2022-07-28, Thursday - Energy 10-15% (but up from cortisol) / Sleep 85% (10h34!) / Feeling 80%-ish (but up from cortisol)
Definitely got to keep the cortisol down and sleep up!! Was also colder than usual, esp. feet, despite warmth.
Today’s symptoms sorted by the ACR 2016 criteria
Widespread pain, WPI = 11 of 15 areas: limb-Ache 8 (30%, stiff 10%-30%) + spine-pain 3 (15%), shoulder-girdles/hips 0
Symptom severity, SSS = severity 10 of 12: Fatigue 3 (85-90%), insomnia 3 (15%), fog 2 (20%), headache 1, GI 1 (10%), depression 0
Strangely that stiffness only partly higher, but maybe it’s the cortisol too, once I get going, as quite some feverishness most of the day.
Triggers & resulting Symptoms
SLEEP (click for details): 10h34, up 4x (1h12) ✅, but ➔ Feeling 60%-70% well, Ache 2-3 of 7 ❌, getting up: 70%/3 ❌
cold shower p0 Sleep 21:05- ear plugs TEETH
22:20 5’ 70%/3/20% p3 st1 sip fw1’ air (ear plugs) A3
23:55 39’ 70%/2/20% p3 st1 sip fw35’ (ear plugs) A4 feverish.
2:47 23’ 60%/3/20% p0 st1 sip fw1’ air (ear plugs)
6:41 5’ 70%/3/20% p0 st1 sip fw1’ air (ear plugs)
-8:51 70%/3/20% p st2 air (nostrils) stools, B2-4
Sum: 2h55+8h51-(5+39+23+5=)1h12 = 11h46-1h12 = 10h34, up 4x (1h12)
ACTIVITIES (aim: 40% energy) ➔ ACHE: 70%/3, from long intense sleep after overdoing it looking after grandchild ➔ 80%/3 most of the day, so 
considering. Only 25’ shop, 25’ cats, 5’ shop, 5x5’ cycle… not talking much, just resting/typing.
ACTIONS ➔ PAINS: except: neck GI esophagus jaw 0x5’’ pee pain: 2xp3 at night 
- why now at night and not at midday?
Not doing much, so can’t judge what’d hurt. Strangely knee is OK, despite sitting all day with knee cocked, which I thought I’d identified as the problem.
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. 
. Tofu? Stopped buying broccoli now. Burning skin a bit, mainly arms, so need to watch food more too (but had it before midday meal, so the meal was no problem.).
Fibro & Touch:
Covid-danger: Testing almost every day since our neighbour’s got it.
Weather: Indoors Outdoors
Urinary diary: 22:20 p3 23:55 p3 2:47 p0 6:41 p0 9:52 p0 13:30 p0 14:27 p0 . Not much in between, if at all p0 .
Treatments
Docs:
Chinese Acupuncturist - #25 on 21st (Sleep & +25% GABA helping.) Hope I can jump this hurdle well, again by controlling sleep. Session #26 on 2nd.
SELF-PHYSIO (click for details): '
airing 5x2’, cold shower 1x(10’), cream fc/ey/hd/ft x1’, teeth 3x2’, HWB x3’, breath exercises 2x1’, Timing, hunchback-pillow 20’, Y. Nidra 0’, massage gun x3’, neck 1+ x1’, neck 2 x1’, plantar/calf stretch x1’, acupressure x1’, palpate 1’, belly 3’, back 10’, aloe vera x1’, twist-stretch x1’, yoga/stretching x1’.
Combine: next?
workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps June 22nd (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: GenF20+?? (HGH and amino acids); Alpha GPC = choline alfoscerate? B3 flush free? CoQ10 with evening meal from July 20th! (unstuffs nose) Run out of vitamin B2 (R-5-P) July 14th. Reducing P5P too. NEW IDEAS: Copper in psyllium. Copper suggested by verywellhealth, Hagmeyer and now Robbins. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, B2, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jul 22nd (>30 supps): ALA .2g, B2 0x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
&20:20 A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon. Q10.
Meal -20:35 Gum -
/22:22 21:00 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/23:55 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
0 B1 “01:00” PF#5
/09:30 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/09:30 B3 “07:00” (-30’) Qc Rs#1 SAM-e
/09:30 B4 “07:00” EGCg + Fev/MSM + Sily +2The
0 DAO
/11:55 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, ?1x pine bark#2 + vit.D3 2-3/wk.
/11:55 C3 “MEAL” .5gC#1 (0NAC)+PEA
Meal - Gum -
/13:55 C4 “11:00” (+2h/) gi#2 Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/15:55 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
Meal -16:10 Gum 16:10-
/18:25 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules), Jul 22nd
Pf: 1A1+1A2+1A3+1A4+1B1, B2:0A1+0C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: 0P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)
Development
‘Research’ today: No.
Lessons in self-care #378 Recovery mode, coupled with cortisol.
Reasons to be cheerful #382 Maybe I can keep the backlash down.
Things I love about myself #66 Undaunting.
- My food apparently minus broccoli…
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…