JayCS’s Fibro Blog

2022-10-13, Thursday - Energy 15% / Sleep 80% / Feeling 80%-ish

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10%, stiff 10%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (85%), insomnia 3 (20%), fog 2 (15%), headache 0, GI 1 (10%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 8h05, up 8x (63'), 5.5h deep, long cortisole-y start to the night, probably due to lateness. 🧐 ➔ Feeling 80%-90% well, Ache 1 of 7 ✅, getting up: 80%/2 ✅. Right nostril 30% stuffy 30% of the night. +20' power nap at 17:05 = 8h25, still hurting.

?cold shower ?p0 Sleep 23:35- Why not 21:45? Could’ve been 22:45, but again forums and then got carried away with hard drive. Now less sleepy than I was at 9. grrr…
ear plugs TEETH
0:23 20’ 90%/1/10% p0 st1 sip fw1’ doze air Haven’t slept yet!!! 6 - A’sYoNi
1:20 10’ 90%/1/10% p0 st1 sip fw1’ semi-deep air A’sYoNi HWB
1:39 9’ 90%/1/10% p0 st1 sip fw1’ deep FCS#2, cos still pumping cortisol.A4
3:25 4’ 90%/1/10% p0 st1 sip fw1’ deep A5 mumijo dry/gel
4:59 4’ 80%/1/10% p0 st1 sip fw1’ deep
5:13 3’ 80%/1/10% p0 st1 sip fw1’ doze air LBU/massager
7:23 8’ 80%/1/10% p0 st1 sip fw1’ deep air, right nostril 40%/20%/air, naus/yog. work2’.
8:25 5’ 80%/1/10% p0 st1 sip fw1’ deep air
-8:43 awake & stomach ache, but if drink/B1-4 doesn’t help back to bed.
8:55 B1-4 2’ overcast, stools firm.
Sum: 25+8h43-(20+10+9+4+4+3+8+5=)63 = 9h08-63’ = 8h05, up 8x (63’), 5.5h deep, long cortisole-y start to the night, probably due to lateness.

ACTIVITIES (aim: 40% energy)ACHE: TT 2:2 ➔ 80%/3, but quickly ➔ 80%/3 :white_check_mark:, short errand with bike ended with a puncture and a strenuous 20’ walk back, dead tired now, power nap at 17:05, but still hurting afterwards, wife sez not to go to the shop’s for 10’. Or anything. ➔ 80%/5, friend round in the evening ➔ 80%/3. :x:
ACTIONSPAINS: :white_check_mark: except: neck :white_check_mark:, GI :white_check_mark: (except peas wind… don’t feel like continuing that…), esophagus: gulps can be harder, evening meal :x:, jaw 2x5’’ :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.

Treatments

Docs:
Chinese Acupuncturist - Session #30 on 7th, after 14 days :white_check_mark: Still good: 20-25% energy now I’ve recovered from the tooth treatments & the phosphate deficiency! Session #31 on 14th.

