JayCS’s Fibro Blog

Symptoms & Treatments
884

2022-07-14, Thursday - Energy 20 → 5% / Sleep 85% / Feeling 80%- → 30%- → 40%-ish

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 15 areas: limb-Ache 8 (20 → 50%, stiff 15 → 25%) + spine-pain 3 (20%), shoulder-girdles/hips 0
Symptom severity, SSS = severity 10 of 12: Fatigue 3 (95%), insomnia 3 (15%), fog 2 (20%), headache 1, GI 1 (10%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 8h33, up 5x (1h42) ✅, but ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. 23:00 Bit difficult getting to bed, bit excited from cortisol, with energy for tidying my room, instead of calming and relaxing, forum work, then loud neighbours too, so have to put ear plugs in immediately... OK in the end, but only via a doze stint at t the end.

cold shower p0 Sleep Right NOW it’s time: 23:35- ear plugs
1:02 22’ 80%/2/15% p0 st1 sip fw15’ air (nostrils) (ear plugs) A4
3:44 20’ 80%/2/15% p0 st1 sip fw10’ (ear plugs)
4:25 15’ 80%/2/15% p0 st1 sip fw1’ (ear plugs) FCS TEETH
5:49 40’ 80%/2/15% p0 st1 sip fw1’ (ear plugs) 6
8:53 5’ B2-4 stools good
-9:45 meal
Sum: 25+9h45-(22+20+15+40+5=)1h42 = 10h10-1h37 = 8h33, up 5x (1h42)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2 tooth cleaning 10:30-12:00 ➔ 30%/5 :x::x::x:. Only resting. 17:30 ➔ 40%/5 :x:. How am I feeling? Well totally knackered, sweaty around my eyes, hard moving at all, stumbling around. Sure I could force myself to walk normally, and then it’d get worse and worse, my sleep would suffer…
ACTIONS ➔ PAINS: :white_check_mark: except: neck from dental cleaning :face_with_monocle:, GI :white_check_mark:, esophagus :white_check_mark:, jaw 3x5’’ :white_check_mark: 1xp1-2 :white_check_mark: (around 13:00 every day)
(lie, sit, stand, arms up, cycle, walk, mask??)
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Except lack of real energy as ever. :x:. Tofu? Broccoli?
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:

Treatments

Docs:
Chinese Acupuncturist - #23 on 30th :face_with_monocle: (Sleep & +25% GABA helping.) Session #24 on 12th.

SELF-PHYSIO (click for details): 115' (lots of deep yoga nidra during the dental cleaning to try to take the brunt out of it.)

:white_check_mark: airing 4x2’, cold shower 2x(10’), cream fc/ey/hd/ft 1x1’, teeth 2x2’, HWB 0x3’, breath exercises 2x1’, Timing, hunchback-pillow 20’, Y. Nidra 40’, massage gun 1x3’, neck 1+ 1x1’, neck 2 x1’, plantar/calf stretch 2x1’, acupressure x1’, palpate 1’, belly 1’, back 5’, aloe vera 1x1’, twist-stretch 2x1’, yoga/stretching 2x1’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 27th (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Started the supps resveratrol, PEA and quercetin again July 11th, after 1 week, as I'm feeling worse, fatigue same, Ache increased. Theanine seems OK earlier. NEW IDEAS: Copper in psyllium. Copper suggested by verywellhealth, Hagmeyer and now Robbins. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jun 27th (>30 supps): ALA .2g, B2 4x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/20:00 A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 1P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon
Meal - Gum -
/22:10 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/1:15 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
0 B1 “01:00” PF#5
/8:55 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/8:55 B3 “07:00” (-30’) Q10 Qc Rs#1 SAM-e
/8:55 B4 “07:00” EGCg + Fev/MSM + Sily +2The?
0 DAO
/10:15 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 2x50mgB2, gink#1, 0 Zn, gly#3+4, 1x pine bark#2 + vit.D3 2-3/wk.
/10:15 C3 “MEAL” .5gC#1 (0NAC)+PEA
Meal - Gum -
/14:15 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/14:45 D2/3 “13:00” .5gC#2 , Cr#3, .6GABA#5, gink#3 DRINK!
Meal -15:00 Gum 15:00-15:30
/17:20 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jun 27th

Pf: 1A1+1A2+1A3+1A4+1B1, B2:2A1+2C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5:A2 A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

‘Research’ today: No.
Lessons in self-care #364 “Interesting” - the intense Yoga Nidra during dental cleaning did make it easier in there, but did absolutely nothing for the backlash, I feel.
Reasons to be cheerful #367 None? Improving my newest track.
Things I love about myself #59 That I don’t need to pressure myself to answer this question :crazy_face: