2022-07-09, Saturday - Energy 18% / Sleep 90% / Feeling 70-80%-ish
21:58: I’m so stiff at the moment, that I’m gonna save this tomorrow’s entry as I feel the need to go thru today’s, Friday, and check for too optimistic percentages… And then try bed earlier again, altho I can’t see any patterns or anything at the moment, and just don’t like how I feel.
2:26: OK, done that I have to continue moaning & venting a bit - I somehow feel less than 70%-ish, finding it hard to feel my normal happy self. It was a bit tough to get into the right self-distracting mindset to cold shower, I was gonna whine around, then managed to kick myself to it. But before that the supps didn’t go down well, altho I took each single capsule with a few sips, so had to drink more, which will make me get up in an hour at the latest. And looking at & feeling my feet again the two lilac rashes on my right foot aren’t really getting better, altho I’m treating them alternately with calendula and tea tree oil most evenings, like usually works well, need more patience for that. And my left foot has nothing visible, but it’s the one that itches a lot of the time, since a few weeks. My wife can see nothing either. I treat it with calendula essence and cream alternately, maybe should keep to cream more. Plus the left ball of the foot is burning, a bit like plantar fasciitis, but different, something new I feel, don’t know what it’s from. My hunchback is burning, sitting is hard. Loads of things which are reflected in the WPI number, but I don’t necessarily note under actions / pains, altho I actually should / would want to. Probably just too much bits and pieces.
I didn’t find anything to love about myself today, actually I also cheated on being cheerful, I’m not, I’m a bit down - not depressed tho. Good if people keep me busy and distracted by asking for ideas… And I need to do something exciting again, like listening & sort of dancing to Skindred yesterday. I really do have to make music again tomorrow. And maybe like I just talked with my wife start with workout: not 30 push-ups, not 10, but 1, and work that up several times or once a day…
3:32 Drat, heartburn, that’s a bummer for my Schatzki ring… have to watch for that.
Today’s symptoms sorted by the ACR 2016 criteria
Widespread pain, WPI = 11+1=12 of 15 areas: limb-Ache 8 (20-40%, stiff 15-25%) + spine-pain 3 (20%), shoulder-girdle 1/hips 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (82%), insomnia 3 (10%), fog 2 (15%), headache 0, GI 1 (30%), depression 0
Triggers & resulting Symptoms
SLEEP (click for details): 8h14, up !2x (65') ✅, but ➔ Feeling 70% well, Ache 2 of 7 🧐, getting up: 80%/2 ✅,. First stint 3h20! By going to be a bit earlier again I think. Deep long sleep, altho feeling nauseous and drugged when having got get up. Try without FCS#2 first.
cold shower p0 Sleep 22:55- ear plugs
2:14 80’-20’? 70%/2/15% p0 st1 sip fw45’ air cream gel (nostrils) (ear plugs) A4. Ty without first. Ah, no.
6:27 5’ 70%/2/15% p0 st1 sip fw1’ air (ear plugs)
-8h14
Sum: 1h05+8h14-(60+5=)65’ = 9h19, - 65’ = 8h14, up 2x (65’)
ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2 TT 2:2(?, 4 games at least, might have won more), making music (big strain!), kids (but not moving), shop quick ➔ 80%/4 
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ACTIONS ➔ PAINS: except: neck GI heartburn at 3:30 
and then again at 9:40 after supps! , praps due to too much (dark) chocolate yesterday evening. Looking up it is organic, but from a normal shop, so more sugar 32%, which’d mean I ate about 20g of sugar. Esophagus jaw , 2xp1-2 ?
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. . I’ve tried tiny amounts of olives & mustard: OK, vinegar doubt it, next soy/tofu again. Fatigue seems no difference.
Fibro & Touch:
Covid-danger:
Treatments
Docs:
Chinese Acupuncturist - #23 on 30th (Sleep & +25% GABA helping.) Session #24 on 12th.
SELF-PHYSIO (click for details): 68'. Did 1-2 minute workout! (Each of 8 exercises twice.)
airing 4x2’, cold shower 2x(10’), cream fc/ey/hd/ft 1x1’, teeth 3x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 20’, Y. Nidra 5’, massage gun 0x3’, neck 1+ 0x1’, neck 2 0x1’, plantar/calf stretch 0x1’, acupressure 0?x1’, palpate 0x1’, belly 3’, back 10’, aloe vera x1’, twist-stretch x1’, yoga/stretching x1’. workout 2’,
Combine: next?
horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps June 27th (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Stopped the supps resveratrol, PEA and quercetin, cos of salicylates/oxalates since July 4th, keep track of that. Check if theanine before first meal is waking me up too much, doubt it tho. NEW IDEAS: Copper in psyllium. Copper suggested by verywellhealth, Hagmeyer and now Robbins. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jun 27th (>30 supps): ALA .2g, B2 4x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 1P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon
Meal - Gum -
A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/2:20 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
B1 “01:00” PF#5
/9:10 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/9:10 B3 “07:00” (-30’) Q10 Qc Rs#1 SAM-e
/9:10 B4 “07:00” EGCg + Fev/MSM + Sily +2The?
0 DAO
/9:55 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 2x50mgB2, gink#1, 0 Zn, gly#3+4, 1x pine bark#2 + vit.D3 2-3/wk.
/9:55 C3 “MEAL” .5gC#1 (0NAC)+PEA
Meal - Gum -
/13:00 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/14:30 D2/3 “13:00” .5gC#2 , Cr#3, .6GABA#5, gink#3 DRINK!
Meal - Gum -
/18:00 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules), Jun 27th
Pf: 1A1+1A2+1A3+1A4+1B1, B2:2A1+2C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5:A2 A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)
Development
An ex-colleague - mail-contact - just saw me and said “oh, you can cycle then”. I answered - “yeah, for a certain time, but am in a lot of pain at the moment due to 4 games of table tennis instead of 2”. I think that’s a main “problem” / characteristic / advantage that I can do probably everything - just for a very short time.
‘Research’ today: No.
Lessons in self-care #361 Trying to explain to my son and also my wife some of the details what is good for me. Son: How lying down eyes closed most of the time can lengthen meetings, wife: not doing a short workout isn’t my weaker self, it’s knowing that I don’t even manage back exercises without breaks any more - but she’s right suggesting a minimal version might work, like one movement of each exercise…
Reasons to be cheerful #364 Made a new track today 
Things I love about myself #56 Open for good joking around.
- My food
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…