I've started discussion before about Lyme Disease vs. Fibro and so has Sunflower. I have recently gone through the IgeneX testing for lyme and was found to be positive for Borellia Burgdorferi(lyme organism) and a co-infection Mycoplasma pneumoniae. My doctor even had an add-on test done to re-confirm and it was positive. This explains what I've been suffering with for fifteen years and the list of diagnoses, including fibro.
I wonder how many of you fibro sufferers actually have Lyme Disease and don't know it? I strongly suggest that you get tested by IgeneX Lab. I wish I had done it sooner, but at least now I have an answer and don't have to walk around wondering what the heck is going on.
Lyme can kill you. Medicare covers most of the testing, some other insurances do too, but even if not, your life is worth spending the money or putting on a credit card to find out if you have it, so you can get the right treatment.
You can call them to find out about insurance coverage and pricing. Your doctor can either order the test kit or you can and your doctor can just sign off on them.
Keep in mind, many are not aware that they ever got bit by a tick, only 50% get a bullseye rash. It can be in system for years. It's widely misdiagnosed and at the expense of many.
I have continued to wonder about this myself as I had Bells Palsy right before my fibro and that is also deemed to be caused by Lyme Disease but the test results came back negative. If one has Lyme disease does that mean that the fibro will get better or that I should be on other medication? I need to look at the sites you provided but I was also curious since you seem to have done research regarding this.
Thanks for the info and it's fantastic that you finally found out what's causing much of your pain. Now you have a chance of getting a lot better. If there's any better news than that then I don't know what it is. You might be able to resume a normal lifestyle. WOW, that's an amazing thought! So good for you! You must be giddy with this possibility. I know I would be. Oh man!
Yeah, I'm going to look into the test and hope I can afford it. I hope others do too. Who knows how many of us have Lyme? Any of us who has ever been to areas where the deer tick is located should be tested, in my opinion.
Thanks Petunia. I'm gonna think positive and hope for the best. Late stage lyme is not easy to conquer from what I gather but to, at least, have a chance or possibility is encouraging. Don't let money stop you from getting tested. Call IgeneX, they are nice and will tell you right off if your insurance pays.
At least now you KNOW WHY it happened to you. And you know WHAT happened to you. And hopefully, hopefully you'll improve! Fingers crossed. And maybe better treatments will become available in the near future. That's still better than fibro because there is NO treatment for it at the present time.
I have the feeling I did already call them and was told it was mega expensive and that my insurance didn't pay for it but I can try again.
My best to you, Ally. It's worth a shot and it's a good start.
Sorry to hear that you do have Lyme, but glad that you finally have gotten to your underlying cause! I know you are in for a nasty course of strong meds, and I wish you well with this!
SK, I'm not going on antibiotics actually, but doesn't matter cause when you kill organisms the herxing is terrible. Been there, done that. My treatment will be colloidal silver and Rife machine, plus other supportive supplements.
Oh, good to hear that! I know that the colloidal silver has great antiseptic qualities, I have a friend who swears by it, he even bought his own machine to manufacture it! He sent me a case of it!
Hi Allergic, did you go see a Lyme literate dr ? Or did you just do the testing through this lab with the help of your primary ? Who recommended the colloidal silver ?
I’m happy you finally got some ans.
Thank you for sharing this with us
Hugs & blessings
dee
The Integrative MD that I see ordered the testing from IgeneX. He recommended the colloidal silver and Rife machine etc. I chose not to go to an LLMD at this time. My friend is under the care of an LLMD here but it's not in my best interest to be placed on high dose antibiotics. My intestinal lining and immune system is in such bad shape. Plus I'm on mercury chelation and yeast protocol and antibiotics would worsen that further. I'm in a really good local lyme support group here in the valley,with my friend.