Yes I do have to carry trays with food but its not heavy I make sure its light and after a lot of residents have left I take a bug cart and put a lot if dishes on it I. Have to take supplies to the kitchenettes on each floor there are 3 I use both hands and make sure its not too heavy same with putting away clean dishes or taking out RHE garbage I just pace myself during the day at work or nort to get through the day I'm taking the next 4 days off including yeasterday to help with the election I was sypposed to help yesterday didn't because my dog was having disco.fort with her front left paw limping licking and crying g gloom ger to the. Et looked at her very carefully he said I think its a sprain gave her a whit and so.e rinadyl fir the next morning was walking better but I stated hone with ger because she was always wanting me to pet her age was always ckiseto me all say even folloelwing me wherever I we t took her for a short slow walk ages fine off to church helping g with the election and a church meeting later have a good day e eryone
I always feel weak ...especially in my legs its like throwing one in front of the other ...I have just started using cymalita and already I have noticed that my leg strength seems to be a little better ...my arms are weak just not as bad as my legs most day ,,I'm really hoping that this new med will help me get back on my feet again and help me to help myself to re build my strength again ..
Becslecky Thank you for your comments. I just wish that there was more discussion on the weakness rather than just the muscle pain, because I think it’s central to explaining what this condition is all about. Not that muscle damage doesn’t also cause weakness, but certainly in my case the weakness is profound. take care and I hope your medication helps. barb
http://www.fibromyalgia-symptoms.org/fibromyalgia_dysmen.html This explains the weakness!
SK. Thank you for that information. It is good to know that muscle weakness is an accepted part of this condition. It just goes to show what a misnomer fibromyalgia is. I am on large doses of Vitamin D and I exercise daily on my Parkin, to the extent that I ca. This weakness however developed before muscle pain, so I don’t see it as being related to me being a couch potato. We are learning more about this condition every day. Again thank you so much for you thoughtfulness and help. Cheers Barb
I am gratified to read this post as it finally puts together, I believe, the missing pieces regarding fibro An autoimmune disorder associated with the central and peripherl nervous system. Yes. That sounds incredibly accurate. Have you discussed your theory with your doctor?
I think the reason that we bring the pain up rather than the muscle weakness is because for many of us, the pain screams the loudest and overshadows everything else. But I think you are doing us a great service by bringing up this discussion and I hope you continue to write threads on it. For instance, my ankles became weak about a month ago and buckled under me, as I've stated. I now wear soft braces but I do wonder what's next with them? It's a scary contemplation, Barb. I don't want to "go there" with my thoughts, but I do have to consider the possibility. So I'm truly glad that you're highlighting this aspect of fibro.
And yes, from what you've said, it really does sound like you have a neurological problem going on. Have you been to a neurologist? Have you had any CAT scans or MRIs done?
Like you, I also have to recline at a 45 degree angle or else pains accumulate. Also cannot stand for any length of time, especially when it's in one place. It must have been quite a blow to you to have this develop so late in your career and force you to quit earlier than you'd planned.
I quite admire how you are actively trying to figure out the exact nature of fibro. SK's rheumatologist feels that there must be a causative agent for fibro to begin. It's also a very intriguing theory and would explain why so many people with fibro seem to "develop" autoimmune illnesses after the fibro diagnosis. Since many of the autoimmune illnesses take so long to diagnose properly, it would seem possible that they could be within our bodies "silently" for quite awhile, except for the fibro pain signals they send out, until they fully develop and are diagnosed. Your theory is also quite intriguing.
Congratulations on writing a book on your fibro experiences as well as penning a novel. I hope you find success in publishing both. Like you, during my fibro "down time," I wrote a novel. So I guess there can be some "up" sides to having fibro. Please do let us know if you publish either tome. Of course, I want to see your chronicles with fibro published so you can educate others on it as well. As to your novel, do you mind my asking what genre it is? I am impressed with your accomplishments. Creative writing is a very rewarding and exciting activity.
I'll end my lengthy response at this time. Thank you, again for bringing up this topic. The more sides of fibro we expose, the more help that others can receive from recognizing and acknowledging these symptoms.
I hope it helps you too, Becs. Having weak legs is frightening. It would be great if the Cymbalta could do a 1-2 punch on the fibro by reducing the pain as well as the overall weakness. I didn't know that it had this property (improving the weakness,) so it's good to find out more about it in case others are interested.
How're you feeling tonight? Is the pain a bit less invasive? You sounded somewhat better last night as opposed o the night before so I hope the momentum is still building. Please keep me posted! I've enjoyed our chats and want to know how you're making out.
Gentle hugs,
Petunia
Petunia girl thank you for your kind words. Ini ally I couldn’t write at all when my chronic fatigue was really bad I literally went around in a fog. That lasted five years. I have to say it was a dreadful time. I couldn’t have communicated like this I simply slept all the time in between basic activities. The I entered hospital with renal failure literally a life saving exercise and when I came home I found a good doctor who was also alternative and he helped me a lot. It is nearly three years down the track mow and two years ago I found that I could use an iPad. Since then cognitively I have improved although not in respect to muscle pain and weakness. I am housebound but manage to look after myself and write, sometimes more than others. I am not a natural author by any means and so do struggle to write,but if nothing else I am persistent. A friend of mine is editing my book on fibromyalgia, I don’t know if I will get it published, all I can do is the best I can and hope. The novel is about love. Not that I know much about it but I think it will be OK. I don’t know what it’s called yet. Thank you so much for your friendship. This group has helped enormously. Barb