JayCS’s Fibro Blog

Symptoms & Treatments
935

2022-08-02, Friday - Energy 17% / Sleep 85% / Feeling 70%-ish

Successes: :trophy: ATP didn’t work.
Learnt:
:student: Talks about fascial counterstrain, increasing energy and environmental triggers see ‘research’.
:student: ATP can’t really work, just I’d thought, but what the heck.

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (20%, stiff 15%) + spine-pain 3 (20%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (83%), insomnia 3 (15%), fog 2 (20%), headache 0, GI 1 (10%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 9h45, up 6x (64') ✅ ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 70%/2-3 ❌, all very deep, and still 22:30 was too late, cos I'll usually need +1h

cold shower p0-1 Sleep 22:40- ear plugs TEETH
0:00 9’ 80%/2/20% p0-1 st1 sip fw1’ air
1:20 7’ 80%/2/20% p0-1 st1 sip fw1’ air
3:00 7’ 80%/2/20% p0 st1 sip fw1’ air
4:30 10’ 80%/2/20 → 90%/1/10% p0 st1 sip fw1’ FCS#2 forgot Yo.Ni. Took a whole while to ‘come down’.
6:17 18’ 80%/2/20% p0 st1 sip fw1’ air 6 cream nose
8:38 13’ 60%/2/10% p0 st1 sip fw1’ air B2-4 hard stools (nostrils)
-9:29
Sum: 1h20+9h29-(9+7+7+10+18+13=)64’ = 10h49-64’ = 9h45, up 6x (64’) Cream feet?!

ACTIVITIES (aim: 40% energy) ➔ ACHE: 70%/3 :x:, resting, bit of pumping up a bike, gardening ➔ 75%/2 :x:, bit better, TT 4:0 ➔ 70%/3 :x:, resting & music practice ➔ 70-80%/2-3 :x:. So the ATP was if at all only slightly positive after a few hours, but didn’t increase energy in any way.
ACTIONS ➔ PAINS: :white_check_mark: except: neck :white_check_mark:, GI: 16:35 stools soft from ATP? :white_check_mark:, esophagus :white_check_mark:, jaw x5’’ :white_check_mark:, pee pain: 14:00 p2-3: cortisol from ATP? 16:35 p1-2 :white_check_mark:
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:. Hazelnuts in muesli regularly isn’t causing problems.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.

Treatments

Docs:
Tooth coming up on 6th. :face_with_monocle:
Ought to phone cardio cos of the remaining bloods?
Chinese Acupuncturist - #27 on 30th, after 28 days :white_check_mark: (Sleep helping, trying to reduce GABA again) Still good. Session #28 on 8th.

SELF-PHYSIO (click for details): 92'

:white_check_mark: airing 3x2’, cold shower 2x(10’), cream/oil fc/ey/hd/ft 2x1’, teeth 3x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 20’, Y. Nidra 10’, massage gun 0x3’, neck 1+ 0x1’, neck 2 0x1’, plantar/calf stretch 0x1’, acupressure 2x1’, palpate 1’, belly 3’, back 15’, !!aloe vera 0x1’, twist-stretch 2x1’, yoga/stretching 2x1’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 22nd (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: ATP at 10:50 first did not make a difference at all to my lowered energy (down to 15% instead of 25%). Getting moving at 12:30 was OK (20%, but Ache of 2-3). at 14:00 I'm starting to get uncomfortably cortisole-y, which is causing a further dysbalance, feverish and itchy skin, then bladder pain & diarrhea, see under '*research*' for the side effects. Playing around with GABA/glutamine dosages & times to see if I can influence the rest pee pain better. Taking 1x B3 flush free since 25th, 2x from 31st (then check homocystein). Got, but not yet taking olive oil extract, fisetin, pure ATP & Alpha GPC = choline alfoscerate. Continuing B2 (R-5-P) when I get round to it. Copper (gluconate), pending low bloods. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Aug 31st (31 supps): ALA .2g, B2 0x50mg, B3/Nia 50g, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Ga: now 4x.6g=2.4g, Gi 3x168mg, Glu: down to 0.6g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf down to 3x.35g, pine bark down to 1x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, no Qc 0x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Aug31st (before: see the reference post)
/19:45 A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal -21:00 Gum -
/22:15 A3 “21:00” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
B2-4 “07:00” +ALA+1x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The
Meal 11:00-11:20 Gum -
//11:10 C1-3 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (0NAC)+PEA + Rutin + vit.D3 1/wk.
/13:50 C4 “11:00” (+2h/) gi#2 1 Ellagic acid#1
Meal 15:40- Gum - (D1) “12:30”
/16:00 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
forgot… D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Aug 29th

Pf: 1A1+1A2+1A3, B2:0A1+0C2 C:C3+D3 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,C1c2,D2, Glu: A3,c1 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: 0A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B2: ALA+1 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+B3 (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)

Development

‘Research’ today: No.
The most common adverse reactions of adenosine injected (not ATP, and not oral) are flushingemphasized text, chest discomfort, facial flushing, headache, throat/neck/jaw discomfort, gastrointestinal discomfort, and lightheadedness/dizziness.[Ref]
ATP in the body is strongly controlled and quickly breaks down to adenosine, which only increases blood flow etc (maybe that’s the burning), plus studies found hardly any difference, if at all at the end of longer workouts, so breakingmuscle doesn’t recommend it.
“you make and use about your own body weight of ATP/day (in the range of 1 gram/sec). The amount you could reasonably inject would be trivial.” https://www.quora.com/What-would-the-effect-of-injecting-pure-ATP-be-on-the-body-energy-levels
Question: “Could we ‘eat’ ATP molecules and get energy from them?”
Interesting question! It appears that this has been studied as some athletes have tried taking “ATP supplements.”
This study looked at blood ATP concentrations after administration of ATP via enteric coated pellets (because ATP undergoes rapid hydrolysis at stomach pH), and by naso-duodenal tube (bypassing the stomach).
The results showed that ATP concentrations in the blood were not increased, but the final catabolic product (uric acid) was elevated. This would seem to indicate that some metabolite of ATP was absorbed and then further metabolized, although other studies have shown no ergogenic (performance-boosting) effects.
In short, ATP is not orally bioavailable. In particular, if you ingest ATP without an enteric coating to protect it from the low pH of the stomach, it will be rapidly hydrolyzed there.
Adenosine 5’-triphosphate (ATP) supplements are not orally bioavailable: a randomized, placebo-controlled cross-over trial in healthy humans.

Kellie Barnes about fascial counterstrain on the https://mastcellactivation.byhealthmeans.com summit.
talks about “tender points” not directly meaning just the old fibromyalgia ones, altho in the context of central sensitisation.
Mould…
Eleuthero as adaptogen… (I think from Hirsch’s talk?)