2022-07-30, Saturday - Energy 15% / Sleep 85% / Feeling 70%-ish
Today’s symptoms sorted by the ACR 2016 criteria
Widespread pain, WPI = 11 of 15 areas: limb-Ache 8 (30-40% - 0% when lying down, at least a while, stiff 25%) + spine-pain 3 (15%), shoulder-girdles/hips 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (85%), insomnia 3 (15%, feverish 60-30%), fog 2 (20%), headache 0, GI 1 (10%), depression 0
Triggers & resulting Symptoms
SLEEP (click for details): 9h45, up 7x (1h57) ✅, ➔ Feeling 70% well, Ache 3 of 7 ❌, getting up: 70%/3 ❌
p1 22:30 cold shower Sleep 22:52- ear plugs TEETH
0:19 8’ 70%/3/15% p2 st1 sip fw1’ A4
2:16 13’ 70%/3/15% p3 st1 sip fw10’
3:48 45’ 70%/3/15% p1 st1 sip fw20’ FCS
5:54 39’ 70%/2/15% p0 st1 sip fw20’ 6
7:37 4’ 70%/2/15% p1 st1 sip fw1’
8:38 4’ 70%/3/15% p0 st1 sip fw1’
9:48 4’ 70%/3/15% p0 st1 sip fw1’
-10:34 face, esp. eyes and body heavy and aching, mind sermi-alert. I spose time I got up all the same
B2-4
Sum: 1h08+10h34-(8+13+45+39+4+4+4=)1h57 = 11h42-1h57 = 9h45, up 7x (1h57)
ACTIVITIES (aim: 40% energy) ➔ ACHE: 70%/3-4 
, feverishness 60%, resting all the time doesn’t help, but at least doesn’t worsen to 60%/4-5, tried cycling, broke it off after 1’, ➔ 70%/3-4 …, don’t notice the feverishness much when resting though. Laid down in the garden for 40’ with the guinea pigs. Went to my organic grocer’s for 10’ on “speed” = cortisol in the evening to get a whole load of apples and almond milk, as well a few veggies. ➔ 70=80%/4-2
ACTIONS ➔ PAINS: 
except: neck GI: no heartburn (a little bit before midday and evening meal), only a bit of stomach, after not eating wholemeal bread in the evening , so now tried 1 slice of wholemeal gluten-free bread with sheep cheese, caused wind from 16:15-17:30…, but praps just needed to go. esophagus jaw x5’’ pee pain: 6xp1-2 , 1xp3 (see below)
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. . No problems after (evening: ) 3 olives, almond yogurt, no bread, 1 bit of dark chocolate, raisins, no mustard, no sheep cheese.
Fibro & Touch:
Covid-danger:
Weather: Indoors . Outdoors 
?
Urinary diary, click for details:
21:30 p0? 21:45 p0 22:25 p1 0:19 p2 2:16 p3 3:48 p1 5:54 p0 7:37 p1 8:38 p0 9:48 p0 11:15 p0-1 12:50 p0 . 13:48 urge… 14:20 succumbed p2 (I think due to delaying.) 16:40 p3 stronge urge, not delayed, but 2h20 break , 17:48 1st urge 17:55 2nd, stool urge, so that might explain the wind p0 ? p0?
Focal seizures: yesterday an aura of one in the cellar in the evening, looking for a gadget.
Treatments
Docs:
Chinese Acupuncturist - #25 on 21st (Sleep & +25% GABA helping.) Session #26 on 2nd. Cortisol still flowing…
SELF-PHYSIO (click for details): 65'
airing 2x2’, cold shower 2x(10’), cream fc/ey/hd/ft 0x1’, teeth 2x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 20’, Y. Nidra 0’, massage gun 0x3’, neck 1+ 1x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, aloe vera 0x1’, twist-stretch 0x1’, yoga/stretching 0x1’.
Combine: next?
workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps June 22nd (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: GenF20+?? (HGH and amino acids); Alpha GPC = choline alfoscerate? B3 flush free? CoQ10 with evening meal from July 20th! (unstuffs nose) Run out of vitamin B2 (R-5-P) July 14th. Reducing P5P too. NEW IDEAS: Copper in psyllium. Copper suggested by verywellhealth, Hagmeyer and now Robbins. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, B2, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jul 22nd (>30 supps): ALA .2g, B2 0x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/19:35 A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon. Q10.
Meal - Gum -
/21:05 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/0:20 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
0 B1 “01:00” PF#5
/10:50 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/10:50 B3 “07:00” (-30’) Qc Rs#1 SAM-e
/10:50 B4 “07:00” EGCg + Fev/MSM + Sily +2The
0 DAO
/11:15 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, ?1x pine bark#2 + vit.D3 2-3/wk.
/11:15 C3 “MEAL” .5gC#1 (0NAC)+PEA
Meal 10:55-11:15 Gum 11:15-
/13:45 C4 “11:00” (+2h/) gi#2 Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/15:40 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
Meal - Gum -
/18:00 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules), Jul 22nd
Pf: 1A1+1A2+1A3+1A4+1B1, B2:0A1+0C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: 0P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)
Development
‘Research’ today:
Yesterday, someone on other forums suggested that the vagal nerve and heartburn are connected. I found out that heartburn as well as sinus problems may be stimulated by the vagal nerve. One treatment idea was to minimize carbs. Today I had sinus problems without heartburn…
" > GERD has a direct impact on the vagus nerve
Now you’ve got me curious. From reading it up, it seems it’s all very hypothetical, not well proven, a hunch.
I’m also not sure which way round it might be, or if it is a vicious circle/cycle.
Two pages say it’s the vagus that impacts the stomach motility, building acid up. Interesting take on it.
The 3rd says that too, but that the acid again stimulates the vagus nerve, which can cause problems in sinuses, larynx & pharynx.
However the 1st page by a DO says reducing carbs will help, which I’ve done for decades.
Also I doubt GERD / all hyperacidity is caused by the vagus nerve.
But I’ll have a go at the vagus nerve exercises for this I was actually recommending to you… [image]
Spoiler: Sources & citations
your-heartburn-is-actually-a-neurological-problem by a US internist(?) called Nemechek DO,
"It seems the sequence of events surrounding carbohydrate toxicity unfolds as follows:
- Consume excessive amounts of carbohydrates for many months to years.
- Carbohydrates cause your autonomic nervous system to operate erratically.
- Insulin resistance develops with continued excessive carbohydrate consumption.
- Diseases such as diabetes, high blood pressure, gout, heart attacks or strokes follow after progressive worsening of insulin resistance.
Lower Your Carbohydrate Intake to Reverse Heartburn
It strikes some patients as overly simplistic to say that if you reduce your carbohydrate intake, your heartburn will be greatly reduced within a few weeks and you probably won’t need any more antacids within 1 month.
Fortunately for you, it is this simple.
I have my patient reduce their carbohydrate intake (all sugars and starches) intake to less than 100 grams per day to reverse their heart burn.
Not only does their heart burn get better but so does their diabetes, high blood pressure, gout, sleep apnea, bladder irritability, lightheadedness and erectile dysfunction.
Give it a try for a month and I know you’ll feel better than you have in a long time and you won’t be needing to take that expensive Prilosec, Protonix or Nexium any longer."
Vagus Nerve by Cleveland Clinic
Vagus Nerve And Neurogenic Inflammation: Their Role In GERD by Kurt Barret, DO:
"Thus regurgitation of digestive/intestinal contents into the lower esophagus can trigger vagal nerve response that results in tissues swelling, injury, scarring and mucus production in the paranasal sinuses as well as the larynx and pharynx without the affected tissues ever having come in direct contact with regurgitated digestive secretions. Artificial placement of acid into the lower esophagus is proven to result in inflammatory reaction of the paranasal sinuses.
Well… I actually found one preliminary study to support the GERD - sinus connection Gastroesophageal reflux disease and chronic sinusitis: in search of an esophageal-nasal reflex""
Well, thinking further down this route, it is ‘of course’ the case that I have an esophagus stricture called Schatzki ring, which may have been caused by decades of heartburn/GERD. But it seems too far fetched that my intermittent nostril / sinus problems come from that. My nostrils often but not close up, mostly in the second half of the night. My sinuses often burn since the jabs, which I can alleviate with more GABA, i.e. it’s much easier to attribute it to lowered serotonin caused probably by higher histamine (or cortisol from stress).
Association doesn’t mean causation. But interesting all the same. As I said, I’ll be keeping it in mind further…
Lessons in self-care #380 Resting strictly, bit of light movement, keeping it short.
Reasons to be cheerful #384 No pain when I’m lying down or cortisol overrides it.
Things I love about myself #68 Drive to make music again, even though no power.
- My food apparently minus broccoli…
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…