JayCS’s Fibro Blog

Symptoms & Treatments
982

2022-10-19, Wednesday - Energy 15% / Sleep 75% / Feeling 80%-ish

Successes: :trophy: Since pure naltrexone is not available here at the moment I’ve phoned an alternative practitioner for new ideas.
:zap: Tonight I need to “calm down” before earlier bed, and cold shower earlier if nec.

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (20-30%, stiff 15%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (85%), insomnia 3 (25%), fog 2 (15%), headache 0, GI 1 (10%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 8h46, up 8x (2h51) cos tried going to bed an hour earlier (too much in one go? not long enough to come down?) and cortisole-y heart pumping, overheated, so should have cold showered sooner, instead of at 2. 🧐✅ ➔ Feeling 70% well, Ache 1 of 7 ❌, getting up: 80%/1 ✅. Nostrils 40% stuffy 20% of the night, HWB helped, so generally try that from now on.

A3 0cold shower p0 Sleep teeth 21:45- Why not 21:00? OK. ear plugs?
22:20 13’ 0%/1/10% p0 st1 sip fw1’ doze air Fairly awake all the time, overheated, LBU, slight pains, vague thoughts - FCS or YoNi? I’ll try A’sYoNi. Self-YoNi didn’t work. (Throat tonsils hurting a little since this afternoon… massaged a bit, hope that doesn’t make them worse.) Or is cold air enough? tea.
22:50 10’ 90%/1/10% p0 st1 sip fw10’ deep air plantar fasciitis, left wrist. A’sYoNi.
23:05 1h55 0%/1/10% p0 st1 sip fw1’ deep air YoNi no help, so 6 & procrastinating looking for fibromyalgia humor on youtube. 10’ dozing with YoNi → 0:40 A4 FCS#1 A’sYoNi again now…
2:16 5’ 70%/1/10% p0 st1 sip fw1’ deep air
3:15 8’ 70%/1/10% p0 st1 sip fw5’ deep air A4
3:53 5’ 70/1/10% p0 st1 sip fw1’ deep air back:twist/hang
5:50 5’ 70%/1/10% p0 st1 sip fw1’ deep air
7:41 10’ 70%/1/10% p0 st1 sip fw1’ deep air right nostril40%->headache HWB
5’ 0%/1/10% p0 st1 sip fw1’ doze air
ear plugs
COPY: 5’ ?80%/?2/?15% ?p0 ?st1 ?sip ?fw1’ air cream gel (nostrils) (sinuses) (sore throat) (stomach nauseous) (ear plugs) FCS A4 B5
-9:22 9:40 B1-4 5’ in sun, stools firm?
Sum: 2h15+9h22-(13+10+115+5+8+5+5+10=)2h51 = 11h37-2h51 = 8h46, up 8x (2h51) cos earlier and cortisole-y heart pumping, overheated, so should have cold showered sooner, instead of at 2.

ACTIVITIES (aim: 40% energy) ➔ ACHE: Resting & doc ➔ 80%/3 :cross_mark:, but resting (online) helped so again more energy in the evening with TT 2:1 ➔ 90%/1 :white_check_mark:
ACTIONS ➔ PAINS: :white_check_mark: except: neck :white_check_mark:, GI :white_check_mark:, esophagus :white_check_mark:, jaw 5x5’’ :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: But fatigue still high :cross_mark: after tooth treatments and phosphate deficiency and despite acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:, but I think I might be able to still tweak sleep better.
Touch: :white_check_mark: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.
Covid: Throat tonsils hurting in the afternoon :face_with_monocle: got better later at night. :white_check_mark:

Treatments

Docs:
Cardiologist: cos of bloods, esp. CoV. Wondering beforehand if I should once again study myself all my unusual bloods, like IgE always? slightly higher, IgG4 quite a bit higher or lymphocytes continually lower.
Or try the alternative health practitioner near me, phoned her today.
Chinese Acupuncturist - Session #30 on 7th, after 14 days :white_check_mark: But energy still down to 15% most of this week.
Session #31 on 21st.

