morning… Let’s see how it goes! 12:00 It went quite well … Headache till the middle of the night, now starting up again. Ah, no, it’s sinus pain…
Everything carefully, so not sure if anything would have played up if not (Lying: neck.)
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. . Praps try avocado, olives, vinegar, mustard and soy/tofu again? Watching fatigue? 12:00 Sinus pain/burning. BTW the exact food set list Monday evening 20:00, leading to 40% symptoms was: apples, cucumber, bok choy, pumpkin seeds, zucchini, carrots, salt and canola oil, having stopped sweet potatoes, broccoli, herbs as well as the supps resveratrol, PEA and quercetin.
Safe yesterday was apple, fennel, bok choy, carrots, zucchini, salt, canola oil, pumpkin seeds, green beans, bread, hard young goat cheese. Next I can check if was the cucumbers. If it wasn’t, then the 40% symptoms Monday evening are surprising.
To “safe” I now added cucumber and 70% dark chocoiate (with orange), forgot fennel: 10-20% symptoms. Evening: Same, with cucumber, but without chocolate, added chicoree with 0% problems.
Fibro & Touch: ?
Covid-danger: ?

Treatments

Docs:
Chinese Acupuncturist - #23 on 30th (Sleep & +25% GABA helping.) Session #24 on 12th.

SELF-PHYSIO (click for details): 88'

airing 6x2’, cold shower 2x(10’), cream fc/ey/hd/ft 0x1’, teeth 3x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 20’, Y. Nidra 10’, massage gun 0x3’, neck 1+ 1x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 1x1’, palpate 1’, belly 3’, back 10’, aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’.
Combine: next?
workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 27th (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Stopped the (major!) supps resveratrol, PEA and quercetin, cos of salicylates/oxalates since July 4th, keep track of that. Check if theanine before first meal is waking me up too much, doubt it tho. NEW IDEAS: Copper in psyllium. Copper suggested by verywellhealth, Hagmeyer and now Robbins. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jun 27th (>30 supps): ALA .2g, B2 4x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/22:00 A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 1P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon
Meal - Gum -
/23:45 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/2:00 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
/3:15 B1 “01:00” PF#5
/10:15 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/10:15 B3 “07:00” (-30’) Q10 Qc Rs#1 SAM-e
/10:15 B4 “07:00” EGCg + Fev/MSM + Sily +2The?
0 DAO
/11:00? C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 2x50mgB2, gink#1, 0 Zn, gly#3+4, 1x pine bark#2 + vit.D3 2-3/wk.
/11:00? C3 “MEAL” .5gC#1 (0NAC)+PEA
Meal -12:00? Gum -
/14:00 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/14:45 D2/3 “13:00” .5gC#2 , Cr#3, .6GABA#5, gink#3 DRINK!
Meal 14:30-14:55 Gum 14:55-
/18:30 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jun 27th

Pf: 1A1+1A2+1A3+1A4+1B1, B2:2A1+2C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5:A2 A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

‘Research’ today:
Checked my old copper resources again. As opposed to what I have sometimes written, copper is mentioned by verywellhealth as being good for histamine enzymes (meaning DAO), and Richard Hagmeyer expands on that here: “Because copper is essential to DAO function, copper levels should be monitored in patients with low DAO activity to avoid further DAO deterioration. If you have been taking Zinc you could have a copper deficency. Zinc levels should be checked at the same time, as zinc prevents intestinal copper absorption.”
My copper level Feb 16th turned out to be low. Calling it Cu for short I started copper gluconate Feb 25th for my C1/2 dosage (so usually at or after 9:00) and ended Jun 10th. Before and after my energy levels were definitely lower, however at the beginning of taking I also added acupuncture

Lessons in self-care #358 Almost overdid TT - thought it might’ve been a bit too much, but wasn’t after all, lots of rest.
Reasons to be cheerful #361 Playing TT fairly hard’n’fast against a club player was fun.
Things I love about myself #54 Pretty good TT player, considering self-taught.

• My food
• 1st Jab-sfx-summary, last edit: Feb 7th.
• My blog references, e.g. abbreviations, supp chart/overview
• My “How to symptom track & trigger hunt”
• Next up…: Summaries & finishing off treatment list…

[AussieMom]

Hey, Jay!
Sorry to “butt in” on your blog, but wanted to mention that I think it is great that you keep active and look for ways to stay cheerful
Hubby and I were just discussing one of his sisters, who has been on a downward spiral emotionally, since Covid hit and almost destroyed her cleaning business. She has recently transferred the business to a friend, sold her home, and moved several states away to be near her twin sister (who lost her husband to Covid last year). Now, the sisters have also moved their dad (also hubby’s dad) to live in one of their homes, as he is getting up in age and having many health problems.
Instead of improving, the sister who just moved is even more negative and being very hard to live with. She resents having to give up her new place to her dad and take care of him (even though it was her idea), she’s sleeping until noon every day, she’s not yet looking for a new job, and she makes her twin do most of the “caring for” their dad.
Do you have any ideas on how to approach this sister who continues becoming more depressed? It looks like depression runs in the family, as my hubby, his daughter, and his dad, are all on mild medication for depression.
Just wondering your thoughts…TY

