JayCS’s Fibro Blog

Symptoms & Treatments
868

2022-07-05, Tuesday - Energy 15% / Sleep 80% / Feeling 75%-ish

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain (WPI) = 11 of 15 areas: limb-Ache 8 (20%, stiff 40%) + spine-pain 3 (20%) .
Symptom severity (SSS) = severity 9 of 12: Fatigue 3 (85%), insomnia 3 (20%), fog 2 (20%), headache 0, GI 1 (20%), depression 0.

Triggers & resulting Symptoms

SLEEP (click for details): 8h48, up 9x (1h35), (dozing 20+40, + Yo Ni. 10+20) ✅, but ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅

cold shower p2 Sleep 22:45- ear plugs
23.20 8’ 80%/2/?5% p2 st1 sip fw1’ air (ear plugs) FCS A4
0:19 5’ 80%/2/15% p2 st1 sip fw1’ air (ear plugs)
1:24 5’ 80%/2/15% p2 st1 sip fw1’ air (ear plugs) B1
1:41 6’ 80%/2/15% p0 st1 sip fw2’ gel (ear plugs)
2:03 8’ 80%/2/15% p0 st1 sip fw1’ (ear plugs) FCS#2
3:18 19’ 80%/3/20% p2 st1 sip fw15’ (ear plugs) doze… YoNi 10’
4:11 5’ 80%/2/15% p0 st1 sip fw1’ air (ear plugs) risky: FCS#3…
5:14 34’ 80%/2/15% p0 st1 sip fw1’ air (ear plugs) 6 … doze. YoNi… 20’
7:11 5’ 80%/2/15% p1 st1 sip fw1’ air (ear plugs) eye mask
-9:08, B2-4, stools…
Sum: 1h15+9h08-(8+5+5+6+8+19+5+34+5=)1h35 = 10h23-1h35 = 8h48, up 9x (1h35), (dozing 20+40, + Yo Ni. 10+20)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2. Work & rest most of the day :white_check_mark:, but a slow cycle-ride to get the guinea pigs some lush grass 40’ , then after a longer break 10’+20’ shop ➔ 80%/3 :white_check_mark:
ACTIONS ➔ PAINS: :white_check_mark: except: neck :white_check_mark: GI :white_check_mark:/:face_with_monocle:, bit loose. esophagus :white_check_mark:, jaw :white_check_mark:, 6xp1-2 :white_check_mark: - getting less, it seems? Cycling (slowly on my own) went quite well.
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Except lack of real energy as ever. :x:. Praps try avocado, olives, vinegar, mustard and soy/tofu again? Watching fatigue? Monday evening, less reaction (40%) after: No Qc, no broccoli, no sweet potatoes, white cabbage, but apples and chocolate - cucumbers??
Slight skin burning at 11:10 after ALA, pine bark, Rhodiola, Q10, SAM-e, EGCg, Fev/MSM, Sily + 2 The - is there a problem there? I doubt it, cos this isn’t repeated anywhere else except rhodiola in D4.
15:10 Apple, fennel, bok choy, carrots, zucchini, salt… Still hoping it’s not the apples… No problems, 20:00 similar, plus pumpkin seeds, quite a lot of green beans, no problems, incl. quite a bit of apples, plus quite a bit of bread and goat cheese. Thankfully!
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:

Treatments

Docs:
Phoned dentist, appointment to get this strange thorn thingy out from between my teeth on Friday - if it’s still in there then.
Chinese Acupuncturist - #23 on 30th :face_with_monocle: (Sleep & +25% GABA helping.) Session #24 on 12th. Stable, but unchanged.

SELF-PHYSIO (click for details): 100'

:white_check_mark: airing 6x2’, cold shower 3x(10’), cream fc/ey/hd/ft 0x1’, teeth 2x2’, HWB 0x3’, breath exercises 0x1’, Timing, hunchback-pillow 10’, Y. Nidra 30’, massage gun 0x3’, neck 1+ 0x1’, neck 2 0x1’, plantar/calf stretch 0x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, aloe vera 0x1’, twist-stretch 0x1’, yoga/stretching 0x1’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 27th (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Stable now I've piled everything back on. Working thru June 27th, I've seen I can add a 3rd Ellagic acid, as I have tons cheap with short use by date. Trying theanine before first meal, hoping I won't wake up too much. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jun 27th (>30 supps): ALA .2g, B2 4x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/19:45 no Qc/PQQ/Ω3. A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 1P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon
Meal - Gum -
/22:00 no Qc, A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/23:20 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
/1:25 B1 “01:00” PF#5
/10:35 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/10:35 B3 no Qc/Rs “07:00” (-30’) Q10 Qc Rs#1 SAM-e
/10:35 B4 “07:00” EGCg + Fev/MSM + Sily +2The
0 DAO
/15:05 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 2x50mgB2, gink#1, 0 Zn, gly#3+4, 1x pine bark#2 + vit.D3 2-3/wk.
/15:05 C3 no PEA “MEAL” .5gC#1 (0NAC)+PEA
Meal -15:30? Gum 16:45-
/13:40 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/11:20 D2/3 “13:00” .5gC#2 , Cr#3, .6GABA#5, gink#3 DRINK!
Meal - Gum -
/20:30 D4 no Qc/Rs “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jun 27th

Pf: 1A1+1A2+1A3+1A4+1B1, B2:2A1+2C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5:A2 A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

‘Research’ today: Yesterday: Doctors’ Diagnostic Errors Are Often Not Mentioned But Can Take A Serious Toll | Kaiser Health News - couldn’t find the (JAMA?-)study where researchers were recommending doctors to listen to patients and let them participate more in decision making, praps now behind a paywall.

Did I write the (stomach) side effects of olive leaf extract down here?: Olive Leaf Extract Benefits, Uses, Dosage and Side Effects - Dr. Axe

Looking if I can get a better vit. A form from microalgae I only found this study The Extraction of β-Carotene from Microalgae for Testing Their Health Benefits - PubMed β-carotene, but on my microalgae it only says D and E.

The copper product Robbins named was GHK-copper peptide, propagated by Loren Pickart, of whom this seems to be a/the website: http://reverseagingwithghk.com. Doesn’t recommend any products. This is only site I can find offering the product, but how the heck do I know if they are reliable? Buy GHK-CU (Copper) (50mg) - Biotech Peptides
Here a German site says it’s usually injected s.c. 200mcg/d for 6 weeks?! PEPTIDKUNDE 30 – GHK (GHK-Cu) - SuppDoc Praps I should ask a compounding pharmacy?
A study from 2018 Regenerative and Protective Actions of the GHK-Cu Peptide in the Light of the New Gene Data - PMC
But here Mitolife Radio: Is Supplementing Copper Safe with Morley Robbins it says that you can order Morley Robbins’ product here: Recuperate IQ - FIQ which is copper bisglycinate and beef liver powder for 35$, but not the GHK-Cu I expected, seeing as he’s such a fan of Pickart… Maybe I’ll just the same copper gluconate as before, seeing as I saw it worked on my iron deposits and may have improved my energy, have to analyze by looking when exactly I took the copper.

Vitamin A: eggs or dairy much better than sweet potatoes, carrots, or broccoli 10 Best Foods High in Vitamin A (Retinol) - Mental Food Chain

Lessons in self-care #357 I needed to get out on my own and LIVE and SAVOUR my NEW SLOW LIFE properly, not just at home. Wonderful.
Reasons to be cheerful #359 Nice slow cycle to get grass for the piglets was lovely, found a big goat family, with 5 kids, baby moorhens, the piglets were happy, my wife happy that I’d done something nice alone.
Reasons to be cheerful #360 Apples are OK, green beans are OK!!! And I can now add foods again and then find out what it was (or if it’s now gone again…)
Things I love about myself #53 Learning to love life once again.