Remember folks, fibro is a life-long illness. If there was a remedy for it, then the doctors and pharmaceuticals would be all over the remedy. Also remember that we need to be careful about having flare ups if we start taking unknown substances or not taking the meds we're on. Always check with your doctor before you jump on the bandwagon of a new cure or remedy. Be safe and be smart!
Hugs,
Petunia
Yes Scribelle, there are hidden gifts within the invisible chronic illnesses.
Rachel
Yes Petunia, chronic means lifelong. We are not going to recover our former lifestyles, our new lifestyle is to learn how to adapt to our chronic illnesses. Slowing down is an important ingredient of our new lifestyle.
You are so right..................be safe and be smart.
It's hard when you live alone and have done so for so many years as I have.
Gentle hugs
Rachel
Hello everybody , I havent been here for a while and have missed you all , have so much happening at the moment , im glad ive come on today as iam struggling with the fibro and reading what everyone has put has made me understand I have to slow down , I try and rebell against the fm , as I miss who I was , the fm has now got my bladder , eyes imnow wearing glasses all the time , tablets for my bladder , I just feel im all over the place at the momement , I feel im becoming worse , I know iam its never having a break from it and then something else creeps in , im tired of it . Sorry to moan . Ty diana for expressing it did help me , warm hugs xx to everyone x . I do have to say patriciacnc I have seen you on another site and you have written the same there , some people were against what you say , I do agree , I dont think it is fair that you should build our hopes up , especially on the different sites that you go on. I personally am trying to have a better quality of life , iam still trying to understand whats happenend to me , I just think you are giving out false hope . Warm hugs to all xx
Thanks....needed this reminder!
That was great. Thank you for that. I needed to be reminded.
I always feel that no matter how fast I’m trying to go its not fast enough for my family and friends. In fact I know I don’t and my effort isn’t enough.
I’m always on there time so I feel pushed all the time.
I don’t care about the strangers but trying to do it for family and friends is when the exhaustion and pain sets in and I just want to cry and sometimes I do.
I will try to apply this to people I love. If the truly love me, they will understand. I guess that’s what I’m afraid of. Finding out that they don’t have that unconditional love. : /.
Thanks again. Lisa
I am really impressed or feel (I’m not sure which) for those of you who still work. There is no way I could. So God Bless you.
Tricky r you on disability. I want to apply but everyone says I#l be turn down.
I forgot to tell age 49
I'm like everyone else that replied to your discussion, very grateful that you bought this up. I struggle daily with the limitations that this stupid "condition" puts on my mind and most of all ,my body.
It is so hard to face the fact that we cannot do as much in a day as we could in some cases, a week, day or a month ago.
With me the decline has been rather rapid and I am doing everything that I possibility can to regain some of the strength and agility that I have lost in the last six months. As you all know it is a very humbling situation.Weight seems to have applied it's self to an already extra curvy (being kind to myself here and not saying, fat) body.And just who's idea was it that weight gain should be added to the list of things we have to cope with.
Sorry for the side tracking here...but I really do appreciate your post, but can't things just happen a little faster. LOL
Jan
I am so glad for your wonderful post Diana. It is such a reminder to all of us to get through each day as best we can and slow down and smell the flowers. We have good days and bad days and we just need to slow down and be thankful for each day that we do have. It is not easy and sometimes we just want to give up. I know I do especially when it seems each doctors visits brings more bad news. Then I think of my family and how much I love them and it gives me strength to keep on going. I would love to work for a few more years since I love my job, it has been a part of my life for 25 years, but I have accepted the fact I will have to quit soon due to the Fibro, and Peripheral Neuropathy. I am blessed to have friends who accept my illness and support me every day. They understand that some days we just don't feel like putting on a good face. That is what makes this support group so special. No judgment just love and support!
Eileen
I am 58, and feel like I'm 78. I move slowly. I think slowly, but at a high level. However in fibro fog, I can hardly put a noun and a verb together. Word retrieval and sequencing become difficult. Once out of the fog, I can function again. I leave extra time whenever I go somewhere because I also have to load and unload a rollator from the car. I've got it timed pretty well now, and am rarely late for anything. I just allow extra time. The benefit I've noticed is a decrease in stress. When I push myself to keep up with everyone else, I stress out because I can't do it. When I simply allow the time I need, my stress is lower and I can enjoy things. Too bad others don't know how to slow down. Maybe the problem is theirs, not mine!