so I have gotten bad with my fb this year, the pain is so unbearable, i just can't wrap my head around why this is happening to me. I was a normally active healthy person with a few ups and downs just like anyone, until 3 yrs ago. this past year is worse than ever, and I emotionally couldn't take it anymore. So when I finally do go to a pain clinic to get help since my PCP referred me (saying it was out of her expertise) its continued to be a battle until finally I am on Lyrica 300mg, Nuvigil 150mg, Butrans 10mg/7d patch, Tramadol 4x day as needed (ive told him constantly this doesn't do anything), Lorzone 750mg muscle relaxer twice a day and Cymbalta 90mg. Well my PCP was the one that started the cymbalta. my pain doctor treats me like either a pain pill seeker or acts like i should not be in the amount of pain that am in. maybe something is wrong with me. If he is not telling me something, Like all his other fibro pts are not near in this amount of pain and something else must be wrong with me. my PCP wont even look at me in the face any more and im not going back, I just wasted my last doctor visit because she tells me she will no longer fill my cymbalta since im going to a pain doctor, since it is being used to treat my fibro. well she knew that from the start! I feel completely abnormal, discriminated against and alone. I have gained weight, food is my comfort. stopped excercising, and now i cant fit into any of my clothes. so i finally went to a homeopath/accupunturist which i think may be helping, im on several supplements. I just started eatting well again, tons of veggies are suppose to be in the meal plan of a fibro sufferer. Its so hard. maybe my body is just getting addicted to my pain cycle, and stiff achy tight hard knotted up muscles and joints are just meaning i need to stretch hours a day or something. I feel like I have tried everything, you name it. At After all of this, I am still in pain although my pain is less thanks to the medicine, but my pain doctor thinks I should ween off of it. It drives me crazy, does no one believe that my pain is real?. I work 13 hr shifts as a nurse, have 3 kids and am needed to be superwoman all the time.
Its just not right! I dont understand why more doctors dont research and help us! Why is it so hard! Sorry for your pain and interaction with your doctor’s.
Oh, I am so sorry it has been really difficult for you. You have every right to be frustrated. It sounds like it might be time to look for a more Fibro - friendly medical team, a team that will work WITH you. Sometimes a fresh approach is just what is needed. You mentioned that you work 13 hour days, is there any flexibility in your job to work fewer hours? Can you look for a less demanding job or take time off? Do you have someone to help with your kids? I know the feeling of needing to be superwoman all the time, that is so me as well. Finally earlier this year I decided that it wasn't realistic, my health needed to be a priority or I wasn't going to make it to see my daughter grow up. So I have been working on focusing more on myself and making sure I do things for me that are beneficial. I am learning to ask for help and also to say "no" when needed. It took a while but it is getting easier and I am happier with the balance I am achieving. It is also helping keep my stress level lower which in turn helps my pain level most of the time. Please keep us updated on how you are doing and I highly encourage you to look for a new medical support team. Hugs!!!
Oh my gosh! You sound EXACTLY like me. I’m always in pain as well (worsening) despite Meds and I’m a nurse as well. Except I have 4 kids! Add me as a friend and I’d be happy to chat with you!
Mrs6 (Shauna)
I believe you!
I can not tell all of you how much I appreciate your words. I opened up these messages when I was working at the hospital, having a rough day with pain. ( med Surg so I was having to help the techs every so often pull up or transfer my patients some of which were max assist). I really needed something to get me thru. I can’t work part time or switch what I am doing because my husband is in school for nursing and works little. My family has taken over tons for me this year, laundry, dishes etc all gets divided. I just try and be ok with a cluttered house and not OCD cleaning/organizing anymore. Emotionally letting go, actually I have notes up reminding me to stretch muscles and take deep breaths, try and walk 3x a wk. self care is really important. But my insurance changed since I switched from working hospice to the hospital, and I couldn’t afford out of pocket for the Butrans patch $240and Lorzone muscle relaxer $450. But I am in intense pain at the end of a work day, so severe, I took 4 Motrin 2 ultram and a hot bath , and the doctors office probably thinks I’m crazy because I went there twice to fill the. Rx thinking I had a new loophole to get it cheap, but no. And they have this look on there face like they don’t even care to understand what I’m going thru. The doctor already thinks I need to wean down off meds that he just started me on a few months ago, I begged and pleaded for more med is why I finally got a pain patch. It just seems like this year my pain has gotten 10 times worse than it was. Why is it getting worse? It makes me feel like I’ve done something , maybe there’s somthing I haven’t studied up on yet. I think I will just go get the patch tomorrow and not suffer another day, I can’t live like this. It helps getting it out. Thank you guys. I don’t feel so alone anymore, and my pain is acknowledged. My husband. Just doesn’t know what to say, I wouldn’t know how to deal with me either. 