JayCS’s Fibro Blog

2022-10-12, Wednesday - Energy 20% / Sleep 85% / Feeling 85%-ish

Better, due to longer sleep!
Successes:
:zap: Pressing my dry mouth together hurts much less than pulling it apart.
Learnt: :student: LDN may help my dryness I was just told! :partying_face: :tada:
:student: LDN can have PEA as filler, that’d be helpful, instead of just filling, like cellulose!

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (15%, stiff 10%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (80%), insomnia 3 (15%), fog 2 (?15%), headache 0, GI 1 (?20%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 9h45, up 9x (1h15), deep 6h, but altogether obviously better! 🧐✅ ➔ Feeling 90% well, Ache 1 of 7 ✅, getting up: 90%/1 ✅. Nostrils 5% stuffy 10% of the night.

cold shower p0 teeth Sleep 22:55- Why not 21:45? Revenge procrastination… ear plugs
1:10 5’ 80%/2/10% p0 st1 sip fw1’ deep air A3
3:10 5’ 70%/2/10% p0 st1 sip fw1’ deep air A4. “madhouse”-dream
3:55 5’ 80%/1/10% p0 st1 sip fw1’ deep
4:33 5’ 80%/1/10% p0 st1 sip fw1’ deep - riddle-idea
4:48 5’ 90%/1/10% p0 st1 sip fw1’ deep air mumijo A’sYoNi dry/gel
5:35 20’ 90%/2/10% p0 st1 sip fw1’ doze 6 A’sYoNi (don’t feel like sleeping) dry/gel
5:35 20’ 90%/2/10% p0 st1 sip fw1’ doze A’sYoNi dry/gel
7:20 5’ 90%/1/10% p0 st1 sip fw1’ doze air A’sYoNi nauseous dry
8:34 5’ 90%/1/10% p0 st1 sip fw1’ doze air A’sYoNi nauseous dry nostrils 5%
-9:53 B2-4 10’ in sun
Sum: 1h05+9h53-(5+5+5+5+5+20+20+5+5=)75 = 10h58-1h15 = 9h45, up 9x (1h15), deep 6h, but altogether obviously better!
Memo: Need to ask mates for coriander

ACTIVITIES (aim: 40% energy)ACHE: TT 3:1 ➔ 80%/2! Probably from more & deeper sleep :white_check_mark:, not much else, except tons of work, lots of short phone calls and sms.
ACTIONSPAINS: :white_check_mark: except: neck :white_check_mark:, GI: wind less, maybe getting used to a few spoonsfuls of peas, but that way I’ll have to watch out that that they and the white beans don’t go off in a few days :white_check_mark:, esophagus :white_check_mark:, jaw x5’’ :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.

Treatments

Docs:
Chinese Acupuncturist - Session #30 on 7th, after 14 days :white_check_mark: Still good: 20-25% energy now I’ve recovered from the tooth treatments & the phosphate deficiency! Session #31 on 14th.

SELF-PHYSIO (click for details): 2h19 (1h YoNi)

