To all those people who think that pain is all in a persons' head. I would like to say this to you.I hope you never have to experience "that pain that is in your head". I hope you never have to be looked at as if you are crazy. Just because I have learned to "LIVE" with it does not mean I am not in pain. Do not look at me and judge what you do not understand. I AM NOT MAKING THIS UP. I AM NOT LAZY. IT IS NOT ALL IN MY HEAD. I hope those who judge others never end up being the ones judged.
Feel free to all anything else you think this needs.
I would like to add that I wish ALL doctors could experience what we have to go through everyday and then see how they feel when their doctor doesn't want to give them anything for the pain!!!!
sherylk, I agree. I have a friend with lupus and fibro, whose Rheum was in a car accident on Christmas day. He broke his neck and has been off work ever since. She said he's going back to the office to see patients next week, but will only be able to work one hour per day.
I feel bad for him, but I told her I wondered if he would practice medicine any differently now. Will he be more empathetic and sympathetic now that he has experienced terrible, chronic pain? Will he now understand the concept of making someone as functional as possible so they can continue to work? Will he treat more aggressively in order to lower someone's pain?
I think it will be interesting to see how my friend's next appointment goes...
You are probably too young to remember the song 'Instant Karma' by John Lennon, one of the Beatles, but I think there really is something to the karma, though it may not be as instant as we need it to be for others to understand.
Just remember, we understand, you can always come to us!
So sorry you are going through this garbage, hopefully they are not people you have to deal with often!
I wish I hadn’t listened to my ex husband so much. He told me EVERYTHING WAS IN MY HEAD. Pneumonia, ear infections, fatigue, strep throat. Why I ever listened to him is beyond me. It has been difficult to accept the diagnosis because I still question myself. “Am I really hurting or being dramatic?” “Does this even hurt?” Self doubt on top of previous emotional abuse is tough. I haven’t told many people because I’m afraid of getting that same reaction.
Luckily, I can relate to all of you and don’t have to share with everyone.
I’m sorry you experience that. I know how it felt and still feels to battle that with what my ex said. I guess sometimes we have to shake our heads.
I feel just like you do and chronically ask myself "Am I really hurting or being too dramatic?" or "Does this even hurt?" I base today's pain on yesterday's agony. In other words, I tend to not take today's pain as seriously simply because I'm not at agony level. And when I am at agony level, well, THEN I believe in fibro again! I tend to think that I need to be at agony level every single day in order to justify the claim of having fibro. I don't know where I got that notion but it dogs me.
So yes, someone else has self doubt about her fibro. I'd say it's silly but it isn't. It's just how we deal with having fibro. Who wants to accept the reality that this is a life long, life changing illness? I prefer to kid myself on it every day. Maybe your reasons are similar, despite your exes' influence.
One thing that I'm happy to share with you is that EVERYTHING ISN'T IN YOUR HEAD! YOUR HEAD COULD NEVER MAKE UP ALL OF THESE FREAKISH SYMPTOMS. And btw, your ex must have been some charmer to tell you to ignore pneumonia, strep throat, etc. No wonder you ended up with fibro, wearing your self out like that. Poor you. You deserve to believe (in) yourself as your own judgment sounds much better than his.
I’m sorry you have had to endure all that. I understand though. I feel myself not wanting to talk to people nearly as much. I’m no where as social as I used to be. I feel like all I do is complain but most people don’t understand anyway. I’m in the worst physical shape of my life and I’m embarrassed by it. I try to exercise several times a week but I cant do even 20% of what I used to and I don’t seem to be making any progress. Anyway it is definitely not all in your head.
