JayCS’s Fibro Blog

Symptoms & Treatments
937

2022-09-04, Sunday - Energy 20% / Sleep 80% / Feeling 70-80%-ish

Successes:
:zap: Twist-stretch limbs at night, not just torso to reduce muscles seizing up?
:zap: Put two small
Learnt: :student: ?

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10-30%, stiff only 10%!) + spine-pain 3 (15%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (80%), insomnia 3 (20%), fog 2 (15%), headache 0, GI 1 (10%), depression 0

I think a lot of this was cortisol before the gig.

Triggers & resulting Symptoms

SLEEP (click for details): 9h07, up 8x (1h18) ✅ ➔ Feeling 90% well, Ache 1 of 7 ✅, getting up: 80%/2 ✅

cold shower p0 Sleep 22:45- ear plugs itchy left toes = new socks? TEETH
23:40 10’ 90%/1/10% p0 st1 sip fw6’ air stools (ear plugs) A3
0:45 5’ 90%/1/10% p0 st1 sip fw1’ air
2:35 15’ 90%/1/10% p0 st1 sip fw10’ itchy left toes = new socks?
3:02 9’ 90%/1/10% p0 st1 sip fw1’ air FCS#2
4:49 19’ 90%/1/10% p0-1 st1 sip fw1’ 6
7:23 7’ 90%/1/10% p0 st1 sip fw1’ B2-4 dozing/YoNi
8:06 12’ 90%/1/?15% ?p0 st1 sip fw1’ air (ear plugs) FCS#3 stools dozing/YoNi
8:58 1’ dozing/YoNi
-9:10
Sum: 1h15+9h10-(10+5+15+9+19+7+12+1=)78’ = 10h25-1h18 = 9h07, up 8x (1h18)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 70%/4 :x:, lots of rest ➔ 80%/2, even after the service and wearing and singing with mask in the service was OK :white_check_mark:, just worried and excited and in turmoil.
ACTIONS ➔ PAINS: :white_check_mark: except: neck :white_check_mark:, GI :white_check_mark:, esophagus :white_check_mark:, jaw x5’’ :white_check_mark:, pee pain: 3xp2-4 in the afternoon, despite early GABA at 14:00, why? rest 0xp1-2 :x:/:white_check_mark:
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:. Burning after taking the afternoon supps early at 14:00 (which include vitamin B3 flush free, I was thinking, but that’s also ) and then during eating normal veggies.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.

Treatments

Docs:
Tooth coming up on 6th. :face_with_monocle:
Ought to phone cardio cos of the remaining bloods?
Chinese Acupuncturist - #27 on 30th, after 28 days :white_check_mark: (Sleep helping, trying to reduce GABA again) Still good. Session #28 on 8th.

SELF-PHYSIO (click for details): 104'

:white_check_mark: airing 4x2’, cold shower 3x(10’), cream/oil fc/ey/hd/ft 1x1’, teeth 3x2’, HWB 0x3’, breath exercises 2x1’, Timing, hunchback-pillow 20’, Y. Nidra 20’, massage gun 0x3’, neck 1+ 0x1’, neck 2 0x1’, plantar/calf stretch 2x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 1x1’, twist-stretch 0x1’, yoga/stretching 0x1’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 22nd (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Pure ATP 400mg in liquid was bad, so at most encapsulate and less. Playing around with GABA/glutamine dosages & times to see if I can influence the rest pee pain better. Taking 1x B3 flush free since 25th, 2x from 31st (then check homocystein). Got, but not yet taking olive oil extract, fisetin & Alpha GPC = choline alfoscerate. Continuing B2 (R-5-P) when I get round to it. Copper (gluconate), pending low bloods. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Aug 31st (31 supps): ALA .2g, B2 0x50mg, B3/Nia 50g, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Ga: now 4x.6g=2.4g, Gi 3x168mg, Glu: down to 0.6g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf down to 3x.35g, pine bark down to 1x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, no Qc 0x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Aug31st (before: see the reference post)
15:00 at 19:00 or so
21:00 or so A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal -21:00 Gum -
/23:50 A3 “21:00” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
/7:25 B2-4 “07:00” +ALA+1x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The
Teeth 9:27 Meal 9:30- Gum -
/9:25 C1-3 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (0NAC)+PEA + Rutin + vit.D3 1/wk.
/12:0 C4 “11:00” (+2h/) gi#2 1 Ellagic acid#1
0 Meal - Gum - (D1) “12:30”
/14:00 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
/17:10 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Aug 29th

Pf: 1A1+1A2+1A3, B2:0A1+0C2 C:C3+D3 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,C1c2,D2, Glu: A3,c1 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: 0A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B2: ALA+1 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+B3 (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)

Development

‘Research’ today: No.
Lessons in self-care #414 Ahhh, why do I always worry so much…
Reasons to be cheerful #417 Gig was beautiful & worked out in the end.
Things I love about myself #94 Apparently I can enchant people with my piano variations and arpeggios… now I’ve got to digest that myself…