JayCS’s Fibro Blog

Symptoms & Treatments
867

2022-07-04, Monday - Energy 15% / Sleep 70% / Feeling 70%-ish

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain (WPI) = 11 of 15 areas: limb-Ache 8 (30%, stiff 60%) + spine-pain 3 (20%) .
Symptom severity (SSS) = severity 9 of 12: Fatigue 3 (85%), insomnia 3 (30%), fog 2 (20%), headache 0, GI 1 (20%), depression 0.

Triggers & resulting Symptoms

SLEEP (click for details): 7h27, up 7x (3h48) ✅, ➔ Feeling 80-70% well, Ache 2-3 of 7 ❌, getting up: 80%/2 🧐

cold shower p0! Sleep 22:55- ear plugs. Short interruption from neighbour unpacking things.
0:05 6’ 80%/2/15% p2 st1 sip fw1’ air (nostrils, cos overheated) (ear plugs) A4
1:25 13’ 70%/2/15% p3 st1 sip fw1’ air (nostrils) (ear plugs) FCS B1 overheated.
3:20 5’ 80%/2/15% p2 st1 sip fw1’ air (ear plugs) re-arranged bedclothes.
4:38 9’ 70%/3/15% p1 st2-1 sip fw1’ air (ear plugs)
5:20-45 Yo.Ni 25’ Chatterbrain, despite tiredness, apparently need to distract.
-5:45
8:05-
-8:35 B2-4. 6. 9:10 C1-3. Eat -9:25 slp -5’-10:10

Sum: 1h05+10h10-(6+13+5+9+140+50+5=)3h48 = 11h15-3h48 = 7h27, up 7x (3h48)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 70%/3 :cross_mark:, kids ➔ 70%/3-4 :cross_mark:
ACTIONS ➔ PAINS: :white_check_mark: except: neck :white_check_mark: GI :white_check_mark: , esophagus (:face_with_monocle:) jaw :white_check_mark: 10xp1-2 :cross_mark: First time I’ve knowingly only had p0 again at 22:30!! So praps my bladder has got used to the higher amount of drink again, hope so! May have forgotten to note about 10xp1-3 per day the last few days…
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Except lack of real energy as ever. :cross_mark:. Praps try avocado, olives, vinegar, mustard and soy/tofu again? Watching fatigue? 14:50 Drat, I’m getting an immediate reaction again from just a few raw fresh organic foods, so that’ll narrow it down. Great… :roll_eyes: Apples, sweet potatoes, carrots, fennel, Himalayan salt, zucchini, pumpkin seeds. And again: burning skin, nothing to be seen, hot flush, feverish, dizzy, breathing problems, numb hands and arms. It took almost an hour, till 15:40.
Fibro & Touch: :white_check_mark:?
Covid-danger: :white_check_mark: - couldn’t cuddle as closely with my grandchild as I would have.
Focal seizures: 4th, 19:05.

Treatments

Docs:
Chinese Acupuncturist - #23 on 30th :face_with_monocle: (Sleep & +25% GABA helping.) Session #24 on 12th.

SELF-PHYSIO (click for details): 2h10 (once I do my back exercises...

:white_check_mark: airing 5x2’, cold shower 3x(10’), cream fc/ey/hd/ft 0x1’, teeth 3x2’, HWB 0x3’, breath exercises 0x1’, Timing, hunchback-pillow 20’, Y. Nidra 50’, massage gun 0x3’, neck 1+ 0x1’, neck 2 0x1’, plantar/calf stretch 0x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, aloe vera 0x1’, twist-stretch 0x1’, yoga/stretching 0x1’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 27th (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Stable now I've piled everything back on. Working thru June 27th, I've seen I can add a 3rd Ellagic acid, as I have tons cheap with short use by date. Trying theanine before first meal, hoping I won't wake up too much. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jun 27th (>30 supps): ALA .2g, B2 4x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/20:25 A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 1P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon
Meal - Gum -
/22:20 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/0:10 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
/1:30 B1 “01:00” PF#5
/8:35 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/8:35 B3 “07:00” (-30’) Q10 Qc Rs#1 SAM-e
/8:35 B4 “07:00” EGCg + Fev/MSM + Sily +2The?
0 DAO
/9:10 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 2x50mgB2, gink#1, 0 Zn, gly#3+4, 1x pine bark#2 + vit.D3 2-3/wk.
/9:10 C3 “MEAL” .5gC#1 (0NAC)+PEA
Meal - Gum -
/12:00 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/14:15 D2/3 “13:00” .5gC#2 , Cr#3, .6GABA#5, gink#3 DRINK!
Meal -15:00 Gum -
/18:00 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jun 27th

Pf: 1A1+1A2+1A3+1A4+1B1, B2:2A1+2C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5:A2 A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

‘Research’ today: No.
Lessons in self-care #356 Thought I was being lazy in the morning, but seems it was appropriate, seeing as an allergic attack and kids was coming up.
Reasons to be cheerful #358 Found a beautiful allegorical poem today. And kids was fun, tho I had to lie a lot.
Things I love about myself #52 Love good poetry.