JayCS’s Fibro Blog

2022-10-07, Friday - Energy 20%(?) / Sleep 85% / Feeling 90%-ish

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10%, stiff 10%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (80%), insomnia 3 (15%), fog 2 (10%), headache 0, GI 1 (10%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 9h30, up 7x (60'), 7h30 deep, 2h deep doze/YoNi ✅ ➔ Feeling 90% well, Ache 1 of 7 ✅, getting up: 90%/1 ✅. Nostrils 5% stuffy for 10%, lower back 20% unrest for 20% of the night.

teeth cold shower p0 Sleep 22:30- Why not 21:45? Wife.
0:05 5’ 90%/1/10% p0 st1 sip fw1’ deep air A4 cream
1:45 10’ 90%/1/10% p0 st1 sip fw1’ deep
2:15 3’ 90%/1/30% p0 st1 sip fw1’ deep doze → YoNi 22’ not working that quickly, also LBU (from too much back lying) air cream
2:40 9’ 90%/1/30% p0 st1 sip fw1’ deep YoNidoze20’ → FCS#2
5:13 6’ 90%/1/10% p0 st1 sip fw1’ deep air mumijo No B3-headache calf stretch2’
6:14 23’ 90%/1/10% p0 st1 sip fw1’ deep 6 ear plugs
7:57 4’ 90%/1/10% p0 st1 sip fw1’ doze air (nostrils 5%/10%)
-9:00 YoNi20’ B2-4 ’ in sun, stools firm?
Sum: 1h30+9h-(5+10+3+9+6+23+4=)60 = 10h30-1h = 9h30, up 7x (60’), 7h30 deep, 2h deep doze/YoNi

ACTIVITIES (aim: 40% energy)ACHE: TT, acupuncture, shop, 1-2 errands ➔ 90%/1-2 :white_check_mark:.
ACTIONSPAINS: :white_check_mark: except: neck :white_check_mark:, GI :white_check_mark:, esophagus :white_check_mark:, jaw x5’’ :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, but strong & frequent urge during acupuncture, due to choosing too good looking but cold shoes (sneakers too cold now)
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.

Treatments

Docs:
Chinese Acupuncturist - Session #30 on 7th, after 14 days :white_check_mark: Still good: 20-25% energy now I’ve recovered from the tooth treatments & the phosphate deficiency! Session #31 on 14th.

SELF-PHYSIO (click for details): 2h37

:white_check_mark: airing 5x2’, cold shower 2x(10’), warm shower 0x(10’), cream/oil fc/ey/hd/ft 2x1’, teeth 5x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 10’, Y. Nidra 3x20’, massage gun 0x3’, neck 1+ 0x1’, neck 2 0x1’, plantar/calf stretch 3x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch 0x1’, yoga/stretching 0x1’, sun 5x5’, rainy sky x5’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Oct 3rd (46 supps since mid-Sept): Supp costs:~394€/m (Oct 2nd, checked several prices). CHANGED 1st: Increased carnitine to 4g/d for lipids, esp. triglycerides. Flushing B3 at 3x150mg for another while before increasing. B2 increased, see if the next bloods are OK. Praps trying ATP again, encapsulated, since my phosphate is deficient. New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, Cu, NAC 1*.5g, Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Oct 2nd (46 supps, all new and re-visited ones now counted): ALA .2g, alpha-GPC 1x150mg, apigenin 1x50mg, B2 2x100mg, not going down to 50mg, B3/Nia 3x150g & B3 flush free 2x400mg, B12 0x5mg/4m, C 2x.5g, Cr 8x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2x.2g (+43mg vit. C), eleuthero 2, Fev .4g (+.2g MSM), Fis: 1x196mg. Ga: now 3x0.3g+2x.6g=2.1g, Gi 3x168mg, Glutamin: down to 0.6g, Glutathione 2x250mg, Hon (2%)x2x.4g=16mg, huperzia 1x0.2mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, Mag threo “0.6g”, monk’s fruit 0.1g, mumijo 1x0.2g, myo-inositol 1x1g/2d, NADH 1x, olive leaf extract 2x.75, P5P 0x27mg, PEA 1x0.4g Pf 3x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Rutin: 1x522. Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Oct 3rd
/19:25 “18:45” myo-inositol (even evenings) + teeth
/19:40 “19:00” A1/2 PF#1+2 1x300mg GABA Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & Qc#1. Meal: 1xHon. monk’s fruit. CoQ10.
-20:45? Meal -21:
/21:00 “21:00” pre-A3 agigenin 1h before bedtime + teeth
/22:20 “21:45” A3 PF#3 300mg GABA & .6glu & 1Lut (slp!) & Qc#2 1xHon + mag threo. 0 Rupafin.
/0:05 “23:00” A4 300mg GABA + teeth
/5:15 “4:00” A5 mumijo
/9:10 B1-4 5’ in sun “07:00” ALA, 2x pine, 1Ro, Qc#3 Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The +Fisetin. 2xNADH.+Rut.
Meal ’ in sun 10:-: Teeth
/10:25 5’ in sun C1-4 “MEAL!” 3!Cr#2 .6GABA#4, gink#1, 0 Zn, mag gly, 1x pine bark#2. .5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC. (C1:)400mg, vit.B2 (actually 100mg for 2 weeks, then 50mg, but I haven’t got much…). 2x eleuthero. 1x hup. OlivLeaf#1
0 “after muesli” C5 glutathion
/13:10 “11:00” D1 (ex-C4) + Teeth (+2h/) gi#2 1 Ellagic acid#1
/15:30 “14:00” 0 Meal 15’ in sun
/15:50 “14:15” D2/3 ’ in sun .5gC#2 , 3!Cr#3, .6GABA#5, gink#3 OlivLeaf#2
/15:55 “after lunch” D3+ glutathion
/17:20 teeth
/19:45 no sun D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Oct 3rd

Pf: 1A1+1A2+1A3, alpha GPC:C2. B3f-f: C3,D3. B3f: A2,C3,D3. C:C3+D3 8Cr: 2A1+3C1+3D2, Ell: D1(ex-C4)+D4. 4-5xGa: a2,a3,a4,C1,D2, Gi: C2,D1 (ex-C4),D3 Glutamin: A3 (0c1) Glutathione: “C5”, “D3+” (after meal). Hon:A2.A3. Oliv leaf extr:C1D2. Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2: 2x mag mal. 0P5+1xQ1 (->ubiquinone <150mg/d! atm ubiquinol). A3: Luteolin. mag threo. A5: mumi. B1:Fis.B2: ALA+2 pine+2NADH B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C1: 2x alpha GPC. eleuthero. huperzia. C2:0Cu/Zn 2Gly C3:PEA+Ru+vitB2, (A2:Ω/Pq:meal, A3: apigenin) DAO before risky meals? monk’s fruit usually evenings. D3 1x/wk. myo-inositol 1x/2d.
(A2:0Se), (0NAC: A3, B1,C1,C3,D2)

Development

‘Research’ today: Couldn’t find anything helpful about thirst at night, it’d be my sicca/dehydrating syndrome, water wants out. Maybe it does have some autoimmune or hormonal cause, but that’ll be tough to find out. Maybe the alternative health practitioner I’ll be trying sometime can find out.
Lessons in self-care #446 Alone a few days - need to keep up self-discipline, probably take 1 day.
Reasons to be cheerful #447 Looking forward to making music.