JayCS’s Fibro Blog

Symptoms & Treatments
972

2022-10-09, Sunday - Energy 21% / Sleep 85% / Feeling 85%-ish

Successes:
:trophy: Yoga Nidra works much better for me than Jeffrey Thompson’s Delta Pulse Ocean Waves etc. :zap: …
Learnt: :student: … ToDo: :ambulance:

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10%, stiff 10%) + spine-pain 3 (20%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (79%), insomnia 3 (15%), fog 2 (5%), headache 0, GI 1 (10%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 8h21, up 8x (69'), all deep or deep doze, not sure, cos I wanted to see all night if it decreases sleep breaks - which it didn't at all, but the Delta/Alpha pulses with ocean waves haven't convinced me, esp. in comparison to Ally's Yoga Nidra. 🧐✅ ➔ Feeling 90% well, Ache 1 of 7 ✅, getting up: 90%/1 ✅. Nostrils 10% stuffy, 10% of the night. Sore throat meant cold, HWB stopped it. dry mouth is what hurts most at night, LBU what irritates most, cold shower necessary.

cold shower p0 Sleep teeth 23:38- Why not 21:45? No social control? Curious? Then 15’ cos of laptop at bed to do the delta wave stuff.. O.o with ear plugs
0:32 10’ 90%/1/10% p0 st1 sip fw1’ deep air A3 hard stools.
1:15 5’ 0%/1/10% p0 st1 sip fw1’ deep air
2:06 5’ 0%/1/10% p0 st1 sip fw1’ deep air
3:25 21’ 0%/1/10% p0 st1 sip fw15’ deep air dry mouth, sore throat: HWB.
5:31 4’ 0%/1/10% p0 st1 sip fw1’ deep air Delta with plugs
7:15 5’ 0%/1/10% p0 st1 sip fw1’ deep A4 (rather than mumijo) Delta
7:38 5’ 0%/1/10% p0 st1 sip fw1’ deep Delta gel
8:04 14’ 0%/1/10% p0 st1 sip fw1’ deep LBU:FCS#2 (why? mind? body? mind on body?) nausea, buds made neighbour’s noise worse, nausea & body better with Ally’s YoNi, wave noise too, but less obtrusive and more inciting.
-9:08 9:25 B2-4 5’ in sun
Sum: 22+9h08-(10+5+5+21+4+5+5+14=)69’ = 9h30-69’ = 8h21, up 8x (69’), all deep or deep doze, but Jeffrey Thompson’s Delta/Alpha pulses with ocean waves haven’t convinced me, esp. in comparison to Ally’s Yoga Nidra.

ACTIVITIES (aim: 40% energy) ➔ ACHE: Moving things again about half an hour, incl. up and down a loft ladder, 30’ work phone call, 80’ playing music (rec.), then another 30’ with breaks ➔ 80%/3 :white_check_mark:, but after the music I felt green-white, not sure why, cos I did pretty well for first time doing something new. Probably a combination of 1h sleep, not practicing “enough”
ACTIONS ➔ PAINS: :white_check_mark: except: neck :white_check_mark:, GI, except the sweet potatoes were somehow off and caused some pressure :white_check_mark:, esophagus - from Belgian “Chicoree” :x:, jaw x5’’ :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.

Treatments

Docs:
Recovering from severe energy loss after dentist (despite not much pain) on 20th and 6th.
Chinese Acupuncturist - Session #30 on 7th, after 14 days :white_check_mark: Still good: 20-25% energy now I’ve recovered from the tooth treatments & the phosphate deficiency! Session #31 on 14th.

SELF-PHYSIO (click for details): 92'+2h (YoNi/Delta) = 3h32

:white_check_mark: airing 5x2’, cold shower 2x(10’), warm shower 0x(10’), cream/oil fc/ey/hd/ft 3x1’, teeth 3x2’, HWB 1x3’, breath exercises 3x1’, Timing, hunchback-pillow 0’, Y. Nidra/Delta wave music/waves “2h”, massage gun 1x3’, neck 1+ 1x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch 2x1’, yoga/stretching 1x1’, sun 5x5’, rainy sky x5’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Oct 3rd (46 supps since mid-Sept): Supp costs:~394€/m (Oct 2nd, checked several prices). CHANGED 1st: Increased carnitine to 4g/d for lipids, esp. triglycerides. Flushing B3 at 3x150mg for another while before increasing. B2 increased, see if the next bloods are OK. Praps trying ATP again, encapsulated, since my phosphate is deficient. New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, Cu, NAC 1*.5g, Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Oct 2nd (46 supps, all new and re-visited ones now counted): ALA .2g, alpha-GPC 1x150mg, apigenin 1x50mg, B2 2x100mg, not going down to 50mg, B3/Nia 3x150g & B3 flush free 2x400mg, B12 0x5mg/4m, C 2x.5g, Cr 8x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2x.2g (+43mg vit. C), eleuthero 2, Fev .4g (+.2g MSM), Fis: 1x196mg. Ga: now 3x0.3g+2x.6g=2.1g, Gi 3x168mg, Glutamin: down to 0.6g, Glutathione 2x250mg, Hon (2%)x2x.4g=16mg, huperzia 1x0.2mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, Mag threo “0.6g”, monk’s fruit 0.1g, mumijo 1x0.2g, myo-inositol 1x1g/2d, NADH 1x, olive leaf extract 2x.75, P5P 0x27mg, PEA 1x0.4g Pf 3x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Rutin: 1x522. Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Oct 3rd
/20:00 “18:45” myo-inositol (even evenings) + teeth
/21:00 “19:00” A1/2 PF#1+2 1x300mg GABA Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & Qc#1. Meal: 1xHon. monk’s fruit. CoQ10.
Meal -21:
/22:00 “21:00” pre-A3 agigenin 1h before bedtime + teeth
/0:30 “21:45” A3 PF#3 300mg GABA & .6glu & 1Lut (slp!) & Qc#2 1xHon + mag threo. 0 Rupafin.
/7:15 “23:00” A4 300mg GABA + teeth
0 “4:00” A5 mumijo
09:22 B1-4 5’ in sun “07:00” ALA, 2x pine, 1Ro, Qc#3 Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The +Fisetin. 2xNADH.+Rut.
Meal 10’ in sun 10:05-10:20 Teeth
/10:20 ’ in sun C1-4 “MEAL!” 3!Cr#2 .6GABA#4, gink#1, 0 Zn, mag gly, 1x pine bark#2. .5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC. (C1:)400mg, vit.B2 (actually 100mg for 2 weeks, then 50mg, but I haven’t got much…). 2x eleuthero. 1x hup. OlivLeaf#1
/10:20 “after muesli” C5 glutathion
/12:45 “11:00” D1 (ex-C4) + Teeth (+2h/) gi#2 1 Ellagic acid#1
15:15-15:45 “14:00” 0 Meal ’ in sun
/15:45 “14:15” D2/3 ’ in sun .5gC#2 , 3!Cr#3, .6GABA#5, gink#3 OlivLeaf#2
/15:45 “after lunch” D3+ glutathion
teeth
/20:00 0 in sun D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Oct 3rd

Pf: 1A1+1A2+1A3, alpha GPC:C2. B3f-f: C3,D3. B3f: A2,C3,D3. C:C3+D3 8Cr: 2A1+3C1+3D2, Ell: D1(ex-C4)+D4. 4-5xGa: a2,a3,a4,C1,D2, Gi: C2,D1 (ex-C4),D3 Glutamin: A3 (0c1) Glutathione: “C5”, “D3+” (after meal). Hon:A2.A3. Oliv leaf extr:C1D2. Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2: 2x mag mal. 0P5+1xQ1 (->ubiquinone <150mg/d! atm ubiquinol). A3: Luteolin. mag threo. A5: mumi. B1:Fis.B2: ALA+2 pine+2NADH B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C1: 2x alpha GPC. eleuthero. huperzia. C2:0Cu/Zn 2Gly C3:PEA+Ru+vitB2, (A2:Ω/Pq:meal, A3: apigenin) DAO before risky meals? monk’s fruit usually evenings. D3 1x/wk. myo-inositol 1x/2d.
(A2:0Se), (0NAC: A3, B1,C1,C3,D2)

Development

‘Research’ today: No.