2022-08-31, Wednesday - Energy 25% / Sleep 85% / Feeling 85%-ish
Successes:
Yoga Nidra & prayer fixed needle pain during acupuncture in 1’.
30’’ shower cd’ve worked better, irritated skin.
15’’ shower later didn’t irritate skin.
Still pee pain after reduced evening GABA & glutamine, so try even less.
Reducing GABA for pee pain may end in more seizures?
1 good thing about the next jab cd be less sleep breaks again.
Is it worth trying the antihistamine again for sleep breaks?
Analyzing the pain curve during & after table tennis.
Only one more game when the full Ache comes up.
Yoga Nidra during & immediately after shower before thoughts come up again.
Learnt:
Today’s symptoms sorted by the ACR 2016 criteria
Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10-50%, stiff 15%) + spine-pain 3 (15%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (75%), insomnia 3 (15%), fog 2 (15%), headache 0, GI 1 (10%), depression 0
Triggers & resulting Symptoms
SLEEP (click for details): 9h16, up 8x (1h14) ✅, but ➔ Feeling 90% well, Ache 1 of 7 ✅, getting up: 90%/1 ✅
cold shower p1 p0 Sleep 22:45- ear plugs
TEETH
0:00 5’ 90%/1/10% p4 st1 sip fw1’ air
0:25 5’ 90%/1/10% p3 st1 sip fw1’ air
1:30 10’ 90%/1/10% p2 st1 sip fw5’ air
3:00 5’ 90%/1/10% p0 st1 sip fw1’ cold, top on.
3:24 7’ 90%/1/10% p0 st1 sip fw1’ FCS#2 (but 30’’ irritated skin)
5:00 30’ 90%/1/10% p0 st1 sip fw1’ 6
6:07 8’ 90%/1/10% p0 st1 sip fw1’ FCS#3
7:42 4’ 90%/1/20% p0 st1 sip fw1’ (nostrils)
-9:15 stools, B2-4 p0
Sum: 1h15+9h15-(5+5+10+5+7+30+8+4=)74’ = 10h30-1h14 = 9h16, up 8x (1h14)
ACTIVITIES (aim: 40% energy) ➔ ACHE: TT 9:45-10:30, 2:2, Ache starting before the 4th game (before breakfast) ➔ 80%/5 (cos fibro-‘normal’) resting 10:40 ➔ 80%/5
, 10:50 ➔ 80%/4
11:10 ➔ 80%/3-4
11:20 ➔ 80%/3 12:35 ➔ 80%/2
So 2 hours. Then carried on resting, cos I did feel cortisole-y, maybe still from the acupuncture, later another 35’ TT
2:1 (against an ex-club player) 16:00-35, then 30’ talk ➔ 80%/3-4
and rest again >2h, so ➔ 80%/2
.
ACTIONS ➔ PAINS: except: neck
, GI
, esophagus
, jaw x5’’
, pee pain: p4,p3,p2 0:00-1:30, rest 0xp1-2
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever.
. 200ml vegan Lassi
: no problems. Hazelnuts in muesli 10:45-10:50. 11:20 burning skin on right forearm a little. 11:50 both arms a little.
Fibro & Touch:
Covid-danger:
Weather: Indoors Outdoors
.
Treatments
Docs:
Tooth coming up on 6th.
Ought to phone cardio cos of the remaining bloods?
Chinese Acupuncturist - #27 on 30th (Sleep helping, trying to reduce GABA again) Still good. Session #28 on 8th.
SELF-PHYSIO (click for details): 110'
airing 5x2’, cold shower 3x(10’), cream/oil fc/ey/hd/ft 1x1’, teeth 3x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 20’, Y. Nidra 20’, massage gun 0x3’, neck 1+ 1x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 0’, belly 0’, back 8’, !!aloe vera 0x1’, twist-stretch 0x1’, yoga/stretching 0x1’, breath-hold 12’.
Combine: next?
workout 7’, horse stance 1’, balance roll standing 5’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps June 22nd (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: PF now 3, trialing reducing GABA. B3 flush free since 25th. Got, but not yet taking olive oil extract, fisetin, pure ATP & Alpha GPC = choline alfoscerate. Continuing B2 (R-5-P) when I get round to it. Copper (gluconate), pending low bloods. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, B2, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jul 22nd (>30 supps): ALA .2g, B2 0x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/20:10 A1-2A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon. Q10.
Meal -21:00 Gum -
/22:15 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
/9:15 B2-4 “07:00” +ALA+1x pine bark, (teeth) +1Ro, Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The
Meal 10:40-11:00 Gum 0-
grrr /13:05 C1-3 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, ?1x pine bark#2. .5gC#1 (0NAC)+PEA + Rutin + vit.D3 2-3/wk.
/17:35 C4 “11:00” (+2h/) gi#2 Ellagic acid#2
0 Meal 14:55- Gum - 0 DAO (D1) “12:30” 0psyllium
/15:30 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
/17:35 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules), Aug 29th
Pf: 1A1+1A2+1A3, B2:0A1+0C2 C:C3+D3 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,C1c2,D2, Glu: A3,c1 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: 0A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B2: ALA+1 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+B3 (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)
Development
I just remembered that as well as going dancing less and less pre-diagnosis same went for playing soccer.
‘Research’ today: No.
Lessons in self-care #412 Nothing much but twice TT, phone calls, bits of cycling.
Reasons to be cheerful #415 Next CoV-jab might decrease sleep breaks…
Things I love about myself #92 Fought myself up from nowhere.
- My food apparently minus broccoli…
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries