JayCS’s Fibro Blog

Symptoms & Treatments
887

2022-07-17, Sunday - Energy 17% / Sleep 90% / Feeling 70-80%-ish

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 15 areas: limb-Ache 8 (?20%, stiff ?15%) + spine-pain 3 (?20%), shoulder-girdles/hips 0
Symptom severity, SSS = severity 10 of 12: Fatigue 3 (?80%), insomnia 3 (?10%), fog 2 (?20%), headache 1, GI 1 (?20%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 9h23, up 6x (54') ✅, ➔ Feeling 80%(60%) well, Ache 2 of 7 🧐, getting up: 70%/2 ❌

cold shower p0 Sleep 22:50- TEETH
23:58 8’ 80%/2/20% p0 st2 sip fw2’ air A4
1:00 5’ 80%/2/20% p0 st3 sip fw2’
2:38 4’ 80%/2/25% p0 st3 sip fw1’
4:22 4’ 80%/2/25% p0 st3 sip fw1’
6.04 3’ 80%/2/25% p0 st3 sip fw1’
7:18 30’ 60%/2/25% p0 st3 sip fw1’ 6 + good stools nostrils! nauseous
-9:07 sore throat B2-4
Sum: 1h10+9h07-(8+5+4+4+3+30=)54’ = 10h17-54 = 9h23, up 6x (54’)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 70%/2 TT 2:2 (tough) ➔ 60%/4 :x:, resting ➔ 70%/3 :x:… :white_check_mark:
?? cycle, mask, work, kids,
ACTIONS ➔ PAINS: :white_check_mark: except: neck :face_with_monocle:: very flexible, but stiff & hurting most of the time. GI :white_check_mark:. Esophagus :white_check_mark:. jaw 2x5’’ :white_check_mark: 2xp1-2 :white_check_mark: (often midday and evening, before meals). Mask during service wasn’t too easy, but good to stand and move during songs, as I wasn’t playing myself, altho I’d got my mat with me and leant against things while sitting. Cycling is now almost slow, arms up not easy.
Light headache most of afternoon and evening, no idea why.
It’s got harder for me to get up off the floor, also got no idea why
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Except lack of real energy as ever. :x:. Tofu? Broccoli again in small amounts might’ve been OK, not quite sure.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:

Treatments

Docs:
Chinese Acupuncturist - #23 on 30th :face_with_monocle: (Sleep & +25% GABA helping.)
Energy gone down a bit again, despite “good” sleep.
Session #24 on 12th.

SELF-PHYSIO (click for details): 66' (once back)

:white_check_mark: airing 5x2’, cold shower 1x(10’), cream fc/ey/hd/ft x1’, teeth 2x2’, HWB x3’, breath exercises 3x1’, Timing, hunchback-pillow 20’, Y. Nidra 0’, massage gun x3’, neck 1+ 2x1’, neck 2 x1’, plantar/calf stretch 2x1’, acupressure x1’, palpate 1’, belly 3’, back 10’, aloe vera 1x1’, twist-stretch x1’, yoga/stretching x1’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 27th (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Run out of vitamin B2 (R-5-P) July 14th. NEW IDEAS: Copper in psyllium. Copper suggested by verywellhealth, Hagmeyer and now Robbins. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jun 27th (>30 supps): ALA .2g, B2 4x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/19:00 A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 1P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon
Meal - Gum -
/21:30 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/0:00 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
0 B1 “01:00” PF#5
/09:15 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/09:15 B3 “07:00” (-30’) Q10 Qc Rs#1 SAM-e
/09:15 B4 “07:00” EGCg + Fev/MSM + Sily +2The?
0 DAO
/10:00 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 2x50mgB2, gink#1, 0 Zn, gly#3+4, 1x pine bark#2 + vit.D3 2-3/wk.
/10:00 C3 “MEAL” .5gC#1 (0NAC)+PEA
Meal - Gum -
/13:00 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/15:00 D2/3 “13:00” .5gC#2 , Cr#3, .6GABA#5, gink#3 DRINK!
Meal - Gum -
/17:10 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jun 27th

Pf: 1A1+1A2+1A3+1A4+1B1, B2:2A1+2C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5:A2 A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

‘Research’ today:
Thinking about whether fatigue is part of central sensitisation, I found these studies:
Central sensitisation in chronic fatigue syndrome and fibromyalgia; a case control study - PubMed (study CSS in CFS + FM) = https://www.sciencedirect.com/science/article/abs/pii/S0022399921002695?via%3Dihub (full article):
Central sensitisation may be a common endophenotype in chronic fatigue syndrome and fibromyalgia. Further research should address whether central sensitisation is a cause or effect of these disorders.

Abstract: Central sensitization predicts greater fatigue independently of musculoskeletal pain - PubMed
Part article: Central sensitization predicts greater fatigue independently of musculoskeletal pain - PMC
Full article: https://academic.oup.com/rheumatology/article/58/11/1923/5366190

“For those seeking to treat fatigue, the benefit of interventions that reduce central sensitization should be investigated.” But is only this meant?? - how disappointing!:
“Fatigue was predicted by central sensitization, independently of the presence of pain. In light of the fact that there are no licensed or recommended therapies for fatigue, these findings suggest that medications and non-pharmacological interventions may be beneficial for improved fatigue management. Such interventions may include those that are commonly used in chronic pain, including PA (e.g. aquatic exercise and yoga), behavioural interventions and pharmacological approaches such as antidepressants (e.g. amitriptyline)”.
“In this study, cases of CFS and FM demonstrated lower PPTs, enhanced temporal summation (TS) and less efficient conditioned pain modulation (CPM), compared to healthy controls, with complete agreement between the two dynamic measures in both case groups. No differences were detected between case groups and none of our healthy controls demonstrated either inefficient CPM or enhanced TS. We demonstrated significant differences in cold- and heat-induced pain in FM, but not CFS cases, compared to”

Lessons in self-care #367 Carefully engineered sleep tonight. Still felt fluey ill upon waking tho (nostrils, nauseous)