My insomnia has gotten out of control. I either stay up all night and all the following day or go to sleep and sleep the entire night and all the following day. There seems to be no rhyme or reason for it, yes, I’ve tried every over the counter, home remedy and rx for it. It has gotten so bad I’ve missed dr and hair appts because of it. I never know when I am going to sleep and for how long. People don’t care why you’ve missed an appt. they just get mad. Which makes me feel just awful. I am so sick of this !!! I guess I need a sleep study, but can’t afford it right now as our deductible hasn’t been met.
I have never slept much until I got sick and now I need more sleep but wake up off and on all during the night because of the pain and I run fever from my rheumatoid arthritis. When I’m in a flare I need 12 hours of sleep at night. I don’t miss appointments. I’m sorry its so bad for you. I wish I could sleep that sound. Lol. I just did a home sleep study last night and I woke up so mad because I had to sleep with all that crap on me. All the belts and wires made my body sore. I know its probably good but I hope the cat naps I take all night give them enough info because I can’t make myself do this again. Sleep is a frustrating thing!
It is so weird because I can’t sleep but when I do nothing wakes me up. Not the phone, the alarm, the dogs barking…nothing. Which is scary when you think of it…what if there was a fire ? Would the smoke alarm wake me ? Or if someone broke in? I shudder to think of how embarrassed I am about missing appointments and also feel stuck in the house all the time. They let you do s sleep study at home !!! I’ve been dragging my heels because I hate the thought of trying to sleep in a sleep lab with all that stuff on me !
A sleep study is exactly what you need it's the only way to get a accurate picture of what's going on with you. The problem for fibro suffers is the don' get that restorative restful sleep called REM sleep and we wake up all the time I never sleep from night till morning even if I take sleeping tablets I am always physcaly tired and mentaly not very sharp and very forgetful, I do things I don't remember doing it's horrible it's like having another one of me running round out there and believe me ones enough
I know what you mean Jeannie ! I forget stuff I have done and that is scary !
I honestly thought I was the only one... Just know that you're not alone :( It makes you feel pretty worthless, huh? I even pull all-nighters on purpose now because I know I'll miss appointments otherwise...
Hi chadsirishgirl,
Oh yes, I could have written this, and personally this is what I have found. If I cannot or do not go to bed, when I feel that my internal switch clicks to off, then I'm fighting to sleep at any hour, but am usually up for the night into the next day, followed by a crash the following day.
From day one, my GP and Rheum have tried to get me in a better place with sleep, and was just recently taken off the Sonata given me to try by my Rheum and put on Ambien by my GP. His theory is, if you are going to take medicine, then take enough of the right thing to make a difference in your life! Amen to that! So my GP just game me a script for Ambien to send in, I'll let you know how it works for me after I send it in.
I simply do NOT do morning appointments, as I usually cannot make them!
My Rheum has seen me feeling so badly that I could barely put one foot in front of the other, telling me that I could have rescheduled! REALLY? But how am I going to feel better with postponing my appt with you? It was a kind word, and an assurance that I would not be billed, but often you cannot leave a message with a Doctor's office unless they are presently in the office! I mean if you cannot sleep until 4:30 in the morning, do they think we will be up to call by 8:00 am??
Hope you can find a solution, in my opinion, for me, if I am sleep deprived then the pain escalates and my personality and sense of responsibility are marred!
Wishing you well,
SK
My Rheum explained to me that the 'fog' is really from chronic pain, and lack of sleep due to chronic pain!
Gosh I have spent some time this morning on this site and feel much better. Its just plain reassuring to read what I am thinking . I was suppose to be at an appt at 11am this morning . I sent a text to them at 4 am saying I could not make it and felt like a loser.