[JayCS]

2022-07-07, Thursday - Energy 18% / Sleep 90% / Feeling 75%-ish

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 15 areas: limb-Ache 8 (20%, stiff 15%) + spine-pain 3 (10%), shoulder-girdles/hips 0
Symptom severity, SSS = severity 9-2=7 of 12: Fatigue 3 (82%), insomnia 3-1=2 (10%), fog 2-1 (15%), headache 0, GI 1 (5%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 9h22, up !3x (59') ✅, but ➔ Feeling ?80% well, Ache ?2 of 7 🧐, getting up: ?80%/2 ❌. 1st stint 3h20, 2nd 3h13! then 1h40 & 1h. Now how did that happen? I felt ill cos of the cold, not dressed warm enough. And the different table tennis plus cycling seemed to be a balance of too much, but not too much too much... So tried to repeat that today...

cold shower p1 Sleep 23:33- ear plugs
2:50 15’ 70%/2/15% p0 st1 sip fw1’ air sore throat cos colder, not enough on (ear plugs) A4
6:03 27’ 60%/2/15% p0 st1 sip fw5’ air sore throat (ear plugs) 6 (xB1) felt like doze
-8:39 17’ 70%/2/15% p0 st1 sip fw15’ air (sore throat( (ear plugs) Feel sort of a little ill, sore muscles as if from sports (so TT), but more restorative sleep. B2-4
-9:54 58’ doze, but I spose it was deeper, cos wdn’t’ve thought 1h! Slightly ill tho, overheated, nauseous.
Sum: 27+9h54-(15+27+17=)59’ = 10h21-59’ = 9h22, up !3x (59’)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 70%/3 h TT 2:2, slow long cycle ➔ 70%/3-4, lots of rest, and loud rock music ➔ 80%/2
ACTIONS ➔ PAINS: except: neck GI , esophagus jaw , 2xp1-2
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. . Praps try avocado, olives, vinegar, mustard and soy/tofu again? Watching fatigue? Next up to make sure: orange dark chocolate. And herbs. Were OK at midday. Lastly sweet potatoes and broccoli. Then the 3 supps I’ve stopped.
Fibro & Touch:
Covid-danger:

Treatments

Docs:
Chinese Acupuncturist - #23 on 30th (Sleep & +25% GABA helping.) Session #24 on 12th. Hmm, bit more energy… why??

SELF-PHYSIO (click for details): 57'

airing 3x2’, cold shower 2x(10’), cream fc/ey/hd/ft 0x1’, teeth 3x2’, HWB 0x3’, breath exercises 1x1’, Timing, hunchback-pillow 10’, Y. Nidra 0’, massage gun 0x3’, neck 1+ 0x1’, neck 2 0x1’, plantar/calf stretch 0x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, aloe vera x1’, twist-stretch x1’, yoga/stretching x1’.
Combine: next?
workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 27th (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Stopped the supps resveratrol, PEA and quercetin, cos of salicylates/oxalates since July 4th, keep track of that. Check if theanine before first meal is waking me up too much, doubt it tho. NEW IDEAS: Copper in psyllium. Copper suggested by verywellhealth, Hagmeyer and now Robbins. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jun 27th (>30 supps): ALA .2g, B2 4x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/20:00 A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 1P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon
Meal - Gum -
/21:45 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
0 B1 “01:00” PF#5
/8:50 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/8:50 B3 “07:00” (-30’) Q10 Qc Rs#1 SAM-e
/8:50 B4 “07:00” EGCg + Fev/MSM + Sily +2The?
0 DAO
/11:35 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 2x50mgB2, gink#1, 0 Zn, gly#3+4, 1x pine bark#2 + vit.D3 2-3/wk.
/11:35 C3 “MEAL” .5gC#1 (0NAC)+PEA
Meal - Gum -
/14:00 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/17:55! D2/3 “13:00” .5gC#2 , Cr#3, .6GABA#5, gink#3 DRINK!
Meal -15:00? Gum 17:55-
/19:35 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jun 27th

Pf: 1A1+1A2+1A3+1A4+1B1, B2:2A1+2C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5:A2 A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

‘Research’ today:
Someone mentioning olive leaf extract, recommended by Eric Berg brought me on to a very amateur youtuber Melissa Schworer, who recommends Morley Robbins, who says don’t take isolated vitamin D3 supplements.
Also don’t take iron, zinc, molybdenum, multivitamins, synthetic ascorbic acid, fluoride, silver, processed foods, instead bioavailable retinol (best retinol), bioavailable copper, wholefood vitamin C and E, cod liver oil, organic wholefoods, Magnesium Malate & glycinate & topical, Cod liver oil with breakfast, natural B vitamins, silica, boron, taurine, iodine, go out into the sun more (quick overview see organicbiomama).

For vitamin D rationale see meyersdetox transcript: he thinks in isolated overdosed form it sets off vitamin A, calcium, potassium, etc. Doesn’t mean vitamin D is all wrong, just exaggerated. However in my case all the symptoms he sees as related are 100% in check or even the opposite: heart calcification, arrhythmias, anxiety, seizures, constipation… He appears a “nice guy” to me, whilst not a doctor, but I am taking him seriously, because I have experienced taking copper (on a hunch) has visibly reduced iron deposits in my calves and he has the only explanation for this I’ve found.

