@strugglinginKs and @Willow3, I’m so glad that you’re reaching out and active on this thread! While the whole world runs around acting like they’re making merry, many of us, and especially those of us whose lives have been touched with a rare disease, do find the holiday season to be a very difficult time.
That’s why we’re all here: social and emotional support. And don’t forget, Ben’s Friends is here for you during the holidays as well, and we’ll do our best to make sure that if you need it, you’ll find support here. Did you read my message in “General”?
So hang in there, and hang out here. We get it, we really do.
Seenie
PS do you mind if I “invite” a few others to this thread? You aren’t the only two struggling. No, make that three … I’m feeling it too. 