2022-07-02, Saturday - Energy 15% / Sleep 90% / Feeling 70%-ish
Focus on
- 3 cold showers per night to keep my sleep good to praps increase energy.
- drinking much more with each single capsule to stop them blocking, but needing to get my bladder under control again.
- how much of my fatigue is actually stiffness, so I’m adjusting my stiffness-assessment,
…but at the moment best NOT much on - broadening my food variety.
Today’s symptoms sorted by the ACR 2016 criteria
Widespread pain (WPI) = 11 of 15 areas: limb-Ache 8 (20%, stiffness 60%) + spine-pain 3 (20%).
Symptom severity (SSS) = severity 9 of 12: Fatigue 3 (85%), insomnia 3 (10%), fog 2 (20%), headache 0, GI 1 (20%), depression 0.)
Triggers & resulting Symptoms
SLEEP (click for details): 8h38, up 5x (38') ✅, but ➔ Feeling 80-70% well, Ache 2-3 of 7 ❌, getting up: 70%/3 ❌
cold shower p0 Sleep 23:07- ear plugs A4
1:00 10’ 80%/2/15% p0 st1 sip fw2’ air (sore throat) (ear plugs) B1
2:09 10’ 70%/3/20% p0 st1 sip fw2’ air (ear plugs) FCS#2
4:04 9’ 70%/3/15% p1! st1 sip fw2’ air (ear plugs) FCS#3
5:33 5’ 80%/2/15% p0 st1 sip fw21 (frontal sinuses) (ear plugs)
6:50 4’ 70%/3/15% p0 st1 sip fw21 ((nostrils)) (ear plugs) eye mask
-8:23 stools, B2-4
Sum: 53+8h23-(10+10+9+5+4=)38 = 9h16-38’ = 8h38, up 5x (38’)
ACTIVITIES (aim: 40% energy) ➔ ACHE: 70%/2 TT 
1:2 (close though) ➔ 60%/3 
, rest ➔ 80%/3 , kids 2h outside in a park in the shade, of which 1.5h lying with eyes shut and listening and cuddling ➔ 70%/3 , quick practice for tomorrow 15’, making sure it’s safe ➔ 60%/4
?? TT, cycle, mask, work, kids,
ACTIONS ➔ PAINS: 
except: neck GI , esophagus 
. jaw 1xp1-2 (harder now drinking more)
(lie, sit, stand, arms up, cycle, walk, mask??)
MCAS/HIT-Symptoms/Triggers/Treatments: Except no energy . Try avocado , olives 3-4 , vinegar: speck , mustard , soy/tofu ?, hard cheese: slivers . Burning sinuses at 14:40 - no food triggers, but very annoyed & indignant because someone had slitted a letter I got today and taken something helpful out.
Fibro & Touch:
Covid-danger: - meeting with the kids…
Treatments
Docs:
Chinese Acupuncturist - #23 on 30th (Sleep & +25% GABA helping.) Next session #24 on 12th.
SELF-PHYSIO (click for details): 88'
airing 5x2’, cold shower 3x(10’), cream fc/ey/hd/ft 2x1’, teeth 3x2’, HWB 0x3’, breath exercises 0x1’, Timing, hunchback-pillow 20’, Y. Nidra 0’, massage gun 0x3’, neck 1+ 1x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, aloe vera 1x1’, twist-stretch 2x1’, yoga/stretching 1x1’.
Combine: next?
workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps June 27th (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Stable now I've piled everything back on. Working thru June 27th, I've seen I can add a 3rd Ellagic acid, as I have tons cheap with short use by date. Trying theanine before first meal, hoping I won't wake up too much. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jun 27th (>30 supps): ALA .2g, B2 4x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/19:50 A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 1P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon
Meal 19:50 - Gum -
/22:00 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/23:05 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
/01:00 B1 “01:00” PF#5
/8:30 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/8:30 B3 “07:00” (-30’) Q10 Qc Rs#1 SAM-e
/8:30 B4 “07:00” EGCg + Fev/MSM + Sily +2The?
0 DAO
/10:15 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 2x50mgB2, gink#1, 0 Zn, gly#3+4, 1x pine bark#2 + vit.D3 2-3/wk.
/10:15 C3 “MEAL” .5gC#1 (0NAC)+PEA
Meal 10:35-11:00 Gum 11:45-
/13:10 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/14:40 D2/3 “13:00” .5gC#2 , Cr#3, .6GABA#5, gink#3 DRINK!
Meal -14:30 Gum 14:45-
/17:55 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules), Jun 27th
Pf: 1A1+1A2+1A3+1A4+1B1, B2:2A1+2C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5:A2 A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)
Development
The two esophagus blocks on Thursday were due to watching The Big Bang Theory instead of focusing on slow eating. The one Friday more was due to not drinking enough and not stopping a while before eating. This morning taking the B2-4 supps with a lot of almond milk was still not enough, so I need to be even more careful with C1-3: one capsule big sip. Problems then are more bladder frequency, urge & pain.
Tried to explain to my grandchild that I’m not old at all, so am still strong, just “ill”. When I demonstrated that (caught, carried and cuddled), reacted “I believe you’ll get well again”, I reacted “I do hope so”. And that I can bite and chew all food, but my body gets ill from it. Also said “I have some hurt too, granddad.” - Yeah, I thought: people mean well, when they say that, it’s not meant to belittle anything.
‘Research’ today: Now due to Morley Robbins as spin-off from Rodger Murphree I’m re-researching best forms of vitamin A, copper and vitamin C, using my favourite German supp blogger hcfricke. On vitamin C he convinces me that sodium ascorbate is the best form for me, as opposed to Robbins saying it has to be natural. I do eat the best (vegetarian/vegan) sources of vitamin A, C and copper. But I want to continue trying more copper, and seeing if it has actually helped my fatigue whilst my fatigue is now more since stopping it.
Copper: Oats, cashews, almonds, broccoli, raisins, green tea (cf. my EGCg and ellagic acid). Beans in (organic) baked beans, if I manage to tolerate them.
Ellagic acid: This site says that it’s wrong to read a % of ellagic acid, since it can’t contain any, only ellagitannin. The page gives a bad impression as it is badly written & formatted. Look up ellagitannin, it is a group name = class of tannins. They say that a Dr John Barron that all are different, and those tested most aren’t pomegranate like I’m using, but red raspberries.
Lessons in self-care #354 Managed to stay with kids a long time, not speaking etc., only possible and a great help when my wife takes over all patter.
Reasons to be cheerful #356 Seem to have lost the small “thorn” that got tightly wedged in the gums between 2 teeth, which I thought I’d have to visit the dentist’s for.
Things I love about myself #50 Love all my “kids”, and cuddling.
- My food
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…