What I’m sure about is don’t take D2, only D3.
Lessons in self-care #359 Lots and lots of laughter!
Reasons to be cheerful #362 Back to the goats today. With two different sneakers on.
Things I love about myself #55 No regrets - I’ve had good times and they are good memories, and I’ll be making more good times.

• My food
• 1st Jab-sfx-summary, last edit: Feb 7th.
• My blog references, e.g. abbreviations, supp chart/overview
• My “How to symptom track & trigger hunt”
• Next up…: Summaries & finishing off treatment list…

[JayCS]

2022-07-08, Friday - Energy 17-15% / Sleep 75% / Feeling 80-70%-ish

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11+1=12 of 15 areas: limb-Ache 8 (20-30%, stiff 30-40%) + spine-pain 3 (20%), shoulder-girdle left 1/hips 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (83-85%), insomnia 3 (25%), fog 2 (25%), headache 0, GI 1 (10%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 7h28, up 6x (1h37) ✅, but ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅

cold shower p0 Sleep 00:00-
1:11 8’ 80%/2/15% p2 st1 sip fw5’ air B1 (sore throat)
1:54 49’ 80%/2/15% p0 st1 sip fw20’ 6. self-YoNi 30’ (sore throat) gel
3:10 11’ 80%/2/15% p0 st1 sip fw3’ FCS#2 (sore throat) First still hard pulse, then 2h.
5:16 4’ 80%/2/15% p1 st1 sip fw1’ (sore throat) ear plugs eye mask gel
6:23 21’ 80%/2/15% p0 st1 sip fw15’ (sore throat) (ear plugs eye mask) FCS#3
8:30 5* 80%/2/15% p0 st1 sip fw2’ (sore throat) (ear plugs eye mask)(nostrils) B2-4

• 9:05
  Sum:9h05-(8+48+11+4+21+5=)1h37 = 7h28, up 6x (1h37)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2 ➔ 80%/3 . Resting all day, but my wife said I look fatigued and haven’t even got my eyes equally open… Having to help sort out a stressful situation only indirectly involving myself, so phoning fairly often, then phoning 45’ in the afternoon and TT 1:1 in the evening, afterwards also, even after lots of resting ➔ 70%/3
ACTIONS ➔ PAINS: , also (mainly): neck , GI , esophagus , jaw , 2xp1-2 .
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. . Praps try avocado, olives, vinegar, mustard and soy/tofu again? Watching fatigue? No problems after adding olives and ? yesterday evening… Now adding sweet potatoes. Food-wise I think the only thing missing is broccoli… Then the 3 supps… Added lots of a different gluten-free bread again, lots of cheese and some mustard. Still no allergic reaction at all.
Fibro & Touch:
Covid-danger:

Treatments

Docs:
Chinese Acupuncturist - #23 on 30th (Sleep & +25% GABA helping.) Session #24 on 12th.

SELF-PHYSIO (click for details): 104'. Thought of trying a very short workout, but didn't feel up to it.

airing 3x2’, cold shower 3x(10’), cream fc/ey/hd/ft x1’, teeth 2x2’, HWB x3’, breath exercises x1’, Timing, hunchback-pillow 20’, Y. Nidra 30’, massage gun x3’, neck 1+ x1’, neck 2 x1’, plantar/calf stretch x1’, acupressure x1’, palpate 1’, belly 3’, back 10’, aloe vera x1’, twist-stretch x1’, yoga/stretching x1’.
Combine: next?
workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 27th (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Stopped the supps resveratrol, PEA and quercetin, cos of salicylates/oxalates since July 4th, keep track of that. Check if theanine before first meal is waking me up too much, doubt it tho. NEW IDEAS: Copper in psyllium. Copper suggested by verywellhealth, Hagmeyer and now Robbins. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jun 27th (>30 supps): ALA .2g, B2 4x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/19:30= A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 1P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon
Meal 20:45- Gum -
/21:45 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/23:00 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
/1:15 B1 “01:00” PF#5
/8:30 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/8:30 B3 “07:00” (-30’) Q10 Qc Rs#1 SAM-e
/8:30 B4 “07:00” EGCg + Fev/MSM + Sily +2The?
0 DAO
/9:30 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 2x50mgB2, gink#1, 0 Zn, gly#3+4, 1x pine bark#2 + vit.D3 2-3/wk.
/9:30 C3 “MEAL” .5gC#1 (0NAC)+PEA
Meal - Gum -
/13:00? C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/15:30 D2/3 “13:00” .5gC#2 , Cr#3, .6GABA#5, gink#3 DRINK!
Meal - Gum -
/17:30 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jun 27th

Pf: 1A1+1A2+1A3+1A4+1B1, B2:2A1+2C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5:A2 A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

‘Research’ today: No.
Lessons in self-care #360 Stress situation with building management where I wasn’t directly involved, so I didn’t try to help too much. But might cause other stress in the long run, so I’ll have to sort out some other things soon as a result, which will be physically strenuous.
Reasons to be cheerful #363 Do some new rock tracks soon: Till the End of All Days & Pretty Vegan? Probably inspired by listening to Skindred yesterday.

• My food
• 1st Jab-sfx-summary, last edit: Feb 7th.
• My blog references, e.g. abbreviations, supp chart/overview
• My “How to symptom track & trigger hunt”
• Next up…: Summaries & finishing off treatment list…

[JayCS]

@AussieMom

downward spiral emotionally, since Covid hit and almost destroyed her cleaning business. She has recently transferred the business to a friend, sold her home, and moved several states away to be near her twin sister (who lost her husband to Covid last year). Now, the sisters have also moved their dad (also hubby’s dad) to live in one of their homes, as he is getting up in age and having many health problems.
Instead of improving, the sister who just moved is even more negative and being very hard to live with. She resents having to give up her new place to her dad and take care of him (even though it was her idea), she’s sleeping until noon every day, she’s not yet looking for a new job, and she makes her twin do most of the “caring for” their dad.
Do you have any ideas on how to approach this sister who continues becoming more depressed? It looks like depression runs in the family, as my hubby, his daughter, and his dad, are all on mild medication for depression.
Just wondering your thoughts…TY

No “butting in” or need to be sorry possible here, I’d love more interaction all round!
And the perfect place for a question like this.

Firstly, from what you’ve explained, it sounds completely natural and understandable to me. I wouldn’t necessarily have expected her to improve, even if moving was her idea. It appears giving up her business & previous home & trying to look for a new life has been too much for her, sacrificing too much.
I’d always go for individual counselling in situations like this and personally I’d only use medication as an initial life-saver for a short time and learn “Black Dog” strategies myself or as a loved one.
Perhaps she’d need the opportunity to step back from her decision.
Or at least to imagine if a fairy waved her wand what her wishes would be and use the ideas that come up to change the conditions.
Or to take a break somewhere else and get a clear head.
I’m not finished yet… may continue later…
Or you have some more details for me?

[AussieMom]

Well, we didn’t look at her decision to move near her twin to be a sacrifice, as they had always intended to eventually “retire” to the same location and be near each other (but Reno wasn’t the intended place - this is just where her twin ended up b/c of her [now deceased] husband’s job). The twin sister does like it in Reno. She loves the gated nice apartments where she lives - It is quite beautiful there. The twin also received a very large insurance payoff when her husband died which means she doesn’t have to immediately return to work, which could potentially make the other sister a little jealous.
But, it does help to look at this in a new way - Maybe the sacrifice was too much, especially after the decline of her cleaning business. In my own experience, all big changes - even “good” changes, are “stress” and can cause anxiety. In the past, with me, they caused panic attacks, which I finally got a handle on, after about a year. But, there were some pretty bad episodes.
I believe you are correct - that counselling would be a great idea. She doesn’t have a job there yet, and probably doesn’t have health insurance - My husband doesn’t believe she would agree to it.
She’s also at the age (50) where hormones could be playing a part. I think she should get to a doctor for a complete physical, but we are skeptical about her agreeing to that, also.
Your thoughts on this are very helpful - Thank you, Jay!

[JayCS]

So it does all look good on the surface. But underneath it obviously doesn’t look good, that’s for sure. We’re used to pigeonhole people that they don’t know what they want or that they are ungrateful or we are just astonished that it isn’t as easy as it seems. But as you say - life isn’t as easy as it seems. I’d be curious what is really behind it - if it really was the decline of the cleaning business, which she took as a personal demise or even failure, or if the death of her sister’s husband is taking some kind of indirect toll. Maybe we’re looking at some seemingly big pegs/stakes which people often take badly, whilst actually it is something completely different, hidden. Perhaps she misses someone or people, or she was actually yearning for something different when wanting to be her twin, something that hasn’t actually happened like she’d hoped…

Then on the other topic of what to do: If people are looking for and willing to get help themselves, we can give them ideas, but if they refuse all ideas, or don’t manage to implement any of them, nor any alternatives of their own, then it’s important for us to do what we can to help ourselves, to keep sane and healthy and cheerful, and not to get pulled into the hole ourselves. Her agreeing to something you suggest is probably not enough either, it sounds a bit like you getting her to do something. She may need to actively want it, and so it may be more asking the question what does she want - does she want to become happier, or does she need to grieve - and for how long, what paths could she see that could help with her becoming happier. And it she doesn’t want to become happier of her own accord, then to make sure you don’t try to help too much, because that can drain you, which is something neither you nor your husband can afford at the moment. So important to remember to put it aside, to have “set” times, like max. 20 minutes a day, where you think up a strategy for a conversation, and then watch the Carol Burnett show or, and definitely not to brood over it day and night. That way you will have more patience and energy for support when she is prepared to do something.

I know you know all this and I’m just reminding you…

We’ve actually got a friend who’s “falling” very similarly. I offered her loads of ideas and I’d have coached her for hours every week, but she only asks for certain opinions, takes ages to then do just a very few of these, which is roughly the opposite of my way of doing things, as you know , so I make sure neither I nor especially my wife gets narked or personally disappointed, just be there for her to a certain extent, and make sure she knows that we are there and supportive and can listen a bit, but there are limits to this. My wife can do things with her for hours on end when they manage to meet, but it can be incredibly complicated and tiring to get there, so she needs to care for herself an not let herself get worked into the ground, pull the ripcord. And if my wife complains to me about her, I go on to that level, not chiming in, deploring the state of her friend, but instead talking about how my wife and I can protect ourselves and not waste our time and energy and cheerfulness, but not “drop” her.

I hope I’m making a bit of sense, I feel my phrasing is somehow less encompassing / complete than I want it to be, and am hoping you’ll get the gist and be able to create something of your own from it…

[JayCS]

2022-07-09, Saturday - Energy 18% / Sleep 90% / Feeling 70-80%-ish

21:58: I’m so stiff at the moment, that I’m gonna save this tomorrow’s entry as I feel the need to go thru today’s, Friday, and check for too optimistic percentages… And then try bed earlier again, altho I can’t see any patterns or anything at the moment, and just don’t like how I feel.
2:26: OK, done that I have to continue moaning & venting a bit - I somehow feel less than 70%-ish, finding it hard to feel my normal happy self. It was a bit tough to get into the right self-distracting mindset to cold shower, I was gonna whine around, then managed to kick myself to it. But before that the supps didn’t go down well, altho I took each single capsule with a few sips, so had to drink more, which will make me get up in an hour at the latest. And looking at & feeling my feet again the two lilac rashes on my right foot aren’t really getting better, altho I’m treating them alternately with calendula and tea tree oil most evenings, like usually works well, need more patience for that. And my left foot has nothing visible, but it’s the one that itches a lot of the time, since a few weeks. My wife can see nothing either. I treat it with calendula essence and cream alternately, maybe should keep to cream more. Plus the left ball of the foot is burning, a bit like plantar fasciitis, but different, something new I feel, don’t know what it’s from. My hunchback is burning, sitting is hard. Loads of things which are reflected in the WPI number, but I don’t necessarily note under actions / pains, altho I actually should / would want to. Probably just too much bits and pieces.
I didn’t find anything to love about myself today, actually I also cheated on being cheerful, I’m not, I’m a bit down - not depressed tho. Good if people keep me busy and distracted by asking for ideas… And I need to do something exciting again, like listening & sort of dancing to Skindred yesterday. I really do have to make music again tomorrow. And maybe like I just talked with my wife start with workout: not 30 push-ups, not 10, but 1, and work that up several times or once a day…

3:32 Drat, heartburn, that’s a bummer for my Schatzki ring… have to watch for that.

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11+1=12 of 15 areas: limb-Ache 8 (20-40%, stiff 15-25%) + spine-pain 3 (20%), shoulder-girdle 1/hips 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (82%), insomnia 3 (10%), fog 2 (15%), headache 0, GI 1 (30%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 8h14, up !2x (65') ✅, but ➔ Feeling 70% well, Ache 2 of 7 🧐, getting up: 80%/2 ✅,. First stint 3h20! By going to be a bit earlier again I think. Deep long sleep, altho feeling nauseous and drugged when having got get up. Try without FCS#2 first.

cold shower p0 Sleep 22:55- ear plugs
2:14 80’-20’? 70%/2/15% p0 st1 sip fw45’ air cream gel (nostrils) (ear plugs) A4. Ty without first. Ah, no.
6:27 5’ 70%/2/15% p0 st1 sip fw1’ air (ear plugs)
-8h14
Sum: 1h05+8h14-(60+5=)65’ = 9h19, - 65’ = 8h14, up 2x (65’)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2 TT 2:2(?, 4 games at least, might have won more), making music (big strain!), kids (but not moving), shop quick ➔ 80%/4 /.
ACTIONS ➔ PAINS: except: neck GI heartburn at 3:30 and then again at 9:40 after supps! , praps due to too much (dark) chocolate yesterday evening. Looking up it is organic, but from a normal shop, so more sugar 32%, which’d mean I ate about 20g of sugar. Esophagus jaw , 2xp1-2 ?
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. . I’ve tried tiny amounts of olives & mustard: OK, vinegar doubt it, next soy/tofu again. Fatigue seems no difference.
Fibro & Touch:
Covid-danger:

Treatments

Docs:
Chinese Acupuncturist - #23 on 30th (Sleep & +25% GABA helping.) Session #24 on 12th.

SELF-PHYSIO (click for details): 68'. Did 1-2 minute workout! (Each of 8 exercises twice.)

airing 4x2’, cold shower 2x(10’), cream fc/ey/hd/ft 1x1’, teeth 3x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 20’, Y. Nidra 5’, massage gun 0x3’, neck 1+ 0x1’, neck 2 0x1’, plantar/calf stretch 0x1’, acupressure 0?x1’, palpate 0x1’, belly 3’, back 10’, aloe vera x1’, twist-stretch x1’, yoga/stretching x1’. workout 2’,
Combine: next?
horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 27th (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Stopped the supps resveratrol, PEA and quercetin, cos of salicylates/oxalates since July 4th, keep track of that. Check if theanine before first meal is waking me up too much, doubt it tho. NEW IDEAS: Copper in psyllium. Copper suggested by verywellhealth, Hagmeyer and now Robbins. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jun 27th (>30 supps): ALA .2g, B2 4x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 1P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon
Meal - Gum -
A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/2:20 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
B1 “01:00” PF#5
/9:10 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/9:10 B3 “07:00” (-30’) Q10 Qc Rs#1 SAM-e
/9:10 B4 “07:00” EGCg + Fev/MSM + Sily +2The?
0 DAO
/9:55 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 2x50mgB2, gink#1, 0 Zn, gly#3+4, 1x pine bark#2 + vit.D3 2-3/wk.
/9:55 C3 “MEAL” .5gC#1 (0NAC)+PEA
Meal - Gum -
/13:00 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/14:30 D2/3 “13:00” .5gC#2 , Cr#3, .6GABA#5, gink#3 DRINK!
Meal - Gum -
/18:00 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jun 27th

