We're finally home. Thank you so much for all your suggestions. I was very comfortable on the road trip. I went with a couple that had children and the frequent stops we're very helpful. I was able to stretch and at times even lie down. I did not have any flares in Ohio, New York or in Niagra Falls and we walked a lot. The weather was beautiful. I am so grateful for this, it made my vacation extra special. I was really worried.
The funny thing is as soon as we got to Corpus Christis, TX the pain started again. I am trying to figure out if it is the humidity that is affecting me