2022-07-29, Friday - Energy 15% / Sleep 90% / Feeling 70%-ish
Today’s symptoms sorted by the ACR 2016 criteria
Widespread pain, WPI = 11 of 15 areas: limb-Ache 8 (20%, stiff 15%, unstable walk 50%) + spine-pain 3 (20%), shoulder-girdles/hips 0
Symptom severity, SSS = severity 10 of 12: Fatigue 3 (85%), insomnia 3 (10%), fog 2 (20%), headache 1, GI 1 (40%), depression 0
Headaches Thursday and bit Friday evenings.
Triggers & resulting Symptoms
SLEEP (click for details): 8h42, up 6x (1h45, unnecessary) ✅, but ➔ Feeling ?80% well, Ache ?2 of 7 🧐, getting up: ?80%/2 ❌. Unnecessarily late ❌, unnecessarily long breaks ❌, bad boy. Esp. dangerous cos with high cortisol yesterday, it was harder to get back to sleep after the first long break. So this wasn't enough to get the flare/backlash down quick and I need more self-discipline.
cold shower p0 Sleep 23:20- ear plugs TEETH
1:02 15’ 80%/2/15% p0 st1 sip fw1’ air (sore throat) A4
2:40 32’ 70%/2/15% p0 st1 sip fw30’ air (sore throat)
3:40 18’ 70%/2/15% p0 st1 sip fw10’ air (heartburn) FCS#2
5:22 31’ 70%/2/15% p0 st1 sip fw1’ air (stomach burn/naueous) 6
7:17 4’ 70%/2/15% p1 st1 sip fw10’ air
9:03 5’ 70%/2/15% p0 st1 sip fw1’ air
-9:47 p0 st1 sip air (no knee) B2-4
Sum: 40+9h47-(15+32+18+31+4+5=)1h45 = 10h27-1h45 = 8h42, up 6x (1h45, unnecessary)
stools,
ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2 
.wondering if my energy is back up again, but yesterday evening warns me to be wary of doing too much in one go. Shops 2x20’, 2x2x5’ cycling, cat sitting, Feverish, unstable legs on shop stairs ➔ 70%/3 
ACTIONS ➔ PAINS: except: neck , GI: heartburn 
, constipation all day, then violent diarrhea at 17:00 , esophagus , jaw 0x5’’ , pee pain: 3xp1-2 see below
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. . Often have to cough a little recently.
Fibro & Touch:
Covid-danger:
Weather: Indoors , Outdoors , but a bit cold for me, for no one else.
Urinary diary: 22:30 p0 1:02 p0 2:40 p0 3:40 p0 5:22 p0 7:17 p1 9:03 p0 9:55 feel like p, but am delaying it a little till 11:00… had an urge while doing back exercises, now when up, now 2’ later so let’s go, hope for p0, no p1 it was, probably due to holding on a few times? But for starters I’ll still gave that (p1): . Changed the loo lid so I remember the diary next time… Whoa, 11:25 feeling the next urge (after 2 lots of supps & muesli) 12:10 p0 due to very firm stools 15:00 p1 after some bloating or something, maybe stools too firm? 16:00 I think similar? At least 17:00 p0 with an explosion 17:39 p1+p0+p0 17:55 S. boulardii 19:35 p1
I’m now wondering if I pee less in the daytime than at night…?
Treatments
Docs:
Chinese Acupuncturist - #25 on 21st (Sleep & +25% GABA helping.) Cortisol still seems up a bit, but the flare is pretty massive. Session #26 on 2nd.
SELF-PHYSIO (click for details): 86'
airing 5x2’, cold shower 2x(10’), cream fc/ey/hd/ft 0x1’, teeth 3x2’, HWB 0x3’, breath exercises 6x1’, Timing, hunchback-pillow 20’, Y. Nidra 0’, massage gun 0x3’, neck 1+ 3x1’, neck 2 0x1’, plantar/calf stretch 3x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, aloe vera 0x1’, twist-stretch 2x1’, yoga/stretching 3x1’.
Combine: next?
workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps June 22nd (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: GenF20+?? (HGH and amino acids); Alpha GPC = choline alfoscerate? B3 flush free? CoQ10 with evening meal from July 20th! (unstuffs nose) Run out of vitamin B2 (R-5-P) July 14th. Reducing P5P too. NEW IDEAS: Copper in psyllium. Copper suggested by verywellhealth, Hagmeyer and now Robbins. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, B2, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jul 22nd (>30 supps): ALA .2g, B2 0x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/20:05 A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon. Q10.
Meal - Gum -
/21:45 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/1:05 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
0 B1 “01:00” PF#5
/9:50 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/9:50 B3 “07:00” (-30’) Qc Rs#1 SAM-e
/9:50 B4 “07:00” EGCg + Fev/MSM + Sily +2The
0 DAO
11:30? C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, ?1x pine bark#2 + vit.D3 2-3/wk.
11:30? C3 “MEAL” .5gC#1 (0NAC)+PEA
Meal - Gum -
/14:15 C4 “11:00” (+2h/) gi#2 Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/15:45 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
Meal 15:00-15:45 Gum - tea
/19:05 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#?
+1Ro
plus S. boulardii - no, can’t find where they are…
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules), Jul 22nd
Pf: 1A1+1A2+1A3+1A4+1B1, B2:0A1+0C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: 0P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)
Development
‘Research’ today: No. Apart from ripping a product called Fibroprin apart for someone on a forum.
Lessons in self-care #379 Too lax with self-discipline at night, so “punishing” myself by first keeping away from forums & getting my act together with exercises etc.
Lessons in self-care #380 Yesterday evening off for 20’ (grass for guinea pigs and 1 shop) really was the limit, like I thought, started off pretty well but that was only a small energy spurt.
Reasons to be cheerful #383 Start today still feels OK.
Things I love about myself #67
- My food apparently minus broccoli…
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…