Pf: 1A1+1A2+1A3+1A4+1B1, B2:2A1+2C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5:A2 A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

An ex-colleague - mail-contact - just saw me and said “oh, you can cycle then”. I answered - “yeah, for a certain time, but am in a lot of pain at the moment due to 4 games of table tennis instead of 2”. I think that’s a main “problem” / characteristic / advantage that I can do probably everything - just for a very short time.

‘Research’ today: No.
Lessons in self-care #361 Trying to explain to my son and also my wife some of the details what is good for me. Son: How lying down eyes closed most of the time can lengthen meetings, wife: not doing a short workout isn’t my weaker self, it’s knowing that I don’t even manage back exercises without breaks any more - but she’s right suggesting a minimal version might work, like one movement of each exercise…
Reasons to be cheerful #364 Made a new track today
Things I love about myself #56 Open for good joking around.

• My food
• 1st Jab-sfx-summary, last edit: Feb 7th.
• My blog references, e.g. abbreviations, supp chart/overview
• My “How to symptom track & trigger hunt”
• Next up…: Summaries & finishing off treatment list…

[AussieMom]

You, my friend, make loads of sense! I have already shared many of your ideas with hubby - He says this guy sounds extremely smart! I replied - You have no idea!!
Thank you, Jay. We will talk about this with the sister who lost her husband, to make sure she protects herself while her twin is going through this. She did remark yesterday that she does see glimpses of her former sister, so that is GOOD! We will all be patient and continue to be encouraging, while making sure we don’t become too stressed in the process.
You are a great friend - I appreciate you!

[JayCS]

Ah, see, I’d forgotten to explicitly mention the stance of the twin, you’ve done what I hoped…

Grieving

Maybe she/you can relate to it being a type of grief or she/you can reframe it as that and that can help her get out of it.
Part of grieving may mean looking at other expressions of grief like denial, anger, resentment, in this case pent up, causing the ‘hard to live with’. Guilt & pain may be a major one - those might be quickly discernible, minor ones might be disbelief & shock, or bargaining - those might be there, but she might be hiding them, even from herself.

And - if it is that - she may need to find ways of expressing her grief - like collecting things like leaves and pieces of wood, “calling” them things that are gone, she needs to say goodbye to, and letting them float down a river. Not out loud, that may be very private, intimate (like regrets or infatuations that we wouldn’t let even close people want to know about, because they are embarrassing or that would make it worse), or vague and impossible to put into words.
This is however only an offer that can be made very carefully, so it doesn’t become artificial, invasive, pushy.
There may be a right time for this, yet the time / realization may not be here yet.
Maybe reading/telling a story like this can help find a similar or more appropriate way of expression.
But it may also be completely wrong and a waste of time, making her feel she is not being taken seriously, because “if it were as easy as that, she’d long done it”.
Other ways might be to write a journal, a letter, other artistic expression, do something that makes you feel close to what you’ve lost, or additionally talking to someone close or professional, meditating, mindfulness - which inspires me to the physical aspect as well as responsibility of starting to self-care, like starting a short exercise routine - at the very end of a development like this: remember your laughing yoga post? Or detailing the mindfulness idea: Going out for a walk or something half an hour a day, looking at everything we see and calling out its name (a technique from happiness training, similar to a happiness diary, cf. in my blog entries “Reasons to be cheerfult” and - much harder - “Things I love about myself”). Praps animals or kids can be a part of this, like “borrowed”, not as an additional burden and problem… or just watching them play, in their happy carelessness, stroking them, giving them something. But again for someone sad this can have the opposite effect of making sadder, as we see the big difference and so distance to ourselves - again the time & situation may be vital.

Not sacrificing ourselves
If the people around her stop or don’t start sacrificing themselves for her, that may help her end her feelings of guilt, wanting to sacrifice etc. and instead help her start taking responsibility for her own life again, the same way as those around her are doing. They are then being a role model, plus taking away a possible additional burden, so making her feel less like a burden too, as well as protecting themselves…

(Some ideas for that situation as well as other situations, btw, which may “not be unrelated” to fibro… )

@AussieMom

She did remark yesterday that she does see glimpses of her former sister, so that is GOOD!

