JayCS’s Fibro Blog

Symptoms & Treatments
889

2022-07-19, Tuesday - Energy 18% / Sleep 90% / Feeling 85%-ish

Got my really stiff neck down just with 5’ massage gun.

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 15 areas: limb-Ache 8 (15%, stiff 15%) + spine-pain 3 (15%), shoulder-girdles/hips 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (82%), insomnia 3 (10%), fog 2 (15%), headache 0, GI 1 (20%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 8h14, up 5x (57') ✅, but ➔ Feeling 70-80% well, Ache 2 of 7 🧐, getting up: 80%/2 ✅

cold shower p0 Sleep 0:00- Too late, due to my wife needing to do stuff, distracting me, annoying. Have to talk about that? Massaged neck good!
1:53 14’ 70%/2/25% p0 st1 sip fw10’
2:47 12’ 70%/2/25% p0 st1 sip fw1’ air FCS#2 no knee, no neck
4:51 13’ 80%/2/25% p0 st3 sip fw1’ air FCS#3 knee, no neck, ear plugs, eye mask
6:38 3’ 80%/2/25% st2 sip fw1’ (ear plugs)
7:08 15’ 80%/2/25% p0 st2 sip fw1’ nauseous, LBU
-9:11
Sum: 9h11-(14+12+13+3+15=)57 = 8h14, up 5x (57’)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2 just resting, listening, mailing, 1h video conference fine, blow drying etc. ➔ 80%/2 :white_check_mark:.
ACTIONS ➔ PAINS: :white_check_mark: except: neck :white_check_mark:? GI :white_check_mark: but a bit of heartburn/GERD at 13:15, stomach/esophagus burning again at 19:00 - I think a bit too sugary yoghurt? Esophagus :white_check_mark: jaw 0x5’’ :white_check_mark: 0xp1-2 :white_check_mark:.
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Except lack of real energy as ever. :x:. Tofu? Tomato spread? Yogurt is probably mainly an acid problem, nothing allergic.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:

Treatments

Docs:
Chinese Acupuncturist - #23 on 30th :face_with_monocle: (Sleep & +25% GABA helping.)
Session #24 on 12th.

SELF-PHYSIO (click for details): 89' (once back)

:white_check_mark: airing 5x2’, cold shower 3x(10’), cream fc/ey/hd/ft x1’, teeth 2x2’, HWB x3’, breath exercises x1’, Timing, hunchback-pillow 20’, Y. Nidra 0’, massage gun 2x3’, neck 1+ 5x1’, neck 2 x1’, plantar/calf stretch x1’, acupressure x1’, palpate 1’, belly 3’, back 10’, aloe vera x1’, twist-stretch x1’, yoga/stretching x1’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 27th (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Run out of vitamin B2 (R-5-P) July 14th. NEW IDEAS: Copper in psyllium. Copper suggested by verywellhealth, Hagmeyer and now Robbins. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jun 27th (>30 supps): ALA .2g, B2 4x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/19:50 A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 1P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon
Meal - Gum -
/21:20 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/23:35 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
0 B1 “01:00” PF#5
/09:25 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/09:25 B3 “07:00” (-30’) Q10 Qc Rs#1 SAM-e
/09:25 B4 “07:00” EGCg + Fev/MSM + Sily +2The?
0 DAO
/10:40 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 2x50mgB2, gink#1, 0 Zn, gly#3+4, 1x pine bark#2 + vit.D3 2-3/wk.
/10:40 C3 “MEAL” .5gC#1 (0NAC)+PEA
Meal - Gum -
/12:50 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/16:10 D2/3 “13:00” .5gC#2 , Cr#3, .6GABA#5, gink#3 DRINK!
Meal - Gum -
/18:15? D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jun 27th

Pf: 1A1+1A2+1A3+1A4+1B1, B2:2A1+2C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5:A2 A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

‘Research’ today: Yesterday phone interview for the study showed it was ACT, acceptance and commitment therapy, which I’m very interested in. Also asked to do more volunteer work for FMA UK.
This is the study I referred to yesterday Peeking into the future: Transdermal patches for the delivery of micronutrient supplements - PMC ending “Thus, it appears that research is still in premature stages and although promising and important, we cannot yet conclude on the efficacy of the transdermal micronutrient delivery on humans.” despite concentrating on microneedles rather than patches for vitamins via the skin.
Such a stirring essay in JAMA today called “Baby Girl”, I really had to cry quite a few tears, about Love in an adoption setting: Baby Girl | Humanities | JAMA | JAMA Network

Lessons in self-care #369 A day full of “rest” is good once in a while!
Reasons to be cheerful #371 Wow - neck stiffness gone after one 5’ massage gun treatment while sideways stretching.
Reasons to be cheerful #372 Again listening to my own tracks just inspired inside by the cover of “We Walk On Water”.