JayCS’s Fibro Blog

Symptoms & Treatments
932

2022-08-30, Tuesday - Energy 25% / Sleep 85% / Feeling 80%-ish

Successes:
Do supps new.
:trophy: Remembering twist-stretching before getting up (bed & acupuncture).
:zap: Clear accumulated backlash from 2 days.
:zap: Clear cortisole-y reaction to the acupuncture (feverish, later chattering).

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (20-40%, stiff 10%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (75%), insomnia 3 (15%), fog 2 (15%), headache 0, GI 1 (15%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 9h06, up 8x (50') ✅, but ➔ Feeling 80-90% well, Ache 1 of 7 ✅, getting up: 80%/2 ✅

cold shower p2 Sleep 23:00-
1:20 5’ 90%/1/10% p2 st1 sip fw1’ air
2:10 5’ 90%/1/10% p0 st1 sip fw1’ air (none of the rest)
3:50 5’ 90%/1/10% p0 st1 sip fw1’ air
3:58 11’ 80%/1/20% p0 st1 sip fw1’ (sinuses) (left eyebrow) LBU → FCS#2, first thinking it hadn’t worked, chatterbrain, but then was gone… gel.
5:17 4’ 80%/1/10% p0 st1 sip fw1’ gel sinuses
5:41 8’ 90%/1/10% p0 st1 sip fw1’ chatterbrain, Yo.Ni not helping → FCS#3 ear plugs sinuses
7:50 6’ 90%/1/10% p0 st1 sip fw1’ Wife said we’d forgotten Harley in the box instead of cage, so he had no food.
8:36 6’ 90%/1/10% sip fw1’ guinea pigs 6-8h without food/water, 24h max. phew
-8:56 B2-4
Sum: 1h+8h56-(5+5+5+11+4+8+6+6=)50’ = 9h56-50 = 9h06, up 8x (50’)

ACTIVITIES (aim: 40% energy) ➔ ACHE: Pain from 2 to 4 in the 2nd TT game, showed me that I hadn’t rested enough yesterday (TT 5:1, gardening, cycle-walk…) after Sunday’s gig, so stopped TT at 3:1 or even 2:2, can’t remember ➔ 80%/4 :x:, breath-holding helped ➔ 80%/2-3 :white_check_mark:, then some forum-work stressed me considerably ➔ 60%/4 :x:, then stopping that ➔ 80%/2-3 :white_check_mark: and short cycle and acupuncture at 16:00 - I could move well after, but a very cortisole-y effect, sweaty-feverish in face and body, so I knew I shouldn’t use the energy, kept movement and stress down. In the evening I was surprisingly chatterboxy, showing sleep will be tough ➔ 80%/2-3 :white_check_mark:
ACTIONS ➔ PAINS: :white_check_mark: except: neck :white_check_mark:, GI :white_check_mark:, esophagus:a little in the evening, massaging a bit :x: jaw 1x5’’ :white_check_mark:, pee pain: 22:00 23:00 1:20 3xp2, 22:25 p1 :white_check_mark:, kept movement down.
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Except lack of real energy as ever. :x:. I want to try a few more histamine risks now.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:, except of course the heat.

Treatments

Docs:
Chinese Acupuncturist - #27 on 30th :white_check_mark: (Sleep & +25% GABA helping.) Good again, but obviously cortisole-y, have to watch out. Session #28 on 8th.

SELF-PHYSIO (click for details): 2h27

:white_check_mark: airing 5x2’, cold shower 3x(10’), cream/oil fc/ey/hd/ft 1x1’, teeth 2x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 40’, Y. Nidra 30’, massage gun 3x3’, neck 1+ 2x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 0’, belly 0’, back 8’, !!aloe vera 0x1’, twist-stretch 3x1’, yoga/stretching 2x1’. breath-hold 12’,
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 22nd (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: OK without PF#4 but not without GABA #3, so I'm trying to divide that up between evening (A3, best before 21:30?) and morning (C1-batch). Taking B3 flush free since 25th. (And luteolin for quite a time now, forgot to say, maybe after the hols.) Got, but not yet taking olive oil extract, fisetin, pure ATP & Alpha GPC = choline alfoscerate. Continuing B2 (R-5-P) when I get round to it. Copper (gluconate), pending low bloods. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jul 22nd (>30 supps): ALA .2g, B2 0x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/20:15 A1-2A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon. Q10.
Meal -21:00 Gum -
/21:40 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
/9:05 B2-4 “07:00” +ALA+1x pine bark, (teeth) +1Ro, Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The
Meal - Gum -
/10:15 C1-3 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, ?1x pine bark#2. .5gC#1 (0NAC)+PEA + Rutin + vit.D3 2-3/wk.
/14:15 C4 “11:00” (+2h/) gi#2 Ellagic acid#2
0 Meal - Gum - 0 DAO (D1) “12:30” 0psyllium
/!17:30 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
/19:30 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jul 22nd

Pf: 1A1+1A2+1A3+1A4+1B1, B2:0A1+0C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: 0P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

‘Research’ today: No.
Lessons in self-care #411 Watch out for cortisol.
Reasons to be cheerful #414 Acupuncture seems to work again, new light bulbs! :zap:
Things I love about myself #91 Still try to help on forums despite occasional vampires :woman_vampire:.

Tomorrow's template

2022-08-31, Wednesday - Energy ?15% / Sleep ?80% / Feeling ?70-80%-ish

Successes:
:trophy:
Learnt:
:student:

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (?20%, stiff ?15%) + spine-pain 3 (?10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (?75%), insomnia 3 (?15%), fog 2 (?15%), headache 0, GI 1 (?20%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): h ✅, but ➔ Feeling ?80% well, Ache ?2 of 7 ✅, getting up: ?80%/2 ✅

?cold shower ?p0 Sleep 22:?15- ear plugs
TEETH
5’ 90%/1/10% p0 st1 sip fw1’
5’ 90%/1/10% p0 st1 sip fw1’
5’ 90%/1/10% p0 st1 sip fw1’

COPY: 5’ ?80%/?2/?15% ?p0 ?st1 ?sip ?fw1’ air cream gel (nostrils) (sinuses) (sore throat) (stomach nauseous) (ear plugs) FCS A4 B1

  • stools, B2-4
    Sum:
    Memo: Need to ask mates for coriander

ACTIVITIES (aim: 40% energy) ➔ ACHE: :x: ➔ ?80%/?3 :white_check_mark:
?? TT, cycle, mask, work, kids,
ACTIONS ➔ PAINS: :white_check_mark: except: neck :white_check_mark:? GI :white_check_mark:? , esophagus :white_check_mark:? jaw x5’’ :white_check_mark:? pee pain: 0xp1-2 :white_check_mark:?
(lie, sit, stand, arms up, cycle, walk, mask??)
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Except lack of real energy as ever. :x:. Hazelnuts? Tofu?
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:, except of course the heat.

Treatments

Docs:
Ought to phone cardio cos of the remaining bloods?
Chinese Acupuncturist - #27 on 30th :white_check_mark: (Sleep & +25% GABA helping.) Still good. Session #28 on 8th.

SELF-PHYSIO (click for details): '

:white_check_mark: airing 5x2’, cold shower 3x(10’), cream/oil fc/ey/hd/ft 1x1’, teeth 3x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 20’, Y. Nidra 20’, massage gun 0x3’, neck 1+ 1x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch 0x1’, yoga/stretching 0x1’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 22nd (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: OK without PF#4 but not without GABA #3, so I'm trying to divide that up between evening (A3, best before 21:30?) and morning (C1-batch). Taking B3 flush free since 25th. (And luteolin for quite a time now, forgot to say, maybe after the hols.) Got, but not yet taking olive oil extract, fisetin, pure ATP & Alpha GPC = choline alfoscerate. Continuing B2 (R-5-P) when I get round to it. Copper (gluconate), pending low bloods. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jul 22nd (>30 supps): ALA .2g, B2 0x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
A1-2A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon. Q10.
Meal -21:00 Gum -
A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
B1 “01:00” PF#5
B2-4 “07:00” +ALA+1x pine bark, (teeth) +1Ro, Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The
Meal - Gum -
C1-3 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, ?1x pine bark#2. .5gC#1 (0NAC)+PEA + Rutin + vit.D3 2-3/wk.
C4 “11:00” (+2h/) gi#2 Ellagic acid#2
0 Meal - Gum - 0 DAO (D1) “12:30” 0psyllium
D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Aug 29th

Pf: 1A1+1A2+1A3, B2:0A1+0C2 C:C3+D3 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,C1c2,D2, Glu: A3,c1 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: 0A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B2: ALA+1 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+B3 (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)

Development

‘Research’ today: No.
Lessons in self-care #412
Reasons to be cheerful #415
Things I love about myself #92