JayCS’s Fibro Blog

Symptoms & Treatments
894

2022-07-24, Sunday - Energy 25%! / Sleep 90%! / Feeling 80%-ish

Energy increased!, Ache decreased, neck pulled muscle, bit less nauseous at night after eating earlier in the evening.
Burning face from eye mask getting up.
Neck better from youtube exercises, but then headache…

I’m adding a new category “weather”, altho I’m usually able to quickly adapt.

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 15 areas: limb-Ache 8 (10%, stiff 10%) + spine-pain 3 (25%), shoulder-girdles/hips 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (75%), insomnia 3 (10%), fog 2 (20%), headache 0, GI 1 (20%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 8h39, up 5x (53') ✅, but ➔ Feeling 80-70% well, Ache 1 of 7 🧐, getting up: 70%/1 🧐

cold shower p0 Sleep 23:10- TEETH A4
1:05 10’ 80%/2/25% p0 st1 sip fw6’ air
2:41 8’ 70%/2/25% p0 st1 sip fw1’ air
4:17 5’ 80%/2/25% p0 st1 sip fw1’
5:50 6’ 70%/2/25% p0 st1 sip fw1’ air
7:06 24’ 80%/2/25% p0 st1 sip fw1’ air
-8:42 B2-4
Sum: 50+8h42-(10+8+5+6+24=)53’ = 9h32-53’ = 8h39, up 5x (53’)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 70%/1 :face_with_monocle:, no big problem doing some “housework” ➔ 70%/2 :face_with_monocle:, 2x30’ cycling wouldn’t’ve been bad if it hadn’t been for the heat. ➔ 70%/2 :face_with_monocle:
ACTIONS ➔ PAINS: :white_check_mark: except: neck crick causing a problem :x: GI OK :white_check_mark:, esophagus :white_check_mark:, except heartburn, but a bit better, and eating earlier yesterday evening caused less problems at night :face_with_monocle:. jaw 1x5’’ :white_check_mark: 0xp1-2 :white_check_mark: . Cycling: hands & wrists. :face_with_monocle:
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Except lack of real energy as ever. :x:. Tofu? Broccoli OK. :white_check_mark:
Fibro & Touch: :white_check_mark:
Covid-danger: An old neighbour in our house told me on the stairs without a mask that she’d just tested positive. I was flabbergasted. I immediately took several steps back and at least put my mask on. :x:
Weather: Indoors we are managing to keep the temperature down to 24°C by only opening windows at night. Sometimes it even gets a bit too cold when we air at night. I still wear 5 pairs of socks. :white_check_mark:. Outdoors it was OK a few days, today it was “only” 30°C outside, but cycling 2x30’ with a lying down break in between was very taxing, not due to energy, just the heat and the breeze making me nauseous.

Treatments

Docs:
Chinese Acupuncturist - #25 on 21st :face_with_monocle: (Sleep & +25% GABA helping.) Still energy. Session #26 on 2nd.

SELF-PHYSIO (click for details): 86'

:white_check_mark: airing 5x2’, cold shower 2?x(10’), cream fc/ey/hd/ft x1’, teeth 2x2’, HWB x3’, breath exercises x1’, Timing, hunchback-pillow 20’, Y. Nidra 0’, massage gun 2x3’, neck 1+ 10x1’, neck 2 x1’, plantar/calf stretch 2x1’, acupressure x1’, palpate 1’, belly 3’, back 10’, aloe vera x1’, twist-stretch x1’, yoga/stretching x1’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 22nd (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: GenF20+?? (HGH and amino acids); Alpha GPC = choline alfoscerate? B3 flush free? CoQ10 with evening meal from July 20th! (unstuffs nose) Run out of vitamin B2 (R-5-P) July 14th. Reducing P5P too. NEW IDEAS: Copper in psyllium. Copper suggested by verywellhealth, Hagmeyer and now Robbins. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jul 22nd (>30 supps): ALA .2g, B2 0x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/19:10 A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon. Q10.
Meal - Gum -
/21:10 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/23:00 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
0 B1 “01:00” PF#5
/8:45 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/8:45 B3 “07:00” (-30’) Qc Rs#1 SAM-e
/8:45 B4 “07:00” EGCg + Fev/MSM + Sily +2The
0 DAO
/10:50 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, ?1x pine bark#2 + vit.D3 2-3/wk.
/10:50 C3 “MEAL” .5gC#1 (0NAC)+PEA
Meal - Gum -
13:01 C4 “11:00” (+2h/) gi#2 Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/15:00 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
Meal -15:00 Gum 15.00-
/18:20 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jul 22nd

Pf: 1A1+1A2+1A3+1A4+1B1, B2:0A1+0C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: 0P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

‘Research’ today: No.
My pulled neck muscle has sent me to youtube. These all sound OK, not sure which fits best. Don’t quite understand #1. #3 has detailed explanations to 1 towel stretch, #4 has more detail on 3 different towel stretches. Funny to learn from them and the comments all the names for it - a crink or kink in the neck, dictionary says also crick.

Lessons in self-care #374 Wanted to try longer cycling, but it was tough in the heat, so I did take care and an appropriate break.
Reasons to be cheerful #377 Cycling was sort of fun. The day was too.