JayCS’s Fibro Blog

Symptoms & Treatments
886

2022-07-16, Saturday - Energy 17% / Sleep 85% / Feeling 80%-ish

3rd seizure Friday at 21:00. Some sinus burning so I’m thinking it’s too little serotonin, caused by too much cortisol from the acupuncture, and whether I should up GABA already. I’ll wait first. OK Saturday, a short aura once.

Raising my torso for a time after taking my B2-4 supps was not enough. So I have to go back to taking them once I get up. Need to get more disciplined anyway. Ah, no matter. Still got a handle on sleep, that’s what matters most.

Broccoli may be a problem it seemed today.

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 15 areas: limb-Ache 8 (20-40%, stiff 15-40%) + spine-pain 3 (20%), shoulder-girdles/hips 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (83%), insomnia 3 (15%), fog 2 (20%), headache 0, GI 1 (20%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 8h15, up 5x (1h23) ✅, and ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅

cold shower p0 Sleep 23:10- ear plugs TEETH
1:13 30’ 80%/2/15% p0 st1 sip fw25’ air (ear plugs) A4
2:30 27’ 80%/2/15% p0 st1 sip fw2’ (ear plugs) 6
4:12 5’ 80%/2/15% p0 st1 sip fw2’ air (ear plugs) (nostrils) (sore throat)
5:36 11’ 80%/2/15% p0 st1 sip fw2’ air (ear plugs) (nostrils) FCS
7:40 10’ 80%/2/15% p0 st1 sip fw1’ air (ear plugs) (nostrils) (sore throat) B2-4 → torso higher! 20-30’ wasn’t enough (how would I know how long), started feeling burny in esophagus. And longer would have been even worse for my back… B2-4
-8:48
Sum: 50+8h48-(30+27+5+11+10=)1h23 = 9h38-1h23 = 8h15, up 5x (1h23)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2 TT :ping_pong: 4:0, then 15’ in our local TT shop (2x8’ cycle) ➔ 80%/5 :white_check_mark:, rest ➔ 80%/3, cycle 2x10’ to gardens 25’ and shop 5’ ➔ 80%/3 :x: cycle, mask, work, kids,*
ACTIONS ➔ PAINS: :white_check_mark: except: neck :face_with_monocle: (very taut & stiff sometimes), GI :face_with_monocle: feels like a slight stomach cramp in the afternoon & evening, esophagus :face_with_monocle: - careful with too many supps whilst in bed, jaw 2x3’’ :white_check_mark: 1xp1-2 :white_check_mark:. Right knee problems in evening and night, strangely not while I sit on the floor with my right leg cocked.
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Except lack of real energy as ever. :x:. Tofu? Broccoli: OK, first time today and it did NOT feel good. It’s an esophagus problem, but also I felt like a light allergic reaction, and maybe the stomach tautness came from it. On the other hand I had something with my belly in the early morning when palpating it, long before the broccoli.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:

Treatments

Docs:
Chinese Acupuncturist - #23 on 30th :face_with_monocle: (Sleep & +25% GABA helping.) Session #24 on 12th. Energy still quite good, but 4 TT games and more later was too much, so not quite 20% today. Watch for a bit more sleep tonight again.

SELF-PHYSIO (click for details): 92'

:white_check_mark: airing 5x2’, cold shower 2x(10’), cream fc/ey/hd/ft 0x1’, teeth 2x2’, HWB 0x3’, breath exercises 5x1’, Timing, hunchback-pillow 20’, Y. Nidra 0’, massage gun 1x3’, neck 1+ 5x1’, neck 2 0x1’, plantar/calf stretch 4x1’, acupressure 1x1’, palpate 3’, belly 3’, back 10’, aloe vera 1x1’, twist-stretch 2x1’, yoga/stretching 1x1’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 27th (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Run out of vitamin B2 (R-5-P) July 14th. NEW IDEAS: Copper in psyllium. Copper suggested by verywellhealth, Hagmeyer and now Robbins. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jun 27th (>30 supps): ALA .2g, B2 4x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/20:00 A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 1P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon
Meal - Gum -
/21:45 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/1:20 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
0 B1 “01:00” PF#5
/7:50 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/7:50 B3 “07:00” (-30’) Q10 Qc Rs#1 SAM-e
/7:50 B4 “07:00” EGCg + Fev/MSM + Sily +2The?
0 DAO
/10:25 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 2x50mgB2, gink#1, 0 Zn, gly#3+4, 1x pine bark#2 + vit.D3 2-3/wk.
/10:25 C3 “MEAL” .5gC#1 (0NAC)+PEA
Meal - Gum -
/12:45 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/14:40 D2/3 “13:00” .5gC#2 , Cr#3, .6GABA#5, gink#3 DRINK!
Meal - Gum -
/18:10 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jun 27th

Pf: 1A1+1A2+1A3+1A4+1B1, B2:2A1+2C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5:A2 A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

‘Research’ today: No.
Lessons in self-care #366 Offered to do quite something, but also took help that was offered a lot.
Reasons to be cheerful #369 TT & visiting gardens was fun/joy.