JayCS’s Fibro Blog

2022-10-05, Wednesday - Energy 17% / Sleep 85% / Feeling 85%-ish

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11-12 of 19 areas: limb-Ache 8 (10%, stiff 10%) + spine-pain 3 (10%), shoulder-girdles/hips 0-1 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (83%), insomnia 3 (15%), fog 2 (10%), headache 0, GI 1 (10%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 8h38, up 4x (64'), deep 7h, deep doze 1.5h ✅ ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. Nostrils 10% stuffy 10% of the night.

cold shower p0 teeth Sleep 23:05- Why not 21:45? Work? No, laxness. Too churned up, best start with YoNi. And don’t repeat!
0:20 40’ 80%/2/10% p1 st1 sip fw1’ deep air 6 A4
3:20 5’ 80%/2/10% p1 st1 sip fw1’ deep air mumijo gel
5:35 4’ 80%/2/10% p0 st1 sip fw1’ deep air gel
7:20 15’ 80%/2/10% p0 st1 sip fw1’ deep air nostrils 10%/10% stools firm. work. ear plugs. Ally’s YoNi 1h25. bit hungry.
-8:47 B2-4 ’ in sun, stools firm?
Sum: 55+8h47- (40+5+4+15=)64’ = 9h42-64’ = 8h38, up 4x (64’), deep 7h, deep doze 1.5h

ACTIVITIES (aim: 40% energy)ACHE: TT only managed 2:1 ➔ 70%/3 :cross_mark:, and after I still continued with various “errands”, so it stayed like that ➔ 80%/3 :white_check_mark:, unless I rested again a while ➔ 80%/3.
ACTIONSPAINS: :white_check_mark: except: neck :white_check_mark:, GI :white_check_mark:, esophagus :white_check_mark:, jaw x5’’ :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:.
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.

Treatments

Docs:
Dentist again on 20th after treatment on 6th brought energy down for 8+ days… Pain down in a few hours this time (but only due to strict rest), however energy again down to 5-10% for over 2 weeks, probably due to the phosphate deficiency too.
Chinese Acupuncturist - #29 on 10th, after 14 days :white_check_mark: Still good - would be 20-25% energy if it weren’t for the tooth treatments (& the phosphate deficiency?). Session #30 on 7th.

SELF-PHYSIO (click for details): 2h48 (YoNi 1h25)'

:white_check_mark: airing 5x2’, cold shower 1x(10’), warm shower 0x(10’), cream/oil fc/ey/hd/ft 1x1’, teeth 4x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 10’, Y. Nidra 1h25, massage gun 0x3’, neck 1+ 0x1’, neck 2 0x1’, plantar/calf stretch 2x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch 0x1’, yoga/stretching 0x1’, sun 5x5’, rainy sky x5’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Oct 3rd (46 supps since mid-Sept): Supp costs:~394€/m (Oct 2nd, checked several prices). CHANGED 1st: Increased carnitine to 4g/d for lipids, esp. triglycerides. Flushing B3 at 3x150mg for another while before increasing. B2 increased, see if the next bloods are OK. Praps trying ATP again, encapsulated, since my phosphate is deficient. New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, Cu, NAC 1*.5g, Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Oct 2nd (46 supps, all new and re-visited ones now counted): ALA .2g, alpha-GPC 1x150mg, apigenin 1x50mg, B2 2x100mg, not going down to 50mg, B3/Nia 3x150g & B3 flush free 2x400mg, B12 0x5mg/4m, C 2x.5g, Cr 8x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2x.2g (+43mg vit. C), eleuthero 2, Fev .4g (+.2g MSM), Fis: 1x196mg. Ga: now 3x0.3g+2x.6g=2.1g, Gi 3x168mg, Glutamin: down to 0.6g, Glutathione 2x250mg, Hon (2%)x2x.4g=16mg, huperzia 1x0.2mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, Mag threo “0.6g”, monk’s fruit 0.1g, mumijo 1x0.2g, myo-inositol 1x1g/2d, NADH 1x, olive leaf extract 2x.75, P5P 0x27mg, PEA 1x0.4g Pf 3x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Rutin: 1x522. Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Oct 3rd
19:30 “18:45” myo-inositol (even evenings) + teeth
19:45 “19:00” A1/2 PF#1+2 1x300mg GABA Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & Qc#1. Meal: 1xHon. monk’s fruit. CoQ10.
Meal 20:30-21:00
/22:55 “21:00” pre-A3 agigenin 1h before bedtime + teeth
/22:00 “21:45” A3 PF#3 300mg GABA & .6glu & 1Lut (slp!) & Qc#2 1xHon + mag threo. 0 Rupafin.
/0:20 “23:00” A4 300mg GABA + teeth
/3:20 “4:00” B5 mumijo
/08:50 B1-4 ’ in sun “07:00” ALA, 2x pine, 1Ro, Qc#3 Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The +Fisetin. 2xNADH.+Rut.
/9:40 Meal 5’ overcast 10:-:
/10:35 5’ overcast C1-4 “MEAL!” 3!Cr#2 .6GABA#4, gink#1, 0 Zn, mag gly, 1x pine bark#2. .5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC. (C1:)400mg, vit.B2 (actually 100mg for 2 weeks, then 50mg, but I haven’t got much…). 2x eleuthero. 1x hup. OlivLeaf#1
/10:40 “after muesli” C5 glutathion
/13:15 “11:00” D1 (ex-C4) + Teeth (+2h/) gi#2 1 Ellagic acid#1
14:10 “14:00” 0 Meal 15’ in sun
14:30 “14:15” D2/3 5’ in sun .5gC#2 , 3!Cr#3, .6GABA#5, gink#3 OlivLeaf#2
/14:35 “after lunch” D3+ glutathion
/15:45 teeth
/16:55 18: in sun D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Oct 3rd

Pf: 1A1+1A2+1A3, alpha GPC:C2. B3f-f: C3,D3. B3f: A2,C3,D3. C:C3+D3 8Cr: 2A1+3C1+3D2, Ell: D1(ex-C4)+D4. 4-5xGa: a2,a3,a4,C1,D2, Gi: C2,D1 (ex-C4),D3 Glutamin: A3 (0c1) Glutathione: “C5”, “D3+” (after meal). Hon:A2.A3. Oliv leaf extr:C1D2. Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2: 2x mag mal. 0P5+1xQ1 (->ubiquinone <150mg/d! atm ubiquinol). A3: Luteolin. mag threo. A5: mumi. B1:Fis.B2: ALA+2 pine+2NADH B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C1: 2x alpha GPC. eleuthero. huperzia. C2:0Cu/Zn 2Gly C3:PEA+Ru+vitB2, (A2:Ω/Pq:meal, A3: apigenin) DAO before risky meals? monk’s fruit usually evenings. D3 1x/wk. myo-inositol 1x/2d.
(A2:0Se), (0NAC: A3, B1,C1,C3,D2)

Development

‘Research’ today:
So for LDN I’ll be asking for microcrystalline cellulose as filler, HPMC as capsules and
either for 3 weeks 21 cps. à 0.5mg and 7 cps. à 1.5mg.
Or just 42x0.5mg.
Or 6 weeks 42 cps. à 0.5mg and 35 cps. à 1.5mg.
Or for 9 weeks 63 and 84 cps (21 and 49 more).

Lessons in self-care #444 Lots of rest - IMHO - my wife begs to differ :sunglasses:
Reasons to be cheerful #445 Still getting small activities done with not too much backlash