New to discussions

I am new to the discussion groups and chat rooms. I have never done this before. I have been kinda bouncing around this website trying to figure it all out. Any tips would be helpful. I am not sure if I am replying in the right areas etc.

I was diagnosed about 15 years ago. It literally happened overnight. Stress was the trigger. It is a hard thing to have. People don't really believe that you are sick because you don't look it. I am in pain every day - it's just a matter of what level. I have found that certain foods make me feel alot worse. I have days where I am so tired that getting out of bed is exhausting. They say to exercise because that helps but that is really hard to do when your arms feel like concrete.

recently I have started having anxiety issues. NO IDEA why. I am not normally that way. Now i seem to get anxiety if I have to go to the grocery store.

I am on Paxil- which is actually an anti-depresent- but apparently it helps with fibro patients. My doctor doubled my dose 6 months ago because my symptoms were increasing.

I am tired of feeling tired all of the time. I am sooo tired of hurting every day. I am very lucky to have a husband who is trying his very best to understand the disease and support me in every way. I put so much guilt on myself for not getting things done around the house. I am a stay at home mom and some days lifetime, the couch and iced tea are all I really want. But then i put alot of guilt on myself because the wash isn't done or dishes are needing to be washed.

I have found that i cannot eat processed foods. I am now looking for some new recipes because I am bored with what I have been eating. I love chocolate but cannot eat much of it.

ugh...........today is not a good day.

any suggestions on anything would be helpful.

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Nice to meet you Hopeful,

You are not alone with the overwhelming issues when first diagnosed. It is hard to deal with. I understand that feeling of guilt when housework is not done and all you really want to do is be on the couch. Even though I have had this for 20 years I wish that guilt would go away. I am a stay at home mom myself. One thing that has helped me is being in touch with another mom struggling with similar issues. I feel better when I realize I am not alone. I have figured out a way to accomplish something everyday without pushing myself. I would be more than happy to offer suggestions. My son is 11 now so I managed to weather the bigger storm (when they are toddlers and preschoolers). I have been very lucky because in recent years I have found some very sympathetic friends. I guess I cannot emphasize enough the importance of support. It is great that your spouse is. I am grateful that two of my siblings and my mother have been supportive. But even so they get frustrated and angry too at times because I cannot do more.

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Be kind to yourself, you are not alone I have had fibro for believe it or not, for 54yrs. I am 61 years old. And I feel for you, take baby steps and get yourself a journal. Write in the journal daily of how you feel, what you did when you did it so you can keep stock of things, because we have a tendency to forget everything we did during the day. This way you can look back and say “hey I did this and that makes me feel good”. I journal write , so I can keep track of how my days were . It’s good that you found this website where you can get support, and advise .

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