Reminds me (it being Sunday today helped ) - to support her looking for her own old resources, which she enjoys, what she still does do well, but also for new ones…

[JayCS]

2022-07-10, Sunday - Energy 15% / Sleep 90% / Feeling 75%-ish

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 15 areas: limb-Ache 8 (40%, stiff 30%) + spine-pain 3 (40%), shoulder-girdles/hips 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (85%), insomnia 3 (10%), fog 2 (20%), headache 0, GI 1 (10%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 9h20, up 7x (42') ✅, but ➔ Feeling 70% well, Ache 2 of 7 🧐, getting up: 70%/2/20% ❌. Praps "hurting", feeling unwell at night is from the sleep supps, GABA + passiflora, but without them no sleep.

cold shower p0 Sleep 22:15- ear plugs
23:20 5’ 70%/2/20% p0 st1 sip fw1’ air (nostrils) (ear plugs) A4. Tongue hurting. on the back left.
0:25 6’ 70%/2/20% p0 st1 sip fw1’ gel (nostrils) (ear plugs) B1 fingers hurting
1:47 5’ 70%/2/20% p0 st1 sip fw1’ cream gel (nostrils) (ear plugs) coughing
2:04 10’ 70%/2/20% p0 st1 sip fw1’ air (nostrils) (ear plugs) FCS#2
3:29 5’ 70%/2/20% p1 st1 sip fw1’ (nostrils) (ear plugs)
5:13 5’ 70%/2/20% p0 st1 sip fw1’ air (ear plugs) dream about (not) preaching about light(s)
7:10 6’ 80%/2/20% p0 st1 sip fw1’ (ear plugs) tons of dreams - workout. teeth B2-4
-8:17 stools? but last hour was more dozing than sleep.
Sum: 1h45+8h17-(5+6+5+10+5+5+6=)42’ = 10h02-42 = 9h20, up 7x (42’)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 70%/4-3, even resting, so couldn’t be bothered to just rest, got some fresh long grass for the guinea pigs and did a little housework ➔ 70%/4, but after that, resting gradually ➔ 80%/2 , playing music with “very intense rest” in between ➔ 70-80%/4-2
ACTIONS ➔ PAINS: except: neck , GI , esophagus jaw 1xp1-2 BTW I had a big problem with the outside right neck muscles Saturday afternoon, first I thought it was my tonsils playing up strangely. I had to even hold my neck in my hands for a while for it to calm down. 14:00 Suddenly severe hunchback pains 3 or 4 times, forcing me to catch up on back exercises…When I lie on just a mat I realize that my thighs still hurt, it’s still just the case in bed that the lambskin under them cushions that.
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. . Focus on hazelnuts today: OK.
Did I say I cough quite a few times a day cos of mucus? Nostrils a bit better at the moment.
Fibro & Touch:
Covid-danger:

Treatments

Docs:
Chinese Acupuncturist - #23 on 30th (Sleep & +25% GABA helping.) Session #24 on 12th.

SELF-PHYSIO (click for details): 82'. Short workout when I get cold, to save heating, but not easy, cos of the pain from the cold.... O.o. Also bit of housework, like 3' of washing up.

airing 5x2’, cold shower 2x(10’), cream fc/ey/hd/ft 1x1’, teeth 3x2’, HWB x3’, breath exercises 2x1’, Timing, hunchback-pillow 20’, Y. Nidra 0’, massage gun x3’, neck 1+ 3x1’, neck 2 x1’, plantar/calf stretch 3x1’, acupressure x1’, palpate 1’, belly 3’, back 10’, aloe vera 2x1’, twist-stretch x1’, yoga/stretching x1’, workout 1’,
Combine: next?
horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 27th (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Stopped the supps resveratrol, PEA and quercetin, cos of salicylates/oxalates since July 4th, keep track of that. Check if theanine before first meal is waking me up too much, doubt it tho. NEW IDEAS: Copper in psyllium. Copper suggested by verywellhealth, Hagmeyer and now Robbins. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jun 27th (>30 supps): ALA .2g, B2 4x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/19:55 A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 1P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon
Meal - Gum -
/21:40? A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/23:20 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
/0:30 B1 “01:00” PF#5
/7:15 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
7:15 B3 “07:00” (-30’) Q10 Qc Rs#1 SAM-e
/7:15 B4 “07:00” EGCg + Fev/MSM + Sily +2The?
0 DAO
/9:30 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 2x50mgB2, gink#1, 0 Zn, gly#3+4, 1x pine bark#2 + vit.D3 2-3/wk.
/9:30 C3 “MEAL” .5gC#1 (0NAC)+PEA
Meal - Gum -
/11:45 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/13:40 D2/3 “13:00” .5gC#2 , Cr#3, .6GABA#5, gink#3 DRINK!
Meal 13:00-14:20 Gum -
/17:00 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jun 27th

Pf: 1A1+1A2+1A3+1A4+1B1, B2:2A1+2C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5:A2 A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

‘Research’ today: No.
Lessons in self-care #362 Learning more and more to become freer and self-advocate and just lie down anywhere when I need to - and realizing that people are happy that I do what I need to do.
Reasons to be cheerful #365? I can still enjoy life if my
Things I love about myself #57 Love talking about music.

