Lupus, fatty liver and cysts

Hi, I’ve just spent a week in hospital with severe pains, found out a couple things. Firstly i know this isn’t connected with fibro but just wondering if anyone else experiences these. I have a cyst of my ovary and it’s 8.2cm and have had it since January this year, they told me it would go away in 3 months, but could twist the ovary or burst - I’ve had a smaller cyst burst on the right ovary and it was horrible and never want to go through that again. Everyone one I speak to said to have it removed, I saw a gyno while in hospital and he refused to remove it and tried to tell me they don’t cause pain!!! If it wasn’t so big I wouldn’t be as concerned but I just want it gone, it’s been 11 months.
The next thing is they told me I had a fatty liver caused by most likely lupus (causing the liver to swell etc) has anyone else experienced this? Wondering what has helped you with this. It causes an enormous amount of pain under my right ribs, and around to under my shoulder, and back, the doc has given me painkillers and another drug to help the liver break down fats.

Today was day seven in hospital and I had a bit of a breakdown infront of the nurses and everyone, I’ve never done that infront of people besides my mum, felt like a bit of a sook :frowning: I think everything was just getting to much for me.

Thanks

Kate

Hi Kate! I don't have the ovary cysts, but I have cysts on my liver and kidney. I have all kinds of pain as well. Don't fret about crying in front of medical staff. It is their job to listen to us too. ::::gentle hug!:::::

Hi Kate and thanks for writing. First off,please know that you're not the first or the last of us breakdown in front of doctors. I've done it twice, once while I flew into the waiting while still dressed in my johnnie. I was livid, as I'd taken time off from work to see this weasel while in agonizing pain, and all he said to me, in a bored/don't care voice was, "I can't do anything for you, I'm not the regular doctor. I can't make any diagnosis. You need to see your primary care doctor" Oh man, did I let him have it! I came all this way (and it was way out of my way and a bich to get to) to see him and he wouldn't help me when I was in horrific pain? Oh, yes he would! I biched and hollered and all he'd say was, "What do you want me to do? Do you want to make your own diagnosis?" I was ready to kill him by that point, as I said that all I wanted was a diagnosis from HIM! That's when I burst into the waiting room. I'm not sure why I went there, I think I had to pick up some paperwork. But in my johnnie??? VERY embarrassing, in retrospect.

The second time I had horrible bloating in my abdomen that felt like I had concrete stuffed in their and all my stupid nurse practitioner would do was test my urine for blood. Otherwise I was told to go to the emergency room! Ummmmm, I was going to a doctor's practice yet I was being told that??? I just remember telling the medical person who was left with me that I was leaving the practice effective immediately and that the stupid nurse practitioner (ok, I didn't call her stupid but I should have!) should stop looking in her stupid laptop and writing while talking to you and look at you!

And so you see, it's perfectly normal to breakdown in front of medical people when you have fibro and everything in the world is going wrong, so it seems. I'll bet that you broke down in a far more elegant manner than I did! So you win that round, my new friend!

Seriously, though, please try not to worry about it. We do the best we can but we're beset with many health nightmares. It's not our fault if the pain, frustration, and disappointment leak out every now and then. It has to go somewhere and in our gut perpetually is not a good place for it to be. Then we end up with leaky gut syndrome! (just kidding!)

You know, I think that all three things you have are found in many fibro people. My liver is a bit fatty. It's a scary thing to have, as you know. I've been told by an audiologist that Milkthistle is good for liver problems. But it's not something to take before asking your doctor about it.

Cysts in ovary - yup, I totally believe that they'd hurt terriby when they burst, especially as you have fibro, which amplifies pain. Keep looking until you find a gyno who believes you and will take the darned thing out! I'm sorry and this may sound sexist but how in the Hades can a man tell you what you'll feel in your ovary? NOPE, epic fail on his part to pooh-pooh your past experience with one bursting.

And finally, I do get pain under my right ribs but the Lyrica I take dulls it, but I wonder if it's the fatty liver? So you see, we certainly do have similar issues as you do! And Lupus is often found in people who suffer from fibro. In fact, it seems as if most of us have some sort of auto-immune illness or connective tissue issues. I have no idea what the connection is, although I did see an article about how people with MS suffer from a lack of Vitamin D and so do we! Just a coincidence or something more?

Welcome to our group, Kate, and please make yourself at home. There are virtual biscuits and herbal tea here, so feel free to virtually enjoy them!

Gentle hugs,

Petunia