2022-07-26, Tuesday - Energy 25% / Sleep 90% / Feeling 85-90%-ish
Today’s symptoms sorted by the ACR 2016 criteria
Widespread pain, WPI = 11 of 15 areas: limb-Ache 8 (10%, stiff 10%) + spine-pain 3 (15%), shoulder-girdles/hips 0
Symptom severity, SSS = severity 10 of 12: Fatigue 3 (75%), insomnia 3 (10%), fog 2 (10%), headache 1, GI 1 (25%), depression 0
Triggers & resulting Symptoms
SLEEP (click for details): 8h42, up 7x (1h12) ✅, but ➔ Feeling 80% well, Ache 1 of 7 ✅, getting up: 80%/1 ✅. Too late, forum-work.
cold shower p0 Sleep 23:55- back exercises, fw…
1:17 4’ 80%/1/10% p4 st1 sip fw1’ air
3:08 4’ 80%/1/10% p2 st1 sip fw1’ air
4:30 4’ 80%/1/0% p0 st1 sip fw1’ air
5:51 15’ 80%/1/10% p1 st1 sip fw1’ (6) ear plugs
6:18 26’ 80%/1/10% p0 st1 sip fw1’ 6 air nostrils (ear plugs) dose
7:22 11’ 80%/1/10% p0 st1 sip fw1’ air FCS#2 (ear plugs) TEETH dose
9:09 8’ 80%/1/10% p0 st1 sip fw1’ dose
-9:54 stools, B2-4
Sum: 5+9h54-(4+4+4+15+26+11+8=)72’ = 9h54-1h12 = 8h42, up 7x (1h12)
ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/1 TT 3:0 40’ ➔ 80%/2 
, then lots of rest, a little housework ➔ 90%/1 but in the late afternoon 17:15 cat sitting, then hoovering, then to town to look for a present, home 19:25 - all very slow, but much too much: headache, exhausted, heavy ➔ 50%/3 
, resting ➔ 70%/3, still a bit of headache , best early to bed!
ACTIONS ➔ PAINS: except: neck still OK, still a few exercises. . GI , except a severe diarrhea attack at 16:35, which might’ve been due to goat milk apparently being off, altho not tasting off or due to the broccoli, which I didn’t feel I tolerated. I’m guessing the milk. Esophagus . Jaw 0x5’’ . pee pain: 2-3xp1-2 & 1xp4 
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. . Tofu? Nope, still testing other combinations. 15:00 once starting with broccoli, I feel sweaty and feverish, I don’t think I tolerate it.
Fibro & Touch:
Covid-danger:
Weather: Indoors Outdoors . Heat under control, tolerating wind & breeze etc. fairly well.
Urinary frequency diary: 22:30 p0, 1:17 p4 3:08 p2 4:30 p0 5:51 p1
6:18 p0 7:22 p0 9:09 p0 9:54… ??? 16:35 p0 with diarrhea.? Hard keeping track except at night.
Treatments
Docs:
Chinese Acupuncturist - #25 on 21st (Sleep & +25% GABA helping.) Still 25%, still sleep under control. Session #26 on 2nd.
SELF-PHYSIO (click for details): 85'
airing 5x2’, cold shower 2x(10’), cream fc/ey/hd/ft x1’, teeth 4x2’, HWB x3’, breath exercises 5x1’, Timing, hunchback-pillow 20’, Y. Nidra 0’, massage gun x3’, neck 1+ 3x1’, neck 2 x1’, plantar/calf stretch 2x1’, acupressure x1’, palpate 1’, belly 3’, back 10’, aloe vera x1’, twist-stretch 3x1’, yoga/stretching x1’.
Combine: next?
workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps June 22nd (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: GenF20+?? (HGH and amino acids); Alpha GPC = choline alfoscerate? B3 flush free? CoQ10 with evening meal from July 20th! (unstuffs nose) Run out of vitamin B2 (R-5-P) July 14th. Reducing P5P too. NEW IDEAS: Copper in psyllium. Copper suggested by verywellhealth, Hagmeyer and now Robbins. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, B2, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jul 22nd (>30 supps): ALA .2g, B2 0x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/19:35 A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon. Q10.
Meal - Gum -
/21:35 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/23:40 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
0 B1 “01:00” PF#5
/10:00 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/10:00 B3 “07:00” (-30’) Qc Rs#1 SAM-e
/10:00 B4 “07:00” EGCg + Fev/MSM + Sily +2The
0 DAO
/10:45 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, ?1x pine bark#2 + vit.D3 2-3/wk.
/10:45 C3 “MEAL” .5gC#1 (0NAC)+PEA
Meal -10:50 Gum 10:50-13:35
/13:35 C4 “11:00” (+2h/) gi#2 Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/14:30 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
Meal 14:30-15:15 Gum -
/17:20 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules), Jul 22nd
Pf: 1A1+1A2+1A3+1A4+1B1, B2:0A1+0C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: 0P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)
Development
‘Research’ today: No.
Lessons in self-care #376 With 25% energy I feel ready to take on anything… 
So…
walking back from the 2nd shop to our cycles, my wife offered me her arm and I walked with eyes closed almost all the time. I heard someone talking, collecting for a charity. My wife said: Sorry, can’t, my husband isn’t feeling well. Had to rest for an hour before I had the energy to eat…
Reasons to be cheerful #380 Nice to go to town and overdo it for a change.
Things I love about myself #65 Learnt to love my life.
- My food apparently minus broccoli…
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…