SELF-PHYSIO (click for details): 2h27

:white_check_mark: airing 3x2’, cold shower 2x(10’), warm shower 0x(10’), cream/oil fc/ey/hd/ft 0x1’, teeth 4x2’, HWB 1x3’, breath exercises 5x1’, Timing, hunchback-pillow 0’, Y. Nidra 40’, massage gun 1x3’, neck 1+ 0x1’, neck 2 0x1’, plantar/calf stretch 20x1’, acupressure 2x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 1x1’, twist-stretch 20x1’, yoga/stretching 5x1’, sun x5’, overcast sky 1x5’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Oct 3rd (46 supps since mid-Sept): Supp costs:~394€/m (Oct 2nd, checked several prices). CHANGED 1st: Increased carnitine to 4g/d for lipids, esp. triglycerides. Flushing B3 at 3x150mg for another while before increasing. B2 increased, see if the next bloods are OK. Praps trying ATP again, encapsulated, since my phosphate is deficient. New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, Cu, NAC 1*.5g, Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Oct 2nd (46 supps, all new and re-visited ones now counted): ALA .2g, alpha-GPC 1x150mg, apigenin 1x50mg, B2 2x100mg, not going down to 50mg, B3/Nia 3x150g & B3 flush free 2x400mg, B12 0x5mg/4m, C 2x.5g, Cr 8x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2x.2g (+43mg vit. C), eleuthero 2, Fev .4g (+.2g MSM), Fis: 1x196mg. Ga: now 3x0.3g+2x.6g=2.1g, Gi 3x168mg, Glutamin: down to 0.6g, Glutathione 2x250mg, Hon (2%)x2x.4g=16mg, huperzia 1x0.2mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, Mag threo “0.6g”, monk’s fruit 0.1g, mumijo 1x0.2g, myo-inositol 1x1g/2d, NADH 1x, olive leaf extract 2x.75, P5P 0x27mg, PEA 1x0.4g Pf 3x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Rutin: 1x522. Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Oct 3rd
/19:00 “18:45” myo-inositol (even evenings) + teeth
/20:00 “19:00” A1/2 PF#1+2 1x300mg GABA Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & Qc#1. Meal: 1xHon. monk’s fruit. CoQ10.
Meal -20:30
/21:00 “21:00” pre-A3 agigenin 1h before bedtime + teeth
/23:05 “21:45” A3 PF#3 300mg GABA & .6glu & 1Lut (slp!) & Qc#2 1xHon + mag threo. 0 Rupafin.
/1:40 “23:00” A4 300mg GABA + teeth
/3:25 “4:00” A5 mumijo
/8:55 B1-4 ’ in sun “07:00” ALA, 2x pine, 1Ro, Qc#3 Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The +Fisetin. 2xNADH.+Rut.
Meal ’ in sun 10:30-: Teeth
/10:50 5’ overcast C1-4 “MEAL!” 3!Cr#2 .6GABA#4, gink#1, 0 Zn, mag gly, 1x pine bark#2. .5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC. (C1:)400mg, vit.B2 (actually 100mg for 2 weeks, then 50mg, but I haven’t got much…). 2x eleuthero. 1x hup. OlivLeaf#1
/10:50 “after muesli” C5 glutathion
13:55 “11:00” D1 (ex-C4) + Teeth (+2h/) gi#2 1 Ellagic acid#1
-15:20 “14:00” 0 Meal ’ in sun
/15:20 “14:15” D2/3 5’ in sun .5gC#2 , 3!Cr#3, .6GABA#5, gink#3 OlivLeaf#2
/15:35 “after lunch” D3+ glutathion
/16:15 teeth
/18:05 preparing pills
/18:00 0’ in sun D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Oct 3rd

Pf: 1A1+1A2+1A3, alpha GPC:C2. B3f-f: C3,D3. B3f: A2,C3,D3. C:C3+D3 8Cr: 2A1+3C1+3D2, Ell: D1(ex-C4)+D4. 4-5xGa: a2,a3,a4,C1,D2, Gi: C2,D1 (ex-C4),D3 Glutamin: A3 (0c1) Glutathione: “C5”, “D3+” (after meal). Hon:A2.A3. Oliv leaf extr:C1D2. Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2: 2x mag mal. 0P5+1xQ1 (->ubiquinone <150mg/d! atm ubiquinol). A3: Luteolin. mag threo. A5: mumi. B1:Fis.B2: ALA+2NADH B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C1: 2x alpha GPC. eleuthero. huperzia. C2:0Cu/Zn 2Gly C3:PEA+Ru+vitB2, (A2:Ω/Pq:meal, A3: apigenin) DAO before risky meals? monk’s fruit usually evenings. D3 1x/wk. myo-inositol 1x/2d.
(A2:0Se), (0NAC: A3, B1,C1,C3,D2)

Development

‘Research’ today: No.