SELF-PHYSIO (click for details): 1h48

:white_check_mark: airing 5x2’, cold shower 1x(10’), warm shower 0x(10’), cream/oil fc/ey/hd/ft 1x1’, teeth 3x2’, HWB 1x3’, breath exercises 5x1’, Y. Nidra 20’, massage gun 2x3’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch 5x1’, yoga/stretching 3x1’, sun 5x5’.
Combine: next?
:x: hunchback-pillow 0’, neck 1+ 1x1’, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Oct 3rd (46 supps since mid-Sept): Supp costs:~394€/m (Oct 2nd, checked several prices). CHANGED: Praps trying ATP again, encapsulated, since my phosphate is deficient. New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, Cu, mum, NAC 1*.5g, Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Oct 2nd (46 supps, all new and re-visited ones now counted): ALA .2g, alpha-GPC 1x150mg, apigenin 1x50mg, B2 2x100mg, not going down to 50mg, B3/Nia 3x150g & B3 flush free 2x400mg, B12 0x5mg/4m, C 2x2x.5g, Cr 8x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2x.2g (+43mg vit. C), eleuthero 2, Fev .4g (+.2g MSM), Fis: 1x196mg. Ga: now 3x0.3g+2x.6g=2.1g, Gi 3x168mg, Glutamin: down to 0.6g, Glutathione 2x250mg, Hon (2%)x2x.4g=16mg, huperzia 1x0.2mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, Mag threo “0.6g”, monk’s fruit 0.1g, myo-inositol 1x1g/2d, NADH 1x, olive leaf extract 2x.75, P5P 0x27mg, PEA 1x0.4g Pf 3x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Rutin: 1x522. Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Oct 3rd
EARLIER!
/18:30 “16:15” preparing pills
/18:45 “18:30” myo-inositol (even evenings) + teeth
/19:00 “18:45” A1/2 PF#1+2 1x300mg GABA Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & Qc#1. Meal: 1xHon. monk’s fruit. CoQ10.
Meal -19:
/20:30 “20:00” pre-A3 agigenin 1h before bedtime + teeth
/21:35 “20:30” chamomile
/21:25 “21:00” A3 PF#3 300mg GABA & .6glu & 1Lut (slp!) & Qc#2 1xHon + mag threo. 0 Rupafin.
/3:20(?) “23:00” A4 300mg GABA + teeth
/09:40 B1-4 5’ in sun “07:00” ALA, 1Ro, Qc#3 Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The +Fisetin. 2xNADH.+Rut.
Meal 10’ in sun 10:10-10:20 Teeth
forgot! 11:05 10: 5’ in sun C1-4 “MEAL!” 3!Cr#2 .6GABA#4, gink#1, 0 Zn, mag gly, pine bark#1. 2x.5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC. (C1:)400mg, vit.B2 (actually 100mg for 2 weeks, then 50mg, but I haven’t got much…). 2x eleuthero. 1x hup. OlivLeaf#1
“after muesli” C5 glutathion
/13:50 “11:00” D1 (ex-C4) + Teeth (+2h/) gi#2 1 Ellagic acid#1
/15:00 “14:00” 0 Meal 0’ in sun
/15:50 “14:15” D2/3 0’ in sun 2x.5gC#2 , 3!Cr#3, .6GABA#5, gink#3 OlivLeaf#2, pine#2.
/15:50 “after lunch” D3+ glutathion
/18:30 “16:15” teeth
/17:00 “16:15” preparing pills
/18:45 in sun D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
/19:30
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Oct 3rd

Pf: 1A1+1A2+1A3, alpha GPC:C2. B3f-f: C3,D3. B3f: A2,C3,D3. C:2C3+2D3 8Cr: 2A1+3C1+3D2, Ell: D1(ex-C4)+D4. 4-5xGa: a2,a3,a4,C1,D2, Gi: C2,D1 (ex-C4),D3 Glutamin: A3 (0c1) Glutathione: “C5”, “D3+” (after meal). Hon:A2.A3. Oliv leaf extr:C1D2. pine:C1D2. Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2: 2x mag mal. 0P5+1xQ1 (->ubiquinone <150mg/d! atm ubiquinol). A3: Luteolin. mag threo. B1:Fis.B2: ALA+2NADH B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C1: 2x alpha GPC. eleuthero. huperzia.pine. C2:0Cu/Zn 2Gly C3:PEA+Ru+vitB2, (A2:Ω/Pq:meal, A3: apigenin) DAO before risky meals? monk’s fruit usually evenings. D3 1x/wk. myo-inositol 1x/2d.
(A2:0Se), (0NAC: A3, B1,C1,C3,D2)

Development

‘Research’ today: Looked up my IgE level when I was at the uni allergist’s: it was 23 kU/l. where 20-100 means a possible “allergy”, or “only above 100 is abnormal”. 25 is what an allergist said 30 years ago, and concluded a vague.