• My food
• 1st Jab-sfx-summary, last edit: Feb 7th.
• My blog references, e.g. abbreviations, supp chart/overview
• My “How to symptom track & trigger hunt”
• Next up…: Summaries & finishing off treatment list…

[AussieMom]

You make some really great suggestions/points, Jay. It is possible that hubby’s sister has been going through the stages of grief ever since her business started declining, and then with the added changes in her and her twin’s lives, it has been hard to dig herself out of the negative mindset. Not only did she leave her home behind, but she had several gardens (in her front and back yards) that she dedicated to friends and family that have died - She is very much into holding memories not only in her heart, but in her hands, and your last post reminded me of that.
And, something else I just thought of…Years ago, the sister (who recently lost her hubby) remarked that, growing up, she always stayed in the background, as her twin was the outgoing one that needed all of the attention. And, after her husband died, she said that he always made the decisions for them - that she was just along for the ride. So, it is probably strange now, that she is the one making the decisions and trying to pull her sister along, while, at the same time, coping with her grief and being there for her 2 grown children. Then, you put the ailing father in the mix…
Thank you for the thoughts and ideas, Jay! It is most appreciated!

[JayCS]

2022-07-11, Monday - Energy 12%! / Sleep 85% / Feeling 70%-ish

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 15 areas: limb-Ache 8 (30%, stiff 30%) + spine-pain 3 (30%), shoulder-girdles/hips 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (88%), insomnia 3 (15%), fog 2 (20%), headache 0, GI 1 (20%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 9h12, up 5x (2h05) (✅), ➔ Feeling 80-70% well, Ache 2-3 of 7 🧐, getting up: 70%/3 ❌

cold shower p0 Sleep 22:35 wife- first strained, but it was OK, but hard finding the compromise between moving to get comfortable, caused quite a few pains, e.g. shoulder girdle again.
23:40 5’ 80%/2/15% p0 st1 sip fw1’ (nostrils) A4
0:20 35’ 80%/2/15% p0 st1 sip fw1’ nostrils air
3:19 5’ 70%/3/20% p0 st1 sip fw1’ nostrils air
5:08 60’ 80%/2/15% p0 st1 sip fw10’? 6 work. air? (nostrils?) (sinuses)
-9:52 stools, B2-4
Sum:1h25+9h52-(20+5+35+5+60=)2h05 = 11h17-2h05 = 9h12, up 5x (2h05)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 70%/3 TT 2:0, slow cycle, bit of work ➔ 70%/3 - same all day, notable base pain of 3 instead of 2, maybe increasing to 4 in between, but not much difference. Same yesterday, I’m pretty sure, whatever I wrote there. Not sure if it’s got to do with decreasing supps or overdoing music the past few days.
ACTIONS ➔ PAINS: except: neck , GI (heartburn better when dark chocolate/sugar decreased), esophagus (or I think that was yesterday?, jaw 2xp1-2 , pains all over, alternating, whatever I do or don’t. Praps a bit from music and 2’ workout, but I think just overall
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. . Praps try avocado, olives, vinegar, mustard and soy/tofu again? Watching fatigue? I’ve now increased everything again, all supps and normalized food - no allergic reacdtions as yet.
Fibro & Touch:
Covid-danger:

Treatments

Docs:
Chinese Acupuncturist - #23 on 30th (Sleep & +25% GABA helping.) Session #24 on 12th.

SELF-PHYSIO (click for details): 35'

airing 3x2’, cold shower 1x(10’), cream fc/ey/hd/ft 0x1’, teeth 2x2’, HWB x3’, breath exercises 2x1’, Timing, hunchback-pillow 10’, Y. Nidra 0’, massage gun x3’, neck 1+ 3x1’, neck 2 x1’, plantar/calf stretch x1’, acupressure x1’, palpate 1’, belly 3’, back 10’, aloe vera x1’, twist-stretch x1’, yoga/stretching x1’.
Combine: next?
workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 27th (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Stopped the supps resveratrol, PEA and quercetin, cos of salicylates/oxalates since July 4th, keep track of that. Check if theanine before first meal is waking me up too much, doubt it tho. NEW IDEAS: Copper in psyllium. Copper suggested by verywellhealth, Hagmeyer and now Robbins. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jun 27th (>30 supps): ALA .2g, B2 4x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/20:00 A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 1P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon
Meal - Gum -
/21:40 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/23:40 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
0 B1 “01:00” PF#5
/9:55 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/9:55 B3 “07:00” (-30’) Q10 Qc Rs#1 SAM-e
/9:55 B4 “07:00” EGCg + Fev/MSM + Sily +2The?
0 DAO
/10:50 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 2x50mgB2, gink#1, 0 Zn, gly#3+4, 1x pine bark#2 + vit.D3 2-3/wk.
/10:50 C3 “MEAL” .5gC#1 (0NAC)+PEA
Meal -10:40 Gum -
/12:50 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
?16:30 D2/3 “13:00” .5gC#2 , Cr#3, .6GABA#5, gink#3 DRINK!
Meal -16:30 Gum -
/18:20 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jun 27th

Pf: 1A1+1A2+1A3+1A4+1B1, B2:2A1+2C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5:A2 A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

‘Research’ today: No.

• My food
• 1st Jab-sfx-summary, last edit: Feb 7th.
• My blog references, e.g. abbreviations, supp chart/overview
• My “How to symptom track & trigger hunt”
• Next up…: Summaries & finishing off treatment list…