JayCS’s Fibro Blog

Symptoms & Treatments
883

2022-07-13, Wednesday - Energy 25%!? / Sleep 85% / Feeling 85%-ish

Wow, :ping_pong: 4:1 and almost no pain (as usual starting 0:1). Combination of acupuncture with having diligently worked at improving sleep :bangbang: (First very surprised, then realized that’s exactly as planned.)

Wait, wait, watch out: cortisol will make me overdo it! (My wife said I don’t look good, so the cortisol is faking it.)

Now watch out for the night too, no muckin’ around.

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 15 areas: limb-Ache 8 (15%, stiff 5%) + spine-pain 3 (15%), shoulder-girdles/hips 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (75%), insomnia 3 (15%), fog 2 (10%), headache 0, GI 1 (5%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 8h04, up 5x (1h26) ✅, but ➔ Feeling 80-70% well, Ache 2 of 7 🧐, getting up: 80%/2 ✅

cold shower p0 Sleep A4 23:35-
1:40 13’ 80%/2/15% p0 st1 sip fw10’ air
3:04 11’ 70%/2/15% p0 st1 sip fw10’ air
4:38 52’ 80%/2/15% p0 st1 sip fw10’ air 6 ear plugs
6:23 5’ 70%/2/15% p0 st1 sip fw10’ air
7:43 5’ 70%/2/15% p0 st1 sip fw10’ air
-9:05
Sum: 25+9h05-(13+11+52+5+5=)86’ = 9h30-1h26 = 8h04, up 5x (1h26)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2 TT :ping_pong: 4:1, starting 0:1 as often ➔ 80%/2 :white_check_mark: :white_check_mark:, doc, housework ➔ 80%/2 :white_check_mark:, Standing for ?25’ pain in legs, headache ➔ 70%/4 :cross_mark:, after that made sure I was more careful, only resting, out for a very short cycle-walk.
ACTIONS ➔ PAINS: :white_check_mark: except: neck :white_check_mark: GI :white_check_mark:, esophagus :white_check_mark: jaw 0x5’’ :white_check_mark: 1xp1-2 :white_check_mark:. Standing 25’ caused leg, arm & head ache. Gave nothing else a chance to hurt.
(lie, sit, stand, arms up, cycle, walk, mask??)
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Except lack of real energy as ever. :cross_mark:. Tofu? Broccoli? All other food fine again, still got to watch chocolate tho.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:

Treatments

Docs:
GP cos of allergist? They hadn’t got a report from them either.
Chinese Acupuncturist - #23 on 30th :face_with_monocle: (Sleep & +25% GABA helping.) Session #24 on 12th. Exciting today, alternate feelings due to suddenly feeling normal again, then remembering that it’s a fake, esp. when my wife looked at me and said: you don’t look at all good though.

SELF-PHYSIO (click for details): 60'

:white_check_mark: airing 3x2’, cold shower 1x(10’), cream fc/ey/hd/ft 0x1’, teeth 5x2’, HWB 0x3’, breath exercises 1x1’, Timing, hunchback-pillow 10’, Y. Nidra 0’, massage gun x3’, neck 1+ 2x1’, neck 2 x1’, plantar/calf stretch 1x1’, acupressure x1’, palpate 1’, belly 3’, back 10’, aloe vera x1’, twist-stretch 3x1’, yoga/stretching 3x1’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 27th (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Started the supps resveratrol, PEA and quercetin again July 11th, after 1 week, as I'm feeling worse, fatigue same, Ache increased. Theanine seems OK earlier. NEW IDEAS: Copper in psyllium. Copper suggested by verywellhealth, Hagmeyer and now Robbins. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jun 27th (>30 supps): ALA .2g, B2 4x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/20:10 A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 1P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon
Meal - Gum -
/21:45 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/23:40 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
0 B1 “01:00” PF#5
/10:00? B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/10:00? B3 “07:00” (-30’) Q10 Qc Rs#1 SAM-e
/10:00? B4 “07:00” EGCg + Fev/MSM + Sily +2The?
0 DAO
/11:50 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 2x50mgB2, gink#1, 0 Zn, gly#3+4, 1x pine bark#2 + vit.D3 2-3/wk.
/11:50 C3 “MEAL” .5gC#1 (0NAC)+PEA
Meal -11:50 Gum -
/13:47 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid#2
14:40… 0 DAO (D1) “12:30” 0psyllium
/15:40 D2/3 “13:00” .5gC#2 , Cr#3, .6GABA#5, gink#3 DRINK!
Meal 14:45-15:40 Gum -
?18:00 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jun 27th

Pf: 1A1+1A2+1A3+1A4+1B1, B2:2A1+2C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5:A2 A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

‘Research’ today: No.
Lessons in self-care #363 Really got to watch out today and tonight.
Reasons to be cheerful #366 Acupuncture is exciting!
Things I love about myself #58 Learnt to relish being liked.