:white_check_mark: airing 4x2’, cold shower 1x(10’), warm shower 0x(10’), cream/oil fc/ey/hd/ft 2x1’, teeth 5x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 5’, Y. Nidra 60’, massage gun 2x3’, neck 1+ 0x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 1x1’, twist-stretch 2x1’, yoga/stretching 2x1’, sun 3x5’, rainy sky x5’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Oct 3rd (46 supps since mid-Sept): Supp costs:~394€/m (Oct 2nd, checked several prices). CHANGED 1st: Increased carnitine to 4g/d for lipids, esp. triglycerides. Flushing B3 at 3x150mg for another while before increasing. B2 increased, see if the next bloods are OK. Praps trying ATP again, encapsulated, since my phosphate is deficient. New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, Cu, NAC 1*.5g, Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Oct 2nd (46 supps, all new and re-visited ones now counted): ALA .2g, alpha-GPC 1x150mg, apigenin 1x50mg, B2 2x100mg, not going down to 50mg, B3/Nia 3x150g & B3 flush free 2x400mg, B12 0x5mg/4m, C 2x.5g, Cr 8x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2x.2g (+43mg vit. C), eleuthero 2, Fev .4g (+.2g MSM), Fis: 1x196mg. Ga: now 3x0.3g+2x.6g=2.1g, Gi 3x168mg, Glutamin: down to 0.6g, Glutathione 2x250mg, Hon (2%)x2x.4g=16mg, huperzia 1x0.2mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, Mag threo “0.6g”, monk’s fruit 0.1g, mumijo 1x0.2g, myo-inositol 1x1g/2d, NADH 1x, olive leaf extract 2x.75, P5P 0x27mg, PEA 1x0.4g Pf 3x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Rutin: 1x522. Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Oct 3rd
0 “18:45” myo-inositol (even evenings) + teeth
20:00 “19:00” A1/2 PF#1+2 1x300mg GABA Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & Qc#1. Meal: 1xHon. monk’s fruit. CoQ10.
Meal -21:00
/22:00 “21:00” pre-A3 agigenin 1h before bedtime + teeth
/1:10 “21:45” A3 PF#3 300mg GABA & .6glu & 1Lut (slp!) & Qc#2 1xHon + mag threo. 0 Rupafin.
/3:10 “23:00” A4 300mg GABA + teeth
/4:50 “4:00” A5 mumijo
/9:50 B1-4 ’ in sun “07:00” ALA, 2x pine, 1Ro, Qc#3 Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The +Fisetin. 2xNADH.+Rut.
Meal 5’ in sun 10:-11:30 Teeth
/11:30 10’ in sun C1-4 “MEAL!” 3!Cr#2 .6GABA#4, gink#1, 0 Zn, mag gly, 1x pine bark#2. .5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC. (C1:)400mg, vit.B2 (actually 100mg for 2 weeks, then 50mg, but I haven’t got much…). 2x eleuthero. 1x hup. OlivLeaf#1
/11:30 “after muesli” C5 glutathion
/15:45 “11:00” D1 (ex-C4) + Teeth (+2h/) gi#2 1 Ellagic acid#1
/16:30 “14:00” 0 Meal ’ in sun
/16:30 “14:15” D2/3 ’ in sun .5gC#2 , 3!Cr#3, .6GABA#5, gink#3 OlivLeaf#2
/16:30 “after lunch” D3+ glutathion
/17:30 teeth
/19:45 18: in sun D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Oct 3rd

Pf: 1A1+1A2+1A3, alpha GPC:C2. B3f-f: C3,D3. B3f: A2,C3,D3. C:C3+D3 8Cr: 2A1+3C1+3D2, Ell: D1(ex-C4)+D4. 4-5xGa: a2,a3,a4,C1,D2, Gi: C2,D1 (ex-C4),D3 Glutamin: A3 (0c1) Glutathione: “C5”, “D3+” (after meal). Hon:A2.A3. Oliv leaf extr:C1D2. Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2: 2x mag mal. 0P5+1xQ1 (->ubiquinone <150mg/d! atm ubiquinol). A3: Luteolin. mag threo. A5: mumi. B1:Fis.B2: ALA+2 pine+2NADH B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C1: 2x alpha GPC. eleuthero. huperzia. C2:0Cu/Zn 2Gly C3:PEA+Ru+vitB2, (A2:Ω/Pq:meal, A3: apigenin) DAO before risky meals? monk’s fruit usually evenings. D3 1x/wk. myo-inositol 1x/2d.
(A2:0Se), (0NAC: A3, B1,C1,C3,D2)

Development

‘Research’ today: No.
Lessons in self-care #450 Gotta watch out that I don’t do much else cos having to work so much!
Reasons to be cheerful #450 4 games of TT without pain!