2022-09-30, Friday - Energy 10% / Sleep 85% / Feeling 75-65%-ish
Learnt:
Dosage etc. of LDN.
Phytic acid as unfavourable form of phosphorus is confusing.
Today’s symptoms sorted by the ACR 2016 criteria
Widespread pain, WPI = 12 of 19 areas: limb-Ache 8 (25-35%, stiff 10%) + spine-pain 3 (20%), shoulder-girdles/hips 1 (20%) chest / abdomen / jaw 0
Symptom severity, SSS = severity 10 of 12: Fatigue 3 (90%), insomnia 3 (15%), fog 2 (15%), headache 0, GI 1 (15%), depression 1 (30%)
Triggers & resulting Symptoms
SLEEP (click for details): 8h45, up 5x (55') 🧐✅ ➔ Feeling 80% well, Ache 1-2 of 7 ✅, getting up: 80%/2 ✅. Nostrils 20% stuffy 10% of the night.
?cold shower ?p0 Sleep 22:50- A3 Why not 21:45? Looking for a good phosphorus food took quite a time.
ear plugs TEETH
0:50 5’ 90%/1/10% p0 st1 sip fw1’ deep air A4
2:25 5’ 90%/1/10% p0 st1 sip fw1’ deep air
3:10 35’ 90%/1/10% p0 st1 sip fw1’ deep air mumijo 6 gel cream
5:50 5’ 80%/1/10% p0 st1 sip fw1’ deep air strong dysbalance, falling forwards and to the right, bit dizzy/nauseous lying down agan. ear plugs. nostril.
7:30 5’ 80%/2/10% p0 st1 sip fw1’ deep, balance better, not fully resolved.
-8:30 80%/2 8:50 B2-4 in sun, stools a bit loose, clavicle/shoulder
Sum: 1h10-8h30-(5+5+35+5+5=)55’ = 9h40-55’ = 8h45, up 5x (55’)
ACTIVITIES (aim: 40% energy) ➔ ACHE: rest, lots of research, GP 25’, kids (playing a board game on playground!) 1.5h ➔ 80%/3 , but energy a little “better”, so did a bit.
ACTIONS ➔ PAINS: except: neck , GI: wind from beans is annoying , esophagus: better capsule etc. rhythm , jaw 1x5’’ ?, pee pain: 0xp1-2
MCAS/HIT-Symptoms/Triggers/Treatments: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. .
Fibro & Touch:
Covid-danger:
Weather: Indoors Outdoors .
Treatments
Docs:
I asked my GP today about phosphate deficiency and apart from looking it up suggested not to take the supps but to increase mozzarella and Emmentaler cheese, despite the high fat content, also to go back to cooking cabbage/kale.
Dentist again on 20th after treatment on 6th brought energy down for 8+ days… Pain down in a few hours this time (but only due to strict rest), however energy again down to 5-10%.
Chinese Acupuncturist - #29 on 10th, after 14 days Still good - would be 20-25% energy if it weren’t for the tooth treatments. Session #30 on 7th.
SELF-PHYSIO (click for details): 2h20 - 40' of sun-'gazing'
airing 5x2’, cold shower 1x(10’), warm shower 0x(10’), cream/oil fc/ey/hd/ft 1x1’, teeth 3x2’, HWB 3x3’, breath exercises 3x1’, Timing, hunchback-pillow 5’, Y. Nidra 20’, massage gun 0x3’, neck 1+ 1x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch 2x1’, yoga/stretching 2x1’, sun 8x5’=40’, breath-hold 12’.
Combine: next?
workout 7’, horse stance 1’, balance roll standing 5’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps Sep 20th (34 supps): Supp costs:~389€/m (Sep 20th) CHANGED 27th: Glutathione is OK now. Because of headaches I've reduced the flushing B3 to 3x150mg and keeping it there for 2 weeks before progressing. Since my B2 was down in the bloods I won't be halving from the 24th on, I'll be increasing now. Praps trying ATP again, encapsulated, since my phosphate is under the minimum. New idea: Creatine. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Sep 20th (34 supps): ALA .2g, alpha-GPC 1x150mg, B2 1x100mg, not going down to 50mg, B3/Nia 3x150g & B3 flush free 2x400mg, B12 0x5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Fis: 1x196mg. Ga: now 3x0.4g+2x.6g=2.4g, Gi 3x168mg, Glutamin: down to 0.6g, Glutathione 2x, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 0x27mg, PEA 1x0.4g Pf 3(-4)x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Rutin: 1x522. Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Sep 5th (before: see the reference post)
0 “18:45” myo-inositol (even evenings) + teeth
/19:30 300mg GABA A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal -20:3ß
/21:00 “21:00” agigenin 1h before bedtime + teeth
/22:20 300mg GABA A3 “21:45” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
“23:00” 300mg GABA + teeth
“4:00” mumijo
/08:50 in 5’ sun B2-4 “07:00” +ALA+ now 2x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The +Fisetin + (B1:)1x50mgB2 (100mg for 2 weeks)
Phone call from pharmacy about LDN distracted me.
Meal 9:50-10:20 Teeth
/10:10 in 15’ sun C1-3 “MEAL!” 2Cr#2 .6GABA#4, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC.
/10:20 glutathion
/13:40 C4 + Teeth “11:00” (+2h/) gi#2 1 Ellagic acid#1
/14:30 0 Meal (D1) “12:30”
/15:10 D2/3 in 5’ sun “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
/15:10 glutathion
->16:10 teeth
/17:35 in 5’+10’ sun D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules), Sep 20th
Pf: 1A1+1A2+1A3, alpha GPC:C2. B3ff: C3,D3. B3f: A2,C3,D3. C:C3+D3 3x2Cr: A1+C1+D2, Ell: C4+D4. 4-5xGa: a2,a3,a4,C1,D2, Glutamin: A3,c1 Glutathione: C2,D2. Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: 0P5+1Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B1:B2,Fis.B2: ALA+2 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+Ru. (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)
Development
‘Research’ today:
Phosphor in…
mozzarella: 656 mg/100g (0.656%) (roughly) (https://www.dietandfitnesstoday.com/phosphorus-in-mozzarella.php)
LDN here is said to have helped quite a majority a bit LDN and Gut Health: Mast Cell Activation Syndrome - Townsend Letter
Seldom used, but helps a bit: Stuff That Works
When? Night might cause sleep disturbance, morning is just as OK (LDNtrust)
Mechanism, sfx not that common (insomnia, nausea & wild dreams) on drugs.com
Formulation: drops may be better than capsules: Formulations of LDN (Low Dose Naltrexone) LDN Research Trust - The Low Dose Naltrexone Charity.
LDN must be compounded as an immediate release capsule or tablet and without the use of certain fillers and binders: Best Low Dose Naltrexone (LDN) Compounded | Buy LDN Online | CareFirst Specialty Pharmacy, incl. details by a pharma student in a video
Lessons in self-care #439 Stuff done, and decided go over the pain a little, as energy was slightly better.
Reasons to be cheerful #440 Fun with kids.
- My food apparently minus broccoli…
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries