JayCS’s Fibro Blog

2022-09-09, Friday - Energy 7% / Sleep 85% / Feeling 80%-ish

Gotta focus on keeping the jaw pain = inflammation down.

Successes:
:zap: Why do I feel a bit better in the last 1h of the day? Is it the A1-2 supps, meaning I should advance them?
:zap: Praps it was the fumes of the treatment (e.g. NaHCl).
:zap: A forum post says prepare for dentist with Benadryl or similar
:ambulance: :soon: Bed “before” 10.
:ambulance: :soon: Test pak choy for burning once tooth is thru.

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (20%, stiff 15%) + spine-pain 3 (20%), shoulder-girdles/hips 0 chest / abdomen / jaw 1
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (92%), insomnia 3 (15%), fog 2 (15%), headache 0, GI 1 (10%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 9h42, up 8x (1h10) 🧐✅ ➔ Feeling 70-80% well, Ache 1-2 of 7 ✅, getting up: 70%/2 ✅

cold shower p3 Sleep 22:05- ear plugs
TEETH
23:10 5’ 80%/1/10% p2 st1 sip fw1’ air A3 (tooth, pillows)
23:45 5’ 80%/1/10% p0 st1 sip fw1’ air (tooth, pillows)
1:35 12’ 80%/1/10% p0 st1 sip fw10’ air (tooth, pillows)
2:02 9’ 80%/1/20% p0 st1 sip fw3’ FCS#2 (tooth, pillows)
3:55 5’ 70%/1/20% p0 st1 sip fw1’ air UBU (tooth, pillows)
4:10 18’ 70%/1/20% p0 st1 sip fw8’ air FCS#3 UBU (tooth, pillows)
6:35 6’ 70%/1/20% p1 st1 sip fw1’ air
7:35 10’ 70%/1/20% p0 st1 sip fw1’ air FCS#4 B2-4
FCS A4 B1
-8:57 stools
Sum: 1h55+8h57-(5+5+12+9+5+18+6+10=)1h10 = 10h52 -1h10 = 9h42, up 8x (1h10)
Memo: Need to ask mates for coriander

ACTIVITIES (aim: 40% energy)ACHE: 80%/2, before, during and after acupuncture. Phoning / talking was often tough on the jaw. :white_check_mark:
ACTIONSPAINS: :white_check_mark: except: neck :white_check_mark:, GI :white_check_mark:, esophagus :white_check_mark:, jaw 5h :white_check_mark:, pee pain: 8xp2 :cross_mark: lying & sitting: back ache. :cross_mark:
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.

Treatments

Docs:
Tooth on 6th. :face_with_monocle:
Phoned cardio on 8th cos of the remaining bloods, e.g. copper, B12, she’ll be phoning back.
Immunologist via studies?
Chinese Acupuncturist - #28 on 9th, after 28 days :white_check_mark: Still good. Session #29 on 23rd.

SELF-PHYSIO (click for details): 2h12

:white_check_mark: airing 5x2’, cold shower 4x(10’), cream/oil fc/ey/hd/ft 0x1’, teeth 3x2’, HWB 1x3’, breath exercises 3x1’, Timing, hunchback-pillow 20’, Y. Nidra 10’, massage gun 0x3’, neck 1+ 0x1’, neck 2 0x1’, plantar/calf stretch 0x1’, acupressure 2x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch 0x1’, yoga/stretching 0x1’. breath-hold 2x12’,
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Sep 5th (32 supps): Supp costs:~364€/m (Sep 8th) CHANGED: From 8th on I'm adding the olive leaf extract low (100mg) and slow (but +100mg daily, not weekly). Boosting some things from 7th on for tooth. Trying 1x150mg alpha GPC for fatigue from Sep 5th (recommendation on a forum), can add a few when I'm safe. Pure ATP 400mg in liquid was bad, so at most I may encapsulate & start with less, 100mg. Can't explain pee pain on Sep 4th/5th unless additional stress from a gig. Taking 1x B3 flush free since 25th, 2x from 31st (then checking homocystein). Got, but not yet taking olive oil extract, fisetin. Continuing B2 (R-5-P) when I get round to it. Copper (gluconate), pending low bloods. New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Sep 5th (32 supps): ALA .2g, alpha-GPC 1x150mg, B2 0x50mg, B3/Nia 50g, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Ga: now 4x.6g=2.4g, Gi 3x168mg, Glu: down to 0.6g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf down to 3x.35g, pine bark down to 1x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, no Qc 0x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Sep 5th (before: see the reference post)
/20:40 A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal -21: Gum -
/21:55 23: A3 “21:00” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
/7:40 B2-4 “07:00” +ALA+1x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The
Meal 10:-: Gum 10:-11:
/11:00 C1-3 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (0NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC.
/14:55 C4 “11:00” (+2h/) gi#2 1 Ellagic acid#1
0 Meal - Gum - (D1) “12:30”
/16:30 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
/18:30 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Sep 5th

Pf: 1A1+1A2+1A3, alpha GPC:C2. B2:0A1+0C2 C:C3+D3 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,C1c2,D2, Glu: A3,c1 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: 0A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B2: ALA+1 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+B3 (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)

Development

‘Research’ today: No.
Lessons in self-care #417 Only resting and breath-holding exerises.
Reasons to be cheerful #420 Acupuncture didn’t harm.
Things I love about myself #